20/08/2025
There has been so much in the news recently about celebrities being diagnosed with Lyme, this is so important as it helps spread awareness. It made me reflect on my own Lyme journey which started in 2019, I’ve written my story in detail in my book - ‘Lyme in the Limelight’.
Looking back now I’m grateful, it changed me as a person and gave focus to my career - a huge percentage of my clients are those living with Lyme and complex illness, but going through it back then it was scary and confusing.
Symptoms started in summer 2019, I was very stressed as was finishing my
Masters degree whilst still working full time. I think I possibly got Lyme from a mosquito bite whilst travelling at the Galápagos Islands a few months earlier, but I’d never know for sure.
Symptoms would wax and wane and become weirder and weirder - one day my knee would blow up, another day I’d suffer from severe insomnia, my symptom free RA would flare, weird buzzing sensations on the skin and muscle weakness would apprear out of nowhere. I became so irritable and hard to be around.Muscle twitching the medical term for which was ‘fasciculations’ convinced me I had a rare neurological disorder called ALS and not long to live.
Drs looked at me with disbelief and I was checked for Lyme, but of course it came back negative and also had an MRI for a brain tumour - also negative, so was discharged as ‘fine’.
I had a private test which was positive for Lyme ( after 2 false negative tests) and co and an empathetic GP prescribed me 6 weeks of Doxy, which made everything worse, now my gut was a mess, too.
Towards the spring of 2020 symptoms were worsening and some days I’d be loosing balance, seeing floaters in eyesight and even had one weird episode of disassociation-just whilst sat at my table eating fish pie I barely had the energy to make or eat.
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