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Cleft Lip And Palate Association of Malaysia

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Cleft Lip And Palate Association of Malaysia

CLAPAM is the only registered/recognized national organisation on clefts in Malaysia. CLAPAM also functions as a link between members and medical professionals.

Cleft Lip and Palate Association of Malaysia (CLAPAM) is a non-profit, non-government organisation and a support group consisting of volunteers from parents with children born with cleft lip and/ or palate, adults with cleft lip and/ or palate and healthcare professionals who manage such individuals CLAPAM provides various support services including counselling, information on feeding and care of cleft babies, and hospital/house visits.

20/09/2025

Bulan Kesedaran Klef ke 5 (Oktober 2025)

Bulan Kesedaran Klef untuk Malaysia akan muncul kembali bagi tahun ke 5 bulan hadapan. Ini adalah bulan khas untuk kita. Beberapa program sedang dirancang untuk warga CLAPAM agar dapat dimanfaatkan sebaiknya. Oleh kerana kesuntukan masa dan tenaga, kita mulakan program pada penghujung bulan September dan penutup dianjak ke awal bulan November. Antara program yang telah dikenalpasti termasuk:
• Pembuka Tirai - 25hb September: Hospital Angkatan Tentera Tuanku Mizan (HATTM) Cleft Study Day (untuk Pengamal Kesihatan)
• 5hb Oktober : bengkel penyusuan anjuran Persatuan Penasihat & Pakar Laktasi Malaysia @ Zecon UKM (untuk Pengamal Kesihatan)
• 9hb Oktober : Program Sambutan Bulan Kesedaran Klef @ Hospital Cyberjaya (untuk warga klef serta masyarakat umum)
• 9hb - 11hb Oktober : Hospital Umum Kuching - Sarawak Cleft Awareness (sesi pembedahan, hari kesedaran klef untuk umum dan kursus klef untuk pengamal kesihatan)
• 10hb Oktober: Hari Kesedaran Klef di Hospital Umum Sarawak, Kuching (terbuka kepada masyarakat umum)
• 16hb Oktober : Program Kesedaran Klef di Lobi Hospital Ampang (untuk pengamal kesihatan, warga klef dan orang awam)
• 20 – 24hb Oktober : 15th International Cleft Congress @ Kyoto
• 31hb Oktober : Pickle Ball fund raising untuk dana CLAPAM @ Hospital Kajang (untuk staf hospital)
• Penutup Tirai - 8hb November: Hospital Sultan Idris Serdang - mural wall painting (secara jemputan untuk warga CLAPAM & pengamal kesihatan)
• Klinik Bersepadu Klef di Lembah Klang sepanjang Bulan Kesedaran Klef (HSIS – 3hb Okt, PPUM 3 & 17hb Okt, HPKK UKM 13hb Okt, HKL 27hb Okt).
• Buku “Klef . . . 1 dalam 700” akan terus kami edarkan sepanjang Bulan Kesedaran Klef.

Maklumat lanjut akan kami kongsi mengikut kesesuaian. Warga CLAPAM khusus nya (ahli, rakan, penyokong) dan masyarakat umum dijemput bersama-sama “Menyantuni Kelainan” dan meraikan Bulan Kesedaran Klef ke-5 untuk Malaysia.

October, the Cleft Awareness Month for Malaysia will soon be with us. This is the fifth year we are celebrating this special occasion meant for us, the cleft community in Malaysia. A few programs have been arranged with the great support of our colleagues/supporters from healthcare providers. We will continue distributing the 2nd edition of “Klef . . . 1 dalam 700” during this Cleft Awareness Month.

The program being lined up are as shown above in Bahasa Melayu. Update(s) will be posted as appropriate. Members, friends and supporters of CLAPAM, are specially invited to come join programs lined up in honour of the Cleft Awareness Month for Malaysia.

Let’s be part of Malaysia’s 5th Cleft Awareness Month (Embracing Differences remain as our theme).

