CAH Support group

CAH Support group 1 out of 10,000 individuals is diagnosed with Congenital adrenal hyperplasia(CAH) in Africa.

Today, MAGIC Africa handed over the newly translated CAH (Congenital Adrenal Hyperplasia) educational flyers—available i...
09/12/2025

Today, MAGIC Africa handed over the newly translated CAH (Congenital Adrenal Hyperplasia) educational flyers—available in both English and Kiswahili—to support the work of Hilda Muiruri at the Mental Health Department of Kenyatta National Hospital.
These materials will help patients and families better understand their condition in a language that is accessible and familiar.

Hilda Muiruri is a dedicated healthcare professional whose career spans both nursing and psychology. Now serving as a psychologist in the Mental Health Department, she provides compassionate emotional and psychosocial support to patients and families facing chronic medical conditions.

Her work is especially impactful for children and adolescents who are transitioning into adulthood and struggling to understand the physical, emotional, and social changes brought on by their conditions. She creates a safe environment where young people and their caregivers can explore their fears, build coping skills, and strengthen their resilience.

With her strong foundation in nursing and her expertise in psychology, Hilda bridges medical care with mental and emotional well-being—ensuring that every patient receives holistic support that addresses both their health and their heart.

💙✨ WE DID IT! THANK YOU, CAH COMMUNITY! ✨💙What an incredible and empowering Parents–Doctors Engagement Meeting we had to...
30/11/2025

💙✨ WE DID IT! THANK YOU, CAH COMMUNITY! ✨💙

What an incredible and empowering Parents–Doctors Engagement Meeting we had today! The room was filled with knowledge, compassion, and true community spirit.
Whether you joined us physically in Nairobi or virtually from around the world, your presence made this event a success. 🌍💙

A heartfelt THANK YOU to our amazing speakers and partners:

👨‍⚕️ Dr. Renson Mukwana – for breaking down CAH management with clarity and hope.
🧠 Hilda Muiruri – for guiding us through the emotional & psychological journey with warmth.
🌍 Dr.Kate Armstrong – for bringing global collaboration and inspiration to the room.
💪🏽 Dr.Heriet Mhondiwa – for sharing powerful lessons in parent-led advocacy from Zimbabwe.
🩺 Dr. Phoebe Amolo – for your continued dedication to CAH care.
👩‍⚕️ Dr. Esther Kobel – for strengthening regional CAH advocacy and family-centered care across Africa.

A big thank you to every parent, caregiver, young adult, and advocate who attended.
Your questions, openness, and support made the day truly meaningful.

🌟 We also celebrated a major milestone — the launch of the new CAH flyer in both English and Kiswahili, making CAH education more accessible to families across the region. 📘📙

💙 Together, we are building a stronger, more informed, and more connected CAH community in Africa and beyond.

One key takeaway from the NCD Conference: Kenya still allocates 5% or less of its national budget to health — far below ...
23/11/2025

One key takeaway from the NCD Conference: Kenya still allocates 5% or less of its national budget to health — far below the 15% Abuja Declaration target, which only a few African countries like Rwanda, Botswana, Cabo Verde, and South Africa have managed to meet.

This low investment directly affects pregnant mothers, people and children with chronic conditions, those with special needs, and families relying on lifelong medication. Countries that meet or come close to the 15% target tend to show stronger primary care systems and better maternal and child health outcomes — but increased funding only works when combined with strong governance, equitable distribution of resources, effective health insurance models, and efficient implementation.

For Kenya and much of Sub-Saharan Africa, the way forward is clear:
Increase health investment, strengthen real implementation (not just policy on paper), and ensure patients and advocacy groups are truly included in decision-making. Mortality will only drop when health becomes a genuine national priority.

Attending the NCD Conference 2025, the very first conference of its kind in Kenya, was a powerful experience for our org...
19/11/2025

Attending the NCD Conference 2025, the very first conference of its kind in Kenya, was a powerful experience for our organization. Together with Christine Mutena, Co-founder of Rare Disease Kenya, we engaged with policymakers and learned how other organizations are driving change in the NCD space.

We gained key insights on:
• Strengthening policy and advocacy for improved NCD care
• Innovative community programs and partnerships
• The need for inclusive data systems, especially for rare conditions
• Enhancing patient and family support

This inaugural NCD conference strengthened our commitment to advancing awareness, care, and policy support for people living with chronic and rare conditions.

