EAU Patient Office

09/04/2026

Got an odd pair this spring? 🧦 Get them checked!

This April, for testicular cancer awareness month, we encourage people to give themselves a self-check to make sure everything is normal.

⏲️ When to check?
The best time to examine your testicles is during or right after a warm shower or bath, as the warmth relaxes the sc***um which makes it easier to feel anything unusual.

🤏 How to check?
Look for swelling, lumps, or changes in the scrotal skin. Examine each testicle individually using both hands. Put your thumbs on top and fingers underneath, gently rolling the testicle between your fingers. Feel for any unusual lumps or bumps, changes in size, shape or consistency.

🧐 What to look out for:
A hard lump on the testicle, swelling or enlargement of the testicle, changes in the shape or consistency, dull ache or heaviness in the sc***um

🩺 When to see a doctor?
If you notice any of the above changes, contact your doctor promptly.

25/03/2026

💡 Introducing SHINE-URO: a new framework for shared decision-making in urology 🤝

Developed through a European consensus, SHINE-URO helps bring patients and healthcare professionals together to make better, more informed decisions, combining clinical expertise with individual values and preferences.

🔑 Built on 6 core principles, it supports more open, informed, and patient-centred care.

🌍 A step forward for urology and truly collaborative healthcare!

Read the latest article from us on the SHINE-URO Framework, featuring more on the exciting EU BCLEAR project below ⬇️

https://lnkd.in/e5gG4yE4

With thanks to the contributors Michael van Balken Jacqueline Daly Sara MacLennan Rodolfo Montironi, MD, IFCAP Hein Van Poppel Markos Karavitakis MD, MSc, DIC, PhD, FEBU Corinne Tillier Mary Lynne Van Poelgeest-Pomfret Erik Briers Jane Meijlink Alex Filicevas Claudia Ungarelli Rob Cornes Antonella Cardone Evangelos Liatsikos Robert Greene Eamonn Rogers James Caldwell

This link will take you to a page that’s not on LinkedIn

23/03/2026

📍 At , the EAU Patient Office was proud to support the EU BCLEAR project during the “Health Literacy in Bladder Cancer” session at the Patient Advocacy Plaza!

🎤 With insights from Alex Filicevas (World Bladder Cancer Patient Coalition) and Renée Leenen, MD (Erasmus MC Academie), BCLEAR is driving better bladder cancer awareness, patient education, and shared decision-making across Europe.

As the first EU-funded project dedicated to bladder cancer health literacy, BCLEAR brings together patients, clinicians, and researchers to empower informed decisions and improve care.

🔎 Learn more about BCLEAR: https://lnkd.in/gr5c-WcX

23/03/2026

Some of our Patient Advocacy All Stars at ⭐

Congratulations are in order to....

💫 Pani Nasseri, who was awarded first prize in our Patient Poster Abstract session, with ✨ Renée Leenen awarded second place, and ⭐ Alex Filicevas awarded third place. We congratulate and thank our incredible award winners for their dedication and research within Patient Advocacy.

✨ Rob Cornes who was awarded the Patient Advocacy Medal of Excellence. Rob has dedicated his career to raising awareness of male cancer through support, education and the provision of written information. We thank and congratulate him on his achievement!

Well deserved! 👏

20/01/2026

🚨 Prostate cancer is now the most common cancer in the UK 🚨

What does this mean for our UK followers and its impact across Europe?

👉 Prostate cancer often shows no early symptoms
👉 Understanding risk and acting early can make a real difference for patients and families

In short, early detection can save lives 🙌

13/01/2026

Drumroll please! 🥁 🥁 🥁

We couldn't be more excited to announce that we have selected our six abstracts for the Patient Abstract Submission! Well done to our incredible candidates below 👇

⭐ 'Impact of behavioural factors on care seeking for urinary symptoms linked to bladder cancer', by Alex Filicevas

⭐ 'Education materials on bladder cancer: A scoping review and recommendations for future initiatives', by Renée Leenen

⭐ 'What prostate cancer patients find important when making treatment decisions', by Pani Nasseri

⭐ 'Bladder health and lived experience in multiple sclerosis outcome measurement', by Lydia E Makaroff, PhD

⭐ 'Supporting men on androgen deprivation therapy (ADT) for prostate cancer: a patient centred innovation', by Louisa Fleure

⭐ 'Key determinants influencing treatment decision-making for and adherence to active surveillance for prostate cancer: A qualitative study', by Pani Nasseri

Congratulations to our finalists and thank you to all who submitted!
See you at on Friday the 13th of March at where we will be announcing the winner 👀

02/01/2026

🎉 Happy New Year! 🎉

We're kicking off 2026 with a review of our latest EPAG (European Patient Advocacy Group) meeting in Lisbon! 🤝 The EPAG group of the EAU Patient Office work to ensure that patients’ voices are represented in healthcare decisions and in policy.