17/09/2025

15th International Cleft Congress

Ahli-ahli professional CLAPAM dijemput dan digalak untuk hadir ke ‘International Cleft Congress 2025’ di Kyoto pada 20 – 24 Oktober. Persidangan setiap 4 tahun dihadiri oleh 1000+ pengamal kesihatan pelbagai disiplin perawatan klef dari seluruh pelusuk dunia. Malaysia termasuk CLAPAM, diberi penghormatan dan penglibatan secara langsung. Antara lain, penglibatan CLAPAM adalah
1. Perlantikan sebagai Ahli Jawatankuasa Penasihat Antarabangsa
2. Pengerusi Bersama (Co-Chair) dua sesi panel and 1 sesi oral.
3. Penceramah untuk satu simposium
4. Ahli panel untuk dua sesi panel

Penglibatan Pengamal Kesihatan Malaysia p**a termasuk:
1. Pengerusi Bersama (Co-Chair) 1 sesi oral dan 1 sesi simposium
2. Pembentangan Poster – 5 pembentangan
3. Penceramah untuk 2 sesi oral
4. Ahli ‘Task Force’

Sila rujuk senarai ringkas penglibatan Malaysia. Delegasi Malaysia dijemput hadir di sesi yang melibatkan perwakilan negara. Kehadiran ini memberi sokongan dan menggetenggahkan keupayaan pengurusan rawatan klef di Malaysia. Maklumat lanjut boleh didapati melalui sesawang https://site.convention.co.jp/cleft2025/

Professional members of CLAPAM are invited and encouraged to attend the upcoming 15th International Cleft Congress 2025, Kyoto from 20 – 24 October. The 4 yearly congress will be attended by 1000+ delegates from all disciplines involved in comprehensive cleft care from all over the world. Malaysia is honoured to be given significant presence/contribution for this year’s Cleft Congress.

Our involvement is as summarised above (in the Malay version) and further elaborated in the attached slides. Malaysian delegates are invited to join the sessions with Malaysian participation. Our presence is a way to show support and showcase the capability of Malaysia to manage cleft treatment. Further information can be obtained from https://site.convention.co.jp/cleft2025/

15/09/2025

Hari Merdeka & Hari Malaysia - Penghormatan Antarabangsa

Selamat Menyambut Hari Merdeka dan Hari Malaysia. Bersama-sama kita memartabat dan mengharumkan nama Malaysia.

CLAPAM telah mengharumkan nama baik Malaysia di persada dunia. Khidmat bakti CLAPAM mendapat perhatian dan penghormatan antarabangsa. Antaranya ialah:
1. CLAPAM dijemput menjadi rakan kolaborasi Transforming Cleft dari Canada
2. CLAPAM dijemput menjadi persatuan kebajikan bersama Smile Asia
3. Naib Pengerusi CLAPAM, Dr Mumtaj, dilantik sebagai ahli ‘Medical Council’, Smile Asia
4. Pengerusi CLAPAM, Zainal dilantik sebagai ahli ‘Governing Council’, Smile Asia
5. Pengerusi & Setiausaha CLAPAM, Zainal dan Zuraini, dilantik sebagai jawatankuasa Penasihat Antarabangsa International Cleft Congress 2025 di Kyoto
6. Pengerusi CLAPAM telah berkongsi pengalaman melalui 3 siri ceramah untuk Latin Amerika, anjuran Circle of Cleft Professionals.

Kami amat berhati-hati dalam memilih kolaborasi dengan mana-mana organisasi, samada di dalam atau luar negara agar tidak bercanggah dengan perinsip perawatan klef di Malaysia. Ini adalah cara kami mempertahan dan memartabat penjagaan klef dan Pengamal Kesihatan di Malaysia.

Terima kasih kepada rakan-rakan antarabangsa yang menghormati pendirian CLAPAM. Semoga sumbangan CLAPAM untuk masyarakat klef antarabangsa diterima baik dan nama Malaysia dikenali.

Happy Independence & National Day. May we continue to build Malaysia.

CLAPAM’s activities and contributions have attracted international interests. Amongst them are:-
1. Invited as a Collaboration Partner of Transforming Cleft, based in Canada
2. Invited to be a Charity Organisation member of Smile Asia, based in Singapore
3. Vice Chairperson, Dr Mumtaj appointed as member of Smile Asia Medical Council
4. Chairperson, Zainal appointed as Governing Council member Smile Asia
5. Chairperson and Secretary, Zainal and Zuraini, appointed as member of International Advisory Committee for the International Cleft Congress 2025 in Kyoto
6. Delivered a 3-part talk series for Latin America (LATAM), an event by Circle of Cleft Professionals

We are careful and very selective on collaboration with either local or international organisations to ensure they match our principles on cleft management. This is our way of ensuring the good name of Malaysia and local healthcare providers are protected.