💙 Understanding & Managing Congenital Adrenal Hyperplasia (CAH) 💙Are you a parent, caregiver, or patient living with CAH...
02/11/2025

💙 Understanding & Managing Congenital Adrenal Hyperplasia (CAH) 💙

Are you a parent, caregiver, or patient living with CAH?
Don’t miss this special Parents–Doctors Engagement Meeting — a chance to learn, connect, and grow together! 🌟

✨ Learn directly from top CAH specialists & psychologists
✨ Understand when to give extra hydrocortisone (stress dosing)
✨ Connect with other CAH families — you’re not alone!
✨ Enjoy a light meal, conversations & community support

📅 Saturday, 29th November 2025
🕚 11:00 AM – 1:00 PM
📍 Seminar Room 4, Gertrude’s Children’s Hospital – Muthaiga, Nairobi

💫 We warmly invite you to attend physically!
Your presence, questions, and story matter — together, we can build a stronger, more informed CAH community in Africa. 💪🏽💙

🌍 Guests from other countries can also join virtually to strengthen regional collaboration.

📞 RSVP: +254 713 166 800
📧 info@magicfoundationafrica.org
🔗 Learn more or register here: https://shorturl.at/TA3nP




🌟 Great News for Children with Blood Disorders in Kenya! 🌟Gertrude’s Children’s Hospital has launched the region’s first...
14/10/2025

🌟 Great News for Children with Blood Disorders in Kenya! 🌟

Gertrude’s Children’s Hospital has launched the region’s first paediatric bone marrow transplant centre — a major step forward for children with conditions such as sickle cell anaemia, leukaemia, and other immune or blood disorders.

This means families will no longer have to travel abroad for bone marrow transplants, as both autologous (using the patient’s own cells) and allogeneic (using donor cells) transplants will now be available locally. 💪🏽

👏🏽 A huge milestone for Kenya and the region — improving access, reducing costs, and giving more children a fighting chance at recovery.

🩸 Source: Gertrude’s Children’s Hospital announcement (Sh200 million facility established in Nairobi)

🌾 “When we care for the environment, we care for our health — every tree we plant is a breath of life.”
10/10/2025

🌾 “When we care for the environment, we care for our health — every tree we plant is a breath of life.”

09/10/2025

🌍 Community Outreach – Boys Rehabilitation Centre.

On Thursday, 9th October 2025, we joined hands with our Community Church Health Committee for a special outreach at the Boys Rehabilitation Centre.

The day’s theme focused on prevention of alcoholism and other addictions, guided by faith, compassion, and shared responsibility.

The highlight of the session was a powerful talk by Mr. Denis Gitonga, a reformed former addict who shared his inspiring journey of recovery, discipline, and transformation. His testimony offered the boys real-life hope that change is possible with commitment and faith.

The team also discussed the causes, effects, and management of addiction, emphasizing on the importance of making positive life choices, seeking help, and staying connected to God’s guidance.

Through prayers, teachings, and fellowship, the boys were reminded that they are loved, valued, and capable of building bright, addiction-free futures.

This outreach reflected on our Organization’s mission of promoting holistic growth and wellbeing, showing that healing involves body, mind, and spirit. It also demonstrated how community partnerships can transform lives through service, love, and faith. 🌿
.

🧠 Preventing Alcoholism & Addiction Among Our ChildrenAddiction doesn’t start suddenly — it often begins with curiosity,...
09/10/2025

🧠 Preventing Alcoholism & Addiction Among Our Children

Addiction doesn’t start suddenly — it often begins with curiosity, stress, or lack of guidance.
As parents and caregivers, we can protect our children by:
🌱 Talking openly about the dangers of alcohol and drugs.
💬 Listening to their struggles, especially those living with health or endocrine conditions.
🤝 Encouraging healthy habits, friendships, and self-confidence.
❤️ Reminding them they are more than their condition — they are capable, loved, and have a bright future.

Together, let’s raise a generation that chooses health, hope, and purpose over addiction. 🌟

🌍 Webinar Invitation – Save the Date!Newborn Screening that Saves Lives: Lessons from Brazil, Indonesia, and KenyaTheme:...
12/09/2025

🌍 Webinar Invitation – Save the Date!
Newborn Screening that Saves Lives: Lessons from Brazil, Indonesia, and Kenya
Theme: What LMICs Can Scale Now (with a CAH Spotlight)

🗓 Date: Friday 19th September.
⏰ Time: 7:00 PM – 8:30 PM (Nairobi / EAT)
📍 Online (Zoom)

Join us for an insightful discussion on:
✅ Key lessons from country journeys in newborn screening
✅ Challenges and opportunities for strengthening NBS programs
✅ How global collaboration can help ensure all children benefit from early diagnosis and care

💡 Is newborn screening necessary—or should we wait until symptoms appear?
💡 Can early screening reduce infant mortality rates?

✨ Don’t miss this important conversation—save the date and tune in!

👉 Register here: https://us02web.zoom.us/webinar/register/WN_RZmSK7CdQJekDgOEdOmO5A

September is Newborn Screening Awareness month, Newborn screening helps identify babies who may be at higher risk for se...
09/09/2025

September is Newborn Screening Awareness month, Newborn screening helps identify babies who may be at higher risk for serious conditions that are not apparent at birth.

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