📆 With a full day of discussions, our last EPAG meeting of 2025 tackled issues ranging from prostate cancer awareness in Sierra Leone, to the rising economic impact of urinary incontinence in Europe.

👇 Read the full article below to see the full details, and what the Patient Office has in store for 2026.

As always, many thanks to our wonderful EPAG members for attending and contributing such value thoughts and dialogue that proudly amplify the patient voice 📢

EPAG’s Lisbon meeting set a bold 2025 agenda for patient advocacy, global health, cancer awareness, incontinence policy, and stronger patient voices in urological care.

24/10/2025

Clear communication saves lives. Let’s make health information easy to access, understand, and use. 💙

24/07/2025

S*X!

Now that we've caught your attention, don't miss checking out the recently recorded webinar 'The patient and partner perspectives on the impact of female cystectomy, pe**le cancer and prostate cancer on s*xual function'.

In this webinar, we learned about that for 🧔‍♂️ prostate & pe**le cancer...
👉 Up to 85% of prostate cancer patients suffer ED post-surgery
👉 Pe**le cancer may lead to the total or partial removal of the p***s 🍆

And for female patients who have undergone a cystectomy...
👉 70%+ experience loss of vaginal sensation
👉Many can no longer have intercourse—even with therapy

🗣️ Patients say:
“I wish someone had told me s*x might never feel the same again.”

Radical urological surgeries don’t just save lives—they change them forever.

With thanks to our speakers:
Jacqueline Daly
Rob Cornes
Paul Campbell
Susan Richardson
Jon Osborne

https://lnkd.in/eZEprhG4

09/07/2025

Support your patients and their partners facing s*xual and relationship challenges after female cystectomy, pe**le cancer, and . Join our latest below!

📅 Tuesday, 15th July
⏲️ 18.30 - 19.30 CEST

www.linkedin.com/events/urowe...

07/07/2025

🧬 Closing the gap in prostate cancer care 🧬

Black men face significantly higher risks of diagnosis and death from prostate cancer — and that needs to change.

At the EAU Patient Office, we're proud to lead the Diversity in Prostate Cancer (PCa) PROMS Study, collecting direct feedback from Black men to improve treatment and ensure equitable care. 🗣️💙

🌍 This is more than research — it's about listening, learning, and making care more inclusive.

👉 Read our most recent article outlining the aims, objectives and scope of the project here: 🔗 https://lnkd.in/ec6SkG8E

📲 Soon you'll be able to visit our new webpage dedicated to the project on our redesigned website, and see how we're working to make a difference.

hashtag

This link will take you to a page that’s not on LinkedIn

26/06/2025

🙏 Feeling very inspired by the incredible turnout at the March for Men event in Milton Keynes on June 21, 2025.

This community-led programme brought together survivors, healthcare professionals, and families to raise awareness, and give over 200 free PSA screenings and lastly, 𝙥𝙪𝙨𝙝 𝙛𝙤𝙧 𝙪𝙧𝙜𝙚𝙣𝙩 𝙘𝙝𝙖𝙣𝙜𝙚 𝙞𝙣 𝙥𝙧𝙤𝙨𝙩𝙖𝙩𝙚 𝙘𝙖𝙣𝙘𝙚𝙧 𝙨𝙘𝙧𝙚𝙚𝙣𝙞𝙣𝙜 𝙥𝙤𝙡𝙞𝙘𝙮—𝙚𝙨𝙥𝙚𝙘𝙞𝙖𝙡𝙡𝙮 𝙛𝙤𝙧 𝘽𝙡𝙖𝙘𝙠 𝙢𝙚𝙣, 𝙬𝙝𝙤 𝙛𝙖𝙘𝙚 𝙙𝙞𝙨𝙥𝙧𝙤𝙥𝙤𝙧𝙩𝙞𝙤𝙣𝙖𝙩𝙚 𝙧𝙞𝙨𝙠𝙨.

💙 Powerful stories from survivors, expert insights, and meaningful conversations helped dissolve stigma, and empower men to take action.

🤝 Together, we made a real impact — shining a light on the urgent need for a 𝙣𝙖𝙩𝙞𝙤𝙣𝙖𝙡 𝙨𝙘𝙧𝙚𝙚𝙣𝙞𝙣𝙜 𝙥𝙧𝙤𝙜𝙧𝙖𝙢𝙢𝙚 and 𝙨𝙩𝙧𝙤𝙣𝙜𝙚𝙧 𝙨𝙪𝙥𝙥𝙤𝙧𝙩 𝙛𝙤𝙧 𝙝𝙞𝙜𝙝-𝙧𝙞𝙨𝙠 𝙘𝙤𝙢𝙢𝙪𝙣𝙞𝙩𝙞𝙚𝙨.