Thank you to our international friends who understand CLAPAM’s position and principles. May CLAPAM continue to be recognised internationally and make Malaysia proud.

10/09/2025

Lawatan Penuntut Universiti Newcastle, UK

CLAPAM menerima seorang penuntut sarjana muda tahun akhir pengajian Pertuturan dan Bahasa, Andrea Koo, daripada University of Newcastle, United Kingdom untuk menjalani sandaran ringkas bersama CLAPAM. Andrea Koo merupakan penuntut dari universiti luar negara yang kedua menjalani sandaran dengan CLAPAM.

Andrea diberi peluang menghadiri sesi Klinik Bersepadu Klef di UM dan UKM. Beliau juga berpeluang berkenalan dengan beberapa Terapis Pertuturan dan Bahasa yang ada di Lembah Klang. Penerangan landskap klef di Malaysia serta peranan CLAPAM adalah antara taklimat yang diberi kepada beliau. Beliau juga membantu CLAPAM ketika pelancaran Minggu Pembedahan Plastik Kebangsaan di Hospital Tunku Azizah.

Semoga Andrea Koo selamat menjalani kursus ijazah beliau sehingga tamat dengan jayanya. Semoga pengalaman beliau dengan CLAPAM memperkukuhkan lagi semangat membantu mereka yang memerlukan terapi pertuturan secara am dan khususnya kepada warga klef, apabila beliau kembali ke Malaysia selepas lulus program ijazah beliau.

We are pleased to have Andrea Koo, final year Speech Language undergraduate from University of Newcastle, United Kingdom on a short attachment with CLAPAM. Andrea is the second undergraduate student from an overseas university to do an attachment with CLAPAM.

Andrea was introduced to the Combined Cleft Clinics of UM and UKM, in addition to having sessions with a few practising Speech Therapists in Klang Valley. She also volunteered to man CLAPAM’s information booth during the launching of the National Plastic Surgery week at Hospital Tunku Azizah. She was also briefed on the cleft landscape in Malaysia and the role of CLAPAM.

We wish Andrea Koo well and all the best for her degree. May her interest in cleft and volunteerism continue to flourish, and continue to remain engage with CLAPAM on her return to Malaysia.

27/08/2025

Buku “Klef … 1 dalam 700”

Harap maklum buku penerangan klef "Klef . . . 1 dalam 700" edisi kedua telah siap dicetak. Buku ini akan kami guna sebagai rujukan dan panduan dalam sesi penerangan klef. Edisi kedua mempunyai 178 muka surat. Seperti edisi pertama (166 muka surat) ia mengandungi maklumat bersabit klef dari mula ia dikesan (mengandung) sehingga dewasa (berumah tangga, kerjaya ). Ia juga mengandungi 50 perkongsian daripada 15 pasangan ibu bapa, 5 orang anak, 8 orang warga klef dewasa serta 22 pengamal kesihatan.

Edisi Pertama diperkenalkan di International Cleft Congress 2022 di Edinburgh. Buku edisi kedua ini kami berhasrat perkenalkan di International Cleft Congress 2025 di Kyoto bulan Oktober tahun ini.

Kami ada beberapa naskah untuk ahli CLAPAM yang masih aktif keahlian mereka. Buku ini juga boleh dibeli daripada CLAPAM dengan harga RM75 senaskah. Beli sambil menderma.

We are pleased to inform that Edition 2 of “Klef . . . 1 dalam 700” has been published. This book will be used as our reference in cleft awareness talks/sessions. Edition 2 has 178 pages compared to 166 pages of Edition 1. Both editions contain 50 contributions from 15 parents/families, 5 children born with clefts, 8 adults and 22 health care providers. Information covered are from detection (during pregnancy) through adulthood life (career, starting a family).

The 1st edition was brought to the 13th International Cleft Congress 2022 in Edinburgh. This 2nd edition is planned to be brought to the 14th International Cleft Congress 2025 in Kyoto coming up in October this year.

We have a few complementary copies for CLAPAM members whose membership is still active. The book can also be purchased from CLAPAM at RM75 per copy. Purchase and donate.

