09/07/2025
This is so true . There is nothing in our health system for follow up care and rehabilitation for people with severe aquired brain injury . We never realised until we found ourselves in this situation. After getting through the acute stages and following a brief stay in the nrh we presumed that Sean would get the help he needed to carry on his recovery. Not the case . Although he’s referred to public health services , the amount of physio and speech and language he gets is limited as they serve the whole community. He has only seen physio twice since sept 2024. During his stay in uhw two weeks ago due to the infection , all his symptoms got worse . Stiffness , muscle contractures , pain and everything else . We couldnt open his hands they were clenched so tight . We couldn’t straighten his arms or his legs. We asked if physio and occupational therapy could see him since he was an in patient. His arm wouldn’t straighen and his hand was turning in , we thought a splint or even advise on what kind of splint we could get him would help but he wasnt seen . We were told because there isnt hope of full recovery they wouldnt treat him . Its because uhw is an acute hospital and not a rehabilitation hospital. We were advised to consider possibly going down the pharmacological route instead even though physio is ine of the most important parts of recovery after brain injury . Its heart breaking to see the person you love that had so much to live for before this happened being left to suffer and forgotten because theres no help out there . This is why we are so greatful for every donation we have recieved . Now we can help him ourselves by getting those services privately. Without setting up this go fund me this wouldn’t have been possible .
Long-term rehabilitation is a human right.
And yet, most national healthcare systems, including Ireland’s, don’t formally recognise it as such. There’s no legal guarantee to ongoing rehab after the acute phase, no national strategy for lifelong support, and no accountability when services abruptly stop.
This isn’t just a funding issue, it’s a failure to see people with severe Brain Injuries as citizens with equal rights to health, dignity, and participation in society.