24/11/2025
โจ Iโm returning from the EULAR - European Alliance of Associations for Rheumatology / PARE Conference with a renewed sense of purpose and an incredible amount of inspiration.๐ก
๐ค๐ This yearโs meeting showed the real power of collaboration in the RMD community. The exchange of perspectives, the willingness to listen, and the drive to work together made every session meaningful. From patient research partners to clinicians, researchers, and health professionals; each interaction added something valuable.
๐ฆ๐ฌ Being part of the Co-Creation in Research meeting was a true highlight. What resonates with me most is how much clarity and energy this meeting has brought to the ๐ซ ๐๐๐๐๐๐๐ ๐ฉ๐ซ๐จ๐ฃ๐๐๐ญ, ๐ญ๐ก๐ ๐ข๐ฆ๐ฉ๐ฅ๐๐ฆ๐๐ง๐ญ๐๐ญ๐ข๐จ๐ง ๐๐๐ฌ๐ค ๐
๐จ๐ซ๐๐ that Muriel Elhai and I will be co-leading with Maarten de Wit, Loreto Carmona, Laure Gossec, Mrinalini Dey in the steering committee.
Hearing diverse perspectives has strengthened my belief that implementing the EULAR recommendations is not only possible, itโs urgent. And gatherings like this truly light the way forward.
๐ Iโm also excited to share that ๐จ๐ฎ๐ซ ๐ญ๐๐๐ฆ ๐๐๐ ๐ญ๐ก๐๐ฅ๐๐ข๐ซ๐ฌ๐ญ ๐ฉ๐ซ๐ข๐ณ๐ at the Dragonโs Den stage! We created a vision for what the PRP toolkit should be, a resource to guide PRPs throughout a research project. This has been an amazing journey: preparing for the workshop, the voting, working side by side with PRPs, HPRs, and researchers, shaping ideas, and developing creative ways to present our content (btw we created a nice video that makes me laugh every time I see it ๐ The Hackathon format created an atmosphere filled with forward momentum, pushed us to think differently, and was filled with genuine fun all the way! ๐๐
A huge thank you to all the organizers for their motivation and involvement to make this meeting happen: Maarten de Wit,Simon Stones, Peter Boyd, Souzi Makri, Xenofon Baraliakos, Birte Glรผsing ๐๏ฟฝ
Truly happy to have met wonderful people during this journey! ๐
Iโm heading home feeling grateful, motivated, and ready to turn ideas into action. Letโs keep building momentum and ensure that ๐ฉ๐๐ญ๐ข๐๐ง๐ญ ๐ข๐ง๐ฏ๐จ๐ฅ๐ฏ๐๐ฆ๐๐ง๐ญ ๐ข๐ง ๐ซ๐๐ฌ๐๐๐ซ๐๐ก ๐๐๐๐จ๐ฆ๐๐ฌ ๐ญ๐ก๐ ๐ฌ๐ญ๐๐ง๐๐๐ซ๐, not the exception. ๐๐
Russka Shumnalieva, MD, PhD, MPH
Paul Studenic
Mariana Carvalho
Tanita-Christina Wilhelmer
Elena Nikiphorou
Rikke Helene Moe
Ingrid de Groot
Nele Caeyers