MG Snowflakes Warriors - Philippines

20/11/2025

🌿 Common Triggers for Myasthenia Gravis Symptoms 🌿

Living with MG means learning what makes your body feel stronger — and what can bring on more weakness. Here are some of the most common triggers to watch for:

🧠 Stress
Illness, infections, fevers, emotional stress, surgery, or pushing your body too hard can all cause symptoms to flare.

😴 Fatigue
Lack of sleep, overexertion, and not giving yourself enough rest breaks can quickly drain your muscles.

🌡️ Temperature Extremes
Hot weather, hot showers, saunas, or even very cold temps can make weakness worse.

💊 Medications
Some meds can trigger symptoms — like certain antibiotics, beta-blockers, and anything high in magnesium. Always double-check new prescriptions with your doctor or pharmacist.

🍽️ Eating & Hydration
Tough or chewy foods can fatigue your jaw and throat. Skipping meals or getting dehydrated can make symptoms harder to manage.

🩸 Hormonal Changes
Menstrual cycles, pregnancy, and postpartum shifts can all affect symptoms.

☀️ Other Triggers
Alcohol, smoking, high altitudes, or getting overheated from exercise or the sun.

✨ Tip: Keeping a symptom diary can help you spot your personal triggers so you can better manage flares.

🌿 Common Triggers for Myasthenia Gravis Symptoms 🌿

Living with MG means learning what makes your body feel stronger — and what can bring on more weakness. Here are some of the most common triggers to watch for:

🧠 Stress
Illness, infections, fevers, emotional stress, surgery, or pushing your body too hard can all cause symptoms to flare.

😴 Fatigue
Lack of sleep, overexertion, and not giving yourself enough rest breaks can quickly drain your muscles.

🌡️ Temperature Extremes
Hot weather, hot showers, saunas, or even very cold temps can make weakness worse.

💊 Medications
Some meds can trigger symptoms — like certain antibiotics, beta-blockers, and anything high in magnesium. Always double-check new prescriptions with your doctor or pharmacist.

🍽️ Eating & Hydration
Tough or chewy foods can fatigue your jaw and throat. Skipping meals or getting dehydrated can make symptoms harder to manage.

🩸 Hormonal Changes
Menstrual cycles, pregnancy, and postpartum shifts can all affect symptoms.

☀️ Other Triggers
Alcohol, smoking, high altitudes, or getting overheated from exercise or the sun.

✨ Tip: Keeping a symptom diary can help you spot your personal triggers so you can better manage flares.

13/11/2025

The autoimmune disorder that is difficult to diagnose—Myasthenia Gravis

Despite its serious impact, myasthenia gravis remains under-recognised and is difficult to diagnose.

https://www.independent.co.uk/life-style/health-and-families/myasthenia-gravis-symptoms-treatment-monica-seles-b2862207.html?fbclid=IwdGRjcAOCUkpleHRuA2FlbQIxMQBzcnRjBmFwcF9pZAo2NjI4NTY4Mzc5AAEezXZQUgmJErvdiizo_cFPCX5xlVsB4dx4rS1GC6rVi8XYOIZRipALdgAFjFY_aem_dX6eotfTwHdqzESNV7RNPg

Grand Slam champion Monica Seles recently revealed she is living with myasthenia gravis

30/10/2025

Now, this discovery opens doors to future treatments that could retrain the immune system to calm itself — not by suppressing it, but by restoring its balance. 🧬💪
The next breakthrough in Myasthenia Gravis might not come from outside medicine… but from the immune wisdom within us. ❄️

https://www.facebook.com/share/p/1DM27Eja2j/?mibextid=wwXIfr

In a remarkable breakthrough, scientists Mary Brunkow, Fred Ramsdell, and Shimon Sakaguchi have won the 2025 Nobel Prize in Medicine for discovering how our immune system maintains balance — knowing when to fight infections and when to stop.

Their work revealed a special group of cells called regulatory T cells (T-regs) — the body’s “peacekeepers.” These cells stop our immune system from mistakenly attacking healthy tissues.

