05/02/2026
Tube Facts!
Did you know Rian has had almost every single one of those tubes shown in the first picture ?!
Crazy right?! And she’s only 7 years old 😵💫
She is now back on a Mickey button ( shown in the second pic) which is placed basically in a hole in her tummy ( stoma) then filled with sterile water to a specific measurement to keep the button in place . Her tube needs to be changed out every 4 months which we do at home .
When she had a GJ tube we had to go to the hospital to have it changed out through interventional radiology because of where the placement of the tube is which is placed in the small intestine …
The third pic is a picture of her extension that gets attached to her Mickey button where all of her meds / nutrition and hydration go through .
Check out our story for a quick little video of this ! 🙃