11/02/2026
As we prepare for enrollment for the FOXG1 gene therapy clinical trial, here are the important steps caregivers can take right now to be informed and prepared.
Next Steps for Parents:
✅ Register in the FOXG1 Patient Registry
Make sure your child is registered and that their genetics report is uploaded.
https://foxg1.beneufit.com/login.php
✅ Enroll in Citizen Health
Enrollment in Citizen Health is required for trial participation.
Families worldwide are eligible to enroll.
https://www.citizen.health/ai-advocate/foxg1
✅ Complete the Citizen Health Survey
You’ll receive an email from Citizen Health in about one month with an important survey.
✅ Watch for emails from FRF�
We’ll continue sharing key updates and next steps directly with parents. Please check your inbox (and spam folder) regularly.
✅ Join our Parent Facebook Group
�If you’re on Facebook, be sure you’re part of the FOXG1 Research Connect Parents Support Group.
Taking these steps now helps ensure you’re ready as we move forward together.