The team also discovered the FOXP3 gene, which controls how these T-regs function. When this gene fails, the immune system turns against the body, causing autoimmune diseases such as lupus, rheumatoid arthritis, and Type 1 diabetes.

This discovery opens the door to new treatments that can train the immune system to calm itself, offering new hope for millions who live with chronic immune disorders.

It’s incredible to realize — the key to healing so many diseases was hidden inside us all along. 💉🌿

29/10/2025

⚙️ What is the Neuromuscular Junction (NMJ)?

Think of it like a tiny “connection point” where your nerve and muscle meet — kind of like a plug and an outlet.
• The nerve carries the “move” message from your brain.
• The muscle is waiting to receive that message so it can contract (move).
• The neuromuscular junction is the space where the nerve sends that message to the muscle using a special chemical called acetylcholine (ACh).

Here’s what normally happens:
1. The nerve releases acetylcholine into the junction.
2. Acetylcholine binds to receptors on the muscle side.
3. The muscle receives the signal and contracts (moves).

⸻

⚡ What happens in Myasthenia Gravis (MG)?

In MG, the body’s immune system mistakenly makes antibodies that attack those acetylcholine receptors.

So:
• There are fewer working receptors on the muscle.
• The acetylcholine signal from the nerve can’t attach properly.
• The “move” message becomes weak or incomplete.
• The muscle gets tired easily and becomes weak, especially after repeated activity.

⸻

💡 In simple terms:

Your brain is shouting “MOVE!”
Your nerves are doing their job and sending the message.
But at the neuromuscular junction — the “mailbox” where the message should be delivered — the mailbox is damaged.
So, the muscle only gets part of the message… or sometimes none at all.

That’s why people with MG often feel fine at first but get weaker the more they use their muscles.

13/09/2025

If only people could see the truth of what goes on inside, they would understand so much more! But that is true of many things in life. We often judge what we fail to recognize with discernment.

12/09/2025

Magandang araw po!

Kayo po ay aming inaanyayahan na dumalo sa aming Lay Forum para sa mga pasyente na mayroong Myasthenia Gravis. Ito ay parte ng Lay Fora Series na handog ng Philippine Society of Clinical Neurophysiology at University of the Philippines - Philippine General Hospital Departement of Neurosciences

Ang ating panauhin ay ating patient partners mula sa Persons with Myasthenia Gravis Society Philippines

Ito ay gaganapin sa Sabado, Setyembere 20, 2025 9:00AM sa pamamagitan ng Zoom

Zoom: https://up-edu.zoom.us/j/93460563197?pwd=8zKMp2XfBypm6SNjWqKYljaIiu527f.1
Meeting ID: 934 6056 3197
Passcode: neurology

Maraming salamat po!

11/08/2025

❄️ Alam mo ba?

Sa Myasthenia Gravis (MG), stress ang madalas na nagpapalala ng symptoms like difficulty breathing and/or weakness. Pero may simple steps para ma-manage ‘to:

• Get enough sleep and stick to a regular sleep schedule.

• Plan your most demanding tasks when you feel your strongest.

• Build in rest breaks—and give yourself permission to pause. Listen to your body.

• Modify your home environment—Fix your space at home so that things are easier to reach when you're feeling weak:
✅ Ask someone at home to move your everyday essentials — like your charger, skincare, meds, or remote — to spots that are super easy to grab. No need to stand up, reach, or walk far (when MG is acting up).
✅ Also, transfer your meds to easy-open containers — just in case gripping or twisting bottle caps gets hard.

• Don’t go through this alone. Lean on family, friends, support groups (like Myasthenia Gravis community/groups)—even online groups with people you’ve never met in real life can really help. They get it — kasi they’re going through the same thing, so the support feels more real and relatable.

Through small shifts in daily habits and a strong support system, puwede mong gawing manageable ang buhay mo with MG. We’ve got this, Snowflakes Warriors!❄️💪

(Based on insights from the article “Managing stress with myasthenia gravis” – updated June 4, 2025.)