09/01/2026
Help to Save Little Warrior –
Hello, and thank you for visiting our page.
This page is dedicated to our beloved son,, who is bravely fighting a rare and life-threatening genetic disorder called Niemann-Pick Disease Type A.
🧬 Medical Background
Niemann-Pick Type A is a very rare inherited genetic disease. It occurs when both parents unknowingly carry a faulty gene. Sadly, this disease is not caused by lifestyle, food, or infection—it is something that comes by the will of God and genetics.
Our family has a history of genetic illness, which we only discovered after our child became sick.
🏥 What Our Son Is Facing
Due to this disease, our son suffers from:
Severe weakness and delayed development
Recurrent chest infections and breathing problems
Enlarged liver and spleen
Feeding difficulties and poor weight gain
A very low immune system
💔 Winter is especially dangerous for him. Even a simple cold can become life-threatening, and doctors often advise hospital admission, but unfortunately, we struggle with the cost.
👨👩👦 Parents’ Fight
We are parents just like you—doing everything humanly possible to save our child.
We have consulted doctors, genetic specialists, and hospitals. We are ready to provide:
Medical reports
Doctor prescriptions
Test results
Hospital documents
This page exists for awareness, honesty, and hope.
🤍 Why We Need Support
Treatment, frequent hospitalizations, medicines, and tests are very expensive, and we cannot manage this alone. Many parents of rare disease children survive only because of the kindness of others.
