Iama2cmdindia

31/01/2026

👉 Raise awareness | Start conversations | Support research 🤝

Because awareness is the first step toward a cure.😇

21/01/2026

A family | A big belief | A future we are fighting for 💫
When family comes together, your power multiplies 🫶🏻

It was Ishika’s 2nd birthday and happiness was truly all around✨

I don’t know what the future holds, but aaj bahut acha hai and kal aur bhi acha hoga. Hope is stronger when it’s shared.

On this special day, my family came together to record this video in support of LAMA2 Muscular Dystrophy.

This is not just a video—it’s love, belief, and a promise to keep going 🙏🏻😇

18/01/2026

When the path becomes tough, we often look for an easier way or try to walk away.

In , the silence around specially do make us feel alone 😌
But light only comes when someone chooses to walk the darkest path first😇💫

If you believe rare diseases deserve answers, stand with us. Speak up. Share. Support the change🤝🙏🏻

15/01/2026

You cannot cure what you don’t first understand ✍🏻

A Natural History Study ( ) tracks how a disease naturally progresses and India will begin its first ever NHS for LAMA2 Muscular Dystrophy.

This is how invisible diseases become visible.
This is how research begins.
This is how hope turns into evidence 🤝

If you or your child has LAMA2, your participation can change the future🙏🏻

🔗 www.lama2india.com

25/12/2025

May love be louder than fear, hope stronger than hardship, and kindness the gift we pass on… every single day 🫶🏻

13/12/2025

23/11/2025

Winter in Delhi is cruel🫤
Pollution is worse 😪
And our little Ishu fights fever, cough, cold on top of LAMA2 CMD

21/11/2025

Learning to walk.
Learning to breathe.
Learning to talk.
And now… learning to raise a voice for LAMA2.

This journey is not just about milestones. It’s about relearning life in ways most families never have to imagine.

✍🏻 It’s about watching other children grow and silently comparing.
✍🏻 It’s about smiling on days when your heart is not ready.
✍🏻 It’s about repeating the same lines in every speech, knowing some people may mock you yet speaking anyway.
✍🏻 It’s about showing up, even when you have no idea what lies ahead.

At the IACC Summit, I spoke not as an expert but as a mother.
A mother fighting for her child. A father too holding everything together, carrying the weight silently, and still saying with full faith everything will be fine one day.

We are ready fighting for every child affected by LAMA2 Congenital Muscular Dystrophy.
And we, asking the nation to look, listen, and act.

If this message touches you, please share it.
Your one click can become one voice.
And one voice can become a movement.

Let’s build LAMA2 awareness.
Let’s build LAMA2 India.
Let’s make the invisible… finally visible.

https://youtu.be/i-Mk2x-0kv4?si=KZTqBXgrfDG5JfVu

At the Indo-American Chamber of Commerce (IACC) Summit, I stood on the stage not as a professional, but as a mother — a mother fighting for every child livin...

02/11/2025

A visit from a Member of Parliament — and an entire hour dedicated only to LAMA2.

Moments like these remind me — this is how change begins…
Hand to hand.
Voice to voice.
Heart to heart.

My impromptu little poem —
May we all come together,
So that one day,
The word “cure” finds its way here. 💫



Moments like these remind me — this is how change begins…
Hand to hand.
Voice to voice.
Heart to heart.

My impromptu little poem —
May we all come together,
So that one day,
The word “cure” finds its way here. 💫

02/11/2025

Our attempt of raising awareness on Lama2 with Member of Parliament 🙏🏻😇

27/09/2025

Shri Keshav Ramlila Committee Pitampura मंच पर हमें के बारे में जागरूकता फैलाने का अवसर मिला।

ये रास्ता आसान नहीं है| हर दिन चुनौतियों से भरा है। पर हमें विश्वास है कि अगर हम लगातार लोगों तक अपनी आवाज़ पहुँचाएँगे, तो एक दिन भारतीय सरकार भी हमें सुनेगी और समाधान की दिशा में ठोस कदम उठाएगी।

🙏 दिल से आभार Ashok Goel Devraha ji और पूरी Keshav ram leela nsp Pitampura team का, जिन्होंने हमें यह मंच दिया और हमारा हौसला बढ़ाया।

यह सिर्फ़ हमारे बच्चों की लड़ाई नहीं है, बल्कि हर उस परिवार की उम्मीद है जो इलाज और बेहतर भविष्य की प्रतीक्षा कर रहा है।

हमारे छोटे से प्रयास एक दिन बड़ी लहर बनेंगे… बस साथ दीजिए, आवाज़ मिलाइए।

23/09/2025

Ahmedabad Diaries – Ishu & Kaka

We came to Ahmedabad for Ishika’s pediatric physiotherapy. It’s been a week her. Therapy after therapy, routine after routine. One day, I casually told Ishu, “Kaka is coming on Saturday.” The moment she heard it, her energy shifted. With the brightest smile, she said, “Meri Kaka aane wali hai.” and it was on repeat 🥰

And Saturday morning truly was a scene to watch. The moment Kaka (Misha) arrived, Ishu lit up. They were inseparable; Misha had to be around her every second.

I never imagined their bond would be this strong until I saw Ishu cry “Kaka, Kaka” nonstop after Misha and Raghav flew back to Delhi on Monday evening. She cried herself to sleep that night.

That’s when I realized a few things:

1. Misha had prayed for a baby sister my entire pregnancy. Maybe their bond began at the soul level even before Ishu came into this world.

2. They fight, tease, and laugh like any normal siblings, and it fills our heart.

3. Ishu may lack muscle strength, but she has the sharpness to make Misha melt for her and Misha, my mature and understanding child, always let Ishu win.

Moral: Sometimes, strength isn’t in muscles but in love, patience, and the unspoken connection that we share.

I am grateful for the support i get from my whole family. Let’s always count the blessings 😍💫🧿