20/08/2025

Risalah Klef (Edisi Ke Empat)

CLAPAM telah mengeluarkan edisi ke empat “Risalah Klef” (edisi pertama pada Januari 2021). Buku kecil ini telah ditambah baik dan mengandungi maklumat terkini (contoh; caj pembedahan dan senarai Klinik Bersepadu Klef di Lembah Klang). Risalah Klef ini diberi secara percuma dan adalah salah satu isi kandungan “Pek Senyum CLAPAM” yang diberi kepada ahli baharu CLAPAM (ibu baru bersalin atau mengandung).

Buat pertama kali, kami juga mengeluarkan risalah dalam Bahasa Inggeris bagi memenuhi permintaan dalam dan luar negara. Kedua duanya boleh dilihat melalui link di bawah.

We are pleased to share the availability of the 4th edition of Risalah Klef (first published in January 2021). Content was upgraded based on current information and needs. These included updates on charges for surgeries and contacts for CCCs within Klang Valley. The booklet is part of the items contained within “CLAPAM Senyum Stater Pack” which is issued free to new members (parents of cleft babies or pregnant with an indicated cleft baby).

For the first time, an English version is also available in response to requests from many parties (incl overseas). These booklets can be viewed via the following links.

Bahasa Inggeris
https://indd.adobe.com/view/c9ea0bea-a0ac-4fdd-8660-865666d07afa

Bahasa Melayu
https://indd.adobe.com/view/d0f8b8e1-2979-422b-9ed5-19ef6b3ab836

14/08/2025

MIDEC 2025 – Malaysia International Dental Exhibition & Conference

CLAPAM diberi ruang sepanjang berlangsungnya MIDEC 2025 (program antarabangsa tahunan) untuk berkongsi tentang lanskap klef di Malaysia serta pengurusan klef bagi meningkat kesedaran umum tentang klef. Pengunjung juga berpeluang menderma bagi menambah dana CLAPAM.

Pengunjung ke reruai CLAPAM terdiri dari professional pergigian dari seluruh negara serta orang awam. Mereka diberi penerangan tentang klef, kegiatan CLAPAM dan juga berpeluang membawa p**ang Risalah Klef (edisi keempat- Ogos 2025). Terima kasih kepada semua yang berkunjung ke reruai CLAPAM dan menyumbang ke tabung CLAPAM.

Tahniah kepada Malaysian Dental Association (MDA) kerana berjaya menganjur MIDEC 2025 dan terima kasih menjemput CLAPAM.

CLAPAM was given a space at MIDEC 2025 (an annual international event) to share the cleft landscape in Malaysia and provide information on cleft management to help create awareness amongst the public. It also provides an opportunity for visitors to contribute towards CLAPAM’s fund.

Visitors to CLAPAM booth included dental practitioners from all over the country as well as the public. They were given information on cleft; activities carried out by CLAPAM and get to bring back the latest edition of ‘Risalah Klef’ (4th edition – August 2025). Thank you to all who visited us and contributed to our fund.

Congratulations to MDA for organising a successful MIDEC 2025 and thank you for extending us an opportunity to share about orofacial cleft in Malaysia.

09/08/2025

Minggu Kesedaran Pembedahan Plastik

CLAPAM meraikan “Minggu Kesedaran Pembedahan Plastik 2025” yang dianjurkan Jabatan Bedah Plastik & Rekonstruktif HKL. Penekanan tertumpu pada kebakaran (“burns”) dan klef.

CLAPAM dijemput berinteraksi dengan pengunjung Hospital Tuanku Azizh (HTA) melalui reruai penerangan klef di atrium HTA. Para pengunjung diberi soalan dan mencari jawapan di poster klef yang disediakan. Ini lah satu cara pengunjung dapat mengetahui lebih lanjut tentang klef. Beberapa ahli CLAPAM berkunjung ke reruai CLAPAM.

Bendahari CLAPAM, Dr Muhammaf Safwan (Pakar Pertuturan Bahasa) menyampaikan ceramah tentang penilaian pertuturan sebelum dan selepas pembedahan. Ia disampaikan semasa Konferens Kebangsaan Pembedahan Plastik ke dua yang berlansung serentak dengan Minggu Kesedaran Bedah Plastik.

