25/11/2025
Friends, we’ve noticed so many new faces here lately!! And with Thanksgiving right around the corner, it felt like the perfect time to pause and re-introduce our “why” behind The Little Norwegian Candle Co.
This is Rian. Our 7-year-old daughter, our light and the very heart of our home.
Rian has lived her entire life battling CDKL5 deficiency disorder. In just seven years, she has faced countless types of seizures, cognitive and global developmental delays, cortical visual impairment, feeding challenges that led to a G-tube placement at one year old, and complete reliance on it for nutrition and medication. She is non-verbal, unable to walk, and continues to face obstacles most of us can hardly imagine.
She’s has ventricular tachycardia and has a heart monitor placed right near her heart by Boston Children’s. She has developed dystonia, and for the past two years has needed daily oxygen. She survived a terrifying respiratory crisis that left her intubated and in an induced coma for over ten days and an extensive 6 week PICU stay ( as well as many other PICU stays) She has tried more medications than we can count on our hands — many bringing painful side effects, including brain inflammation.
She has progressed, regressed, plateaued… and she has survived moments that no parent should ever have to witness.
And yet — she is the light of our lives.
Despite everything, she radiates a strength, softness, and resilience that teaches us what truly matters. She is our reason. Our “why.” Our guiding star.
Every candle we pour, every one that finds a home, carries a piece of her light and love with it. When you support our small business, you are supporting Rian’s story — allowing us to share her journey and spread her warmth into homes near and far.
Thank you, from the bottom of our hearts, for being here. For listening. For letting us bring Rian’s light into your lives. 🌟💛
