15/02/2026
Young onset..
Dementia hits younger people as well as older people ! At Home4All many of our visitors are under 65 years of age.
Please read the post below Youngonsetdementiacollective
This week, representatives from the Young Onset Dementia Collective sat down with a group of frontline Te Whatu Ora clinicians and specialists. They reached out to us because they are seeing a significant rise in referrals of people under 65 with young onset dementia—and they know the system isn’t coping.
Around the table were psychiatrists, occupational therapists, social workers, physicians, and other specialists working in dementia care. It was an honest, open conversation, and one thing became very clear: the people needing support and the people trying to provide it are both struggling inside a system that isn't designed for young onset dementia.
Far too often families tell us how hard it is to navigate the health system—how confusing, fragmented, and unresponsive it can feel. This week, we heard the same frustration from the clinicians on the inside. They see the gaps. They know the pathways don’t exist. They feel the same helplessness when there’s nowhere appropriate to refer people, no services that fit, and no clear support for younger families.
It’s easy to blame the frontline staff when the system fails—but they are not the problem. They are working within a structure that is not fit for purpose. They don’t have the tools, the services, or the pathways needed to support the growing number of people living with young onset dementia.
This is not a clinician problem.
This is not a family problem.
This is a government problem—and it needs a government-level solution.
Right now, people with young onset dementia and their whānau are being lost, ignored, and let down by a system that is not fit for purpose. And the numbers of people living with young onset dementia is growing. We can’t keep pretending the current system is good enough. It isn’t. The people affected don’t have time to wait.
This is an election year.
If young onset dementia matters to you, your whānau, or your community, ask the hard questions. Look for the parties and candidates who have clear, specific policies for young onset dementia—not just token mentions and general promises about ageing or disability.
Your vote is your voice.
Use it to demand a system that sees, supports, and respects people living with young onset dementia.