Syabas kepada Jabatan Bedah Plastik HKL kerana menganjurkan program ini. Terima Kasih menjemput kami.

CLAPAM celebrated the “Plastic Surgery Awareness Week” organised by the Department of Plastic & Reconstructive Surgery, HKL. Emphasis given was for burns and clefts.

CLAPAM was invited to interact with visitors at the atrium of Hospital Tuanku Azizah (HTA) through an information booth. Visitors were invited to answer questions related to cleft (answers available through the posters put up by CLAPAM). This is a fun way for members of the public to learn more about clefts.

CLAPAM's Treasurer, Dr Safwan - Speech Language Therapist, presented a talk on pre and post operative speech assessment during the 2nd Plastic Surgery Conference which took place concurrent with the Plastic Surgery Awareness Week at HTA Auditorium.

Congratulations to the Department of Plastic & Reconstructive Surgery HKL for organising the “Plastics Surgery Awareness Week” and thank you for inviting CLAPAM.

04/08/2025

Meningkat Kefahaman Pengamal Kesihatan

CLAPAM dijemput memberi taklimat berkenaan klef melalui program CME (“Continued Medical Education”) di Hospital Sultanah Aminah (HSA) Johor Bahru pada 23 Julai, 2025. CME ini atas jemputan Jabatan Pediatrik HSA.

Pembentangan bertajuk “Pengurusan Hari Pertama Kelahiran” (Managing First Day of Life) disampaikan oleh Pengerusi CLAPAM. Penekanan pertama ialah maklumat yang perlu disampaikan kepada ibu bapa supaya mereka dibekal maklumat secukupnya. Penekanan kedua ialah cara penyusuan selamat yang memberi keutamaan pada susu ibu.

Semoga program sebegini dapat meningkat kefahaman klef di kalangan pengamal kesihatan. Terima kasih kepada Jabatan Pediatrik HSA kerana menjemput kami.

CLAPAM was recently invited to present a talk at Hospital Sultanah Aminah (HSA) Johor Bahru 23 July, 2025. The talk is part of the Continued Medical Education (CME) program conducted by the Pediatric Department of HSA.

The talk, entitled “Managing First Day of Life” touches on key messages to be shared with mothers so that anxieties are reduced and the mothers feel confident taking care of the cleft new born. The second emphasis was on safe feeding of the baby with mother’s milk being given priority.

May programs such as this increase the awareness of clefts. Thank you to the Pediatric Department of HSA for hosting this CME.

27/07/2025

Menyerlahkan Anak-anak Kita

Melalui kolaborasi dengan Smile Asia, CLAPAM telah menghantar dua orang remaja, Cik Ariessa dan Cik Danushri mewakili Malaysia/CLAPAM di Asia Student Leadership Conference (ASLC) yang berlangsung di Singapura pada 11-13 Julai 2025. Ini adalah tahun kedua CLAPAM menghantar anak-anak kita untuk program antarabangsa ini.

Selain dari berinteraksi and berkenalan dengan remaja dari negara-negara lain, mereka menghadiri ceramah motivasi yang disampaikan oleh penceramah antarabangsa tentang empati dan kematangan diri. Seterusnya, perbincangan panel mengenai klef yang disertai ibu bapa yang ada anak klef dan pengamal kesihatan. Mereka juga mengambil bahagian di dalam aktiviti berpasukan di mana setiap ahli pasukan berpeluang menyumbang dan menyuara pendapat. Program sebegini menaikkan semangat jatidiri, meningkat keyakinan untuk bersuara dan berpeluang menyerlahkan bakat.

Tahniah kepada Ariessa dan Danushri kerana mewakili Malaysia/CLAPAM. Cerita mereka ketika membesar boleh didapati di buku “Klef . . . 1 dalam 700”

Terima Kasih kepada Smile Asia membuka peluang untuk CLAPAM.

Through a collaboration with Smile Asia, CLAPAM was honoured to send two teenagers, Ms Ariessa and Ms Danushri to represent Malaysia/CLAPAM at the Asia Student Leadership Conference (ASLC). This is the second year CLAPAM participated in this international program held in Singapore, 11-13 July 2025

Apart from interacting with student leaders from other nations, our two reps were also exposed to motivational talks by esteemed international speakers (e.g. approaching issues with empathy and maturity). There was also a panel discussion comprising parents and health care providers managing clefts. A highlight was a group activity which enabled everyone to participate and contribute. This is part of the exercise to let the students showcase themselves.

