M.E/Chronic Fatigue, fibromyalgia, long covid-Tiverton & surrounding areas

21/11/2025

Thank you Rachel Gilmour for not forgetting us.

Missing People ME Association Unite Carers in Mid Devon Tiverton Wellbeing Clare House Surgery College Surgery Partnership Castle Place Practice Mid Devon District Council

https://www.facebook.com/share/v/1GKoo9MrQk/?mibextid=wwXIfr

13/11/2025

Please email your local MP asking them to attend thank you Tessa

https://www.facebook.com/share/1AZy14savb/?mibextid=wwXIfr

MP Tessa Munt has tabled a debate on ME/CFS in Westminster Hall on 19 November 2025 from 4:30pm until 5:30pm

Please write to your MP and ask them to attend the debate next week!

https://whatson.parliament.uk/event/cal53589

You can find your local MP using this link: https://members.parliament.uk/FindYourMP

N.B. There For ME have a template letter if you wish to use it: https://www.thereforme.uk/p/westminster-hall-debate-on-me-wednesday

12/11/2025

Need a bit of extra support at home?
Devon County Council offers helpful guidance on Personal Assistants and Microproviders—explaining who they are, the kinds of services they provide, how they’re regulated, and how they can help you stay independent in your own home. Most importantly, they show you how to find the right support for your needs

To see, just click on the link below.

https://www.devon.gov.uk/adult-social-care/independent-living/support-at-home/personal-care-at-home/find-a-personal-assistant/

Small Good Stuff, in partnership with DCC, also has a similar page where you can search for microproviders who can help with paid for care in the home.

https://www.communitycatalysts.co.uk/smallgoodstuff/subsite/devon/?fbclid=IwY2xjawOAMNxleHRuA2FlbQIxMABicmlkETBKUXRGY25RVjlZdGU1VWVxc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHkWBBziqnJ38njcYlqjkRu1cvd-E-jc7T3IiXRS9p0mNZ09E6PAML0Ky0CuJ_aem_rXzf4Ig4CVqDm93XloMFGQ #:~:text=Devon%20Small%20Good%20Stuff%20does,access%20to%20a%20friendly%20network.

12/11/2025

https://youtu.be/wxSwYUennBA?si=RMhcMfT17xza_8P4

JMP offers a 30-day free trial for anyone, anywhere. Go to https://www.jmp.com/scishow to see the benefits of visual statistics for yourself. ME/CFS, or myal...

11/11/2025

It’s a bit late but here’s a great local resource Tiverton Wellbeing

Don’t forget if your do suffer with conditions similar to ME/ CFS please come along and join a small local support group

ME/CFS & similar conditions kind support group Tiverton & surrounding area

https://www.facebook.com/share/p/1Cf74mVeCg/?mibextid=wwXIfr

20/08/2025

Want to know the real impact of ME and similar conditions - here’s a good follow. It’s not all about fatigue……

Tiverton Wellbeing Castle Place Practice Clare House Surgery College Surgery Partnership

https://www.facebook.com/share/p/16tCAyGreh/?mibextid=wwXIfr

https://www.facebook.com/share/p/16tCAyGreh/?mibextid=wwXIfr

In the next few weeks, we will be sharing an A-Z of common symptoms, experiences, and comorbidities of ME/CFS, to show that it is far more than 'just feeling tired', and to signpost people with ME/CFS to relevant resources, support, and information that can help them manage their condition.
Keep an eye out for our posts...

10/08/2025

Professor Chris Ponting, who led a groundbreaking study into the disease, says it is ‘highly stigmatised and incredibly female-biased’

10/08/2025

Natasha Devon hosts a phone-in on LBC about MECFS and the newly released DecodeME genetic study results. Callers share their experiences of living with MECFS...

10/08/2025

Maeve Boothby O’Neill’s mother had no idea she was being accused in private of causing or fabricating the illness that would take her life aged 27

09/08/2025

https://www.facebook.com/share/18Zh2MrGkS/?mibextid=wwXIfr

🧬Science Wednesdays: HPA axis

The hypothalamus-pituitary-adrenal (HPA) axis is the communication between three organs: the hypothalamus region of the brain, the pituitary gland, and the adrenal gland. The HPA axis is a major part of the body’s stress management system.

In ME/CFS, the axis has been shown to be dysregulated, meaning the body doesn’t respond to stress signals properly. This dysregulation can be associated with some of the hallmark symptoms of the disease, including fatigue, immune system dysfunction, and sleep disturbances.

OMF’s Melbourne ME/CFS Collaboration is conducting a study on the link between brain blood flow and neuroinflammation, the impact on the HPA axis, and the dysregulation of hormones in , , and .

👉 Read more about the project and watch interviews with the study team: https://ow.ly/bxqX50WAHju.

06/08/2025

Important announcement! DecodeME has released our initial DNA results and have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. These findings confirm that your genes contribute to your chances of developing ME/CFS.
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Want to know more?
Read a summary of our results: https://shorturl.at/pgsjk
Or check out the full preprint paper: https://shorturl.at/VwN3s