PANS/PANDAS Nederland Patiëntenvereniging

PANS/PANDAS Nederland Patiëntenvereniging We are a patient advocacy organization dedicated to promoting and improving the timely diagnosis, tr

European advocates created EXPAND, The European Immuno-neuropsychiatric Association out of their unique recognition of t...
20/10/2024

European advocates created EXPAND, The European Immuno-neuropsychiatric Association out of their unique recognition of the need to create an international standard of care in the diagnosis and treatment of PANS and PANDAS. With this in mind, as in 2022, members of the EXPAND Scientific and Medical Advisory Board and invited guests will attend and participate as speakers in The Alex Manfull Fund 2024 Symposium for the purpose of advancing the understanding and treatment of neuroimmune psychiatric disorders such as PANS and PANDAS globally. In addition, EXPAND's board members and guests are dedicating days prior to the symposium to discuss issues particular to Europe, and then join The Alex Manfull Fund Scientific and Medical Advisory Board for a working breakfast the day after the symposium to further collaboration across the Atlantic, with additional opportunities for networking and collaboration to follow. The members of the EXPAND Scientific and Medical Advisory Board and their invited guests give their time generously as volunteers in addition to all other work responsibilities. Our patient community is fortunate to have their dedication and commitment.

The theme of The Alex Manfull Fund PANDAS/PANS Symposium (November 2 in Portsmouth, NH) is “Dialogue Saves Lives.”

In addition to traditional presentations, we will have panel discussions and “Lightning Round” talks. One of our panels is featured here — audience members will be able to ask this clinical panel questions about PANDAS/PANS.

To see all the speakers and the full program please visit: https://thealexmanfullfund.org/tamf-2024-symposium-schedule/ . (Note: We are very sorry to report that, due to unforeseen circumstances, Dr Kiki Chang regrets he will not be able to attend .)







"RARELY helped well: The need for a national strategy and a European action plan for rare diseases." A link to the Dutch...
05/06/2024

"RARELY helped well: The need for a national strategy and a European action plan for rare diseases."

A link to the Dutch manifest can be found in this article. The English translation is in the comments.

Manifest

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Victorialaan 13
Wassenaar
2242CM

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