Congratulations to Ariessa and Danushri for representing Malaysia/CLAPAM, and learning while contributing. Additional story on Ariessa and Danushri growing up can also be found in the book KLEF . . . 1 dalam 700.

May Ariessa and Danushri continue to build their experience and be successful Malaysians.

Thank you, Smile Asia, for the opportunity.

12/07/2025

Bantuan/Sokongan Psikologi
Salah satu perkara dalam rangkaian pengurusan klef ialah psikologi. Ia adalah salah satu dari 8 tapak yang kami beri perhatian (lihat gambar bulatan rawatan klef).

Kami amat berterima kasih kepada Joy Mind Center yang menawar khidmat psikologi secara percuma untuk ahli CLAPAM yang layak. Sila rujuk gambar di lampiran untuk cara memohon dan menempah tempat. Program ini hasil perbincangan CLAPAM dan Joy Mind Center bertujuan membantu ahli atasi cabaran berbentuk psikologi. Psikologi merupakan satu aspek yang kita kurang fahami dan jarang dapatkan khidmat bantuan. Semoga program sebegini dapat bantu masyarakat klef sebaik mungkin.

One of the areas under cleft management is psychology. It represents one of the 8 landing points in our circle of cleft care (see illustration in the attachment).

We are pleased to inform that Joy Mind Center has offered free psychological service for CLAPAM members who qualify. Please refer to attached poster on how to contact Joy Mind Center. This program is the outcome of a discussion between Joy Mind Center and CLAPAM aimed at supporting members seeking psychological intervention. Psychology is an area which is not well understood resulting in not many seeking help when needed. May program such as this helps make cleft support much more comprehensive. Thank you to Joy Mind Center for supporting CLAPAM.

21/06/2025

Larian Amal Ke Tiga - Miles of Hope

Larian Amal “Miles of Hope” telah berjaya diadakan pada hari Sabtu, 21 Jun di Taman Tasek Titiwangsa. Ia adalah larian amal ketiga untuk tahun 2025 yang dianjur oleh siswa-siswi dari beberapa universiti tempatan sebagai usaha murni menyumbang kepada dana CLAPAM.

Program ini adalah anjuran penuntut-penuntut tajaan Hong Leong Foundation dari pusat pengajian tinggi di seluruh Malaysia. Mereka dibantu oleh penuntut-penuntut Fakulti Pergigian UKM dan Segi University untuk melaksanakan program julung kali ini. Program kolaborasi antara universiti-universiti dan dari pelbagai bidang pengajian adalah sesuatu yang kami galakkan bagi memupuk semangat kerjasama dan kesefahaman bagi mencapai tujuan dan matlamat yang dirancang.

Terima Kasih kepada semua yang mangambil bahagian. Tahniah kepada penuntut tajaan Hong Long Foundation, UKM DENSTA dan Segi Dental Society kerana berjaya mengadakan larian ini. Terima kasih di atas sumbangan yang diberi. Semoga program bermakna ini dapat diteruskan.

Cleft Charity Run “Miles of Hope” was successfully held on Saturday, 21st June 2025 at Taman Tasik Titiwangsa. This event is the 3rd charity run for 2025, organised by students from various local universities, aimed at raising funds for CLAPAM.

Miles of Hope was organised by scholars of Hong Leong Foundation from various universities all over Malaysia. They collaborated with students from Faculty of Dentistry UKM (UKM Densta) and dental students from Segi University (Segi Dental Society). We are supportive of such collaboration as it develops sense of common purpose and camaraderie amongst involved parties.

Thank you to all who participated in the charity run. Congratulations to the scholars of Hong Leong Foundation who led this initiative and UKM and Segi University for supporting the program. Thank you also for the fund raised. May programs such as this continue.

Address

Kuala Lumpur

Opening Hours

Monday	10:00 - 15:00
Tuesday	10:00 - 15:00
Wednesday	10:00 - 15:00
Thursday	10:00 - 15:00
Friday	10:00 - 15:00

Telephone

+60122283677

Website

https://clapam.org.my/

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