CAH Support group

27/04/2026

It was a great privilege and honor to be invited to attend and represent MAGIC Foundation Africa at the First African CAH & DSD Symposium held at Pullman Nairobi Upper Hill.

The symposium brought together specialists from Africa, Europe, and Asia, providing a valuable platform to share knowledge and experiences on improving care for individuals living with Congenital Adrenal Hyperplasia and Disorders of S*x Development.

We presented our work on increasing community and healthcare worker awareness and preparedness in the emergency management of adrenal crisis, aligning with key discussions on early diagnosis, emergency preparedness, and multidisciplinary care.

The experience strengthened our knowledge, expanded our networks, and reinforced the importance of community-driven approaches in improving outcomes for children and families.

17/04/2026

A sincere thank you to our incredible partners and community. Your support, collaboration, and advocacy are driving real change for children living with endocrine conditions.

03/04/2026

11/03/2026

📢 *5 Days Left: Early Bird Registration for First African CAH/DSD Symposium*

The Early Bird Registration for the First African CAH/DSD Symposium will be closing soon.

Take advantage of the discounted rate by registering before the deadline.

🗓 Early Bird Deadline: *15th March 2026*

🔗 Register here: https://paedendoskenya.org/product/first-african-cah-dsd-symposium-registration/

🔗 Submit abstract now! https://paedendoskenya.org/abstract-submission/

We look forward to your participation!

08/03/2026

Happy International Women’s Day!!!

06/03/2026

On 28th February 2026, we had the privilege of attending the Rare disease meeting organized by at Gertrude’s Children’s hospital (Muthaiga)— a powerful gathering that brought together different patient groups representing a wide range of rare conditions. Each group shared about their community, their experiences, and the realities of living with these conditions. It was a meaningful space for education, awareness, and open communication, allowing us to learn from one another and strengthen our collective voice.

We deeply appreciate the leadership of the Co-Founders, Roselyn Kanja and Christine Mutena, whose dedication continues to unite and uplift the rare disease community in Kenya.

At MAGIC-Africa, we were truly honored to be part of this important conversation. Supporting individuals and families living with rare and endocrine growth-related conditions in children remains close to our mission, and this meeting allowed us to share,educate & learn so much from the incredible work being done by other groups.

In first photo are distinguished advocates of RDK the incredible Christine & Roselyn,Dr. Dominic Ongaki from the Department of Non-Communicable Diseases at the Ministry of Health Kenya ,Jemima Kodero, Founder of Turner Syndrome Africa, and Rahab a passionate member of Rare Disease Kenya.

Moments like these remind us that when communities unite, awareness grows, voices become stronger, and change becomes possible.

We remain hopeful that through continued collaboration and advocacy, rare conditions — including endocrine growth disorders affecting children — will receive the attention they deserve and be fully considered within Universal Health Coverage in Kenya.

Together, we move forward with knowledge, unity, and hope for every rare voice. 💜

28/02/2026

🌍💜 Today we stand with the 300 million people living with a rare disease. We are united with their families, friends, caregivers, advocates, and the medical professionals, researchers and organisations that working tirelessly to build a more equitable future for our community.

Together, we’re showing our colours, raising awareness, and inspiring change by talking about what equity means to us.

Thank you to everyone who’s taken part, whether you’ve lit up your home, shared your story, joined an event, or supported someone you love. By standing together we’re proving that our community is strong, united, and truly more than anyone can imagine. ✨

👉 Learn more and discover ways you can still get involved: https://go.rarediseaseday.org/NEWS

21/02/2026

🌍 FIRST AFRICAN CAH–DSD SYMPOSIUM
African CAH–DSD Research Network

📍 Nairobi, Kenya
📅 23–24 April 2026

Join leading African and international experts for a groundbreaking symposium focused on Congenital Adrenal Hyperplasia (CAH) and Differences of S*x Development (DSD).

✨ What to expect:
🔹 Expert-led lectures
🔹 Case-based discussions
🔹 Psychosocial & ethical perspectives
🔹 Clinical and surgical management updates
🔹 Community education strategies
🔹 Multidisciplinary care models
🔹 Research collaboration opportunities
🔹 Poster presentations & awards

👩🏽‍⚕️👨🏽‍⚕️ For:
Paediatricians | Surgeons | Endocrinologists | Residents | Nurses | Allied Health Professionals | Researchers | Counselors | Policy Advocates

🎯 Theme Focus:
Strengthening diagnosis, management, community awareness, and multidisciplinary care for CAH & DSD in Africa.

📝 Registration now open:
👉 FIRST AFRICAN CAH–DSD SYMPOSIUM REGISTRATION – Paediatric Endocrine Society of Kenya
🔗 https://paedendoskenya.org/product/first-african-cah-dsd-symposium-registration/

⏳ Early Bird Registration ends: 28th February

📢 Abstract submissions now open!
🎓 Poster awards available

Let’s build knowledge, strengthen systems, and transform care for CAH & DSD across Africa.
Together. Connected. Collaborative. 🌍💚

20/02/2026

Misinformation and social stigma are often as challenging as the medical conditions themselves for those living with .

The stories we tell and the myths we debunk can change lives.

Join us for an insightful webinar as we explore how these factors impact our and how we can foster a more environment.

Topic: How and affect people living with : The stories we tell

🗓️: Wednesday, 25th February 2026
🕑: 2:00 pm – 4:00 pm EAT
🔗 How to Join: Scan the QR code in the image to register! or click the link below

https://lnkd.in/dprdMaWE

Moderator: Dr. Eva Aluvaala (Senior Research Scientist, Kenya Medical Research Institute (KEMRI))
Speakers: Ms. Christine Mutena (Co-Founder, Rare Disorders Kenya) & Dr. Catherine Mutinda (Consultant Paediatrician and Geneticist)

Rare Disease Day RARE DISEASES INTERNATIONAL African Society of Human Genetics Kenya Medical Research Institute (KEMRI) KEMRI - Wellcome Trust