Prayers For Blake. 《333

Blake Riggs who was born with Pierre Robin Syndrome. Born at 36 weeks went 2 days with 3 ounces of water , Blake had sleep apnea which caused him to have difficulties eating which later caused him to have to dis-tractors to help move his jaw forward. When he was four months old he was diagnosed with mastoiditis and meningitis. Blake started having chronic ear infections which lead to four sets of tubes, his tonsils and adenoids being removed all which happened before he was a year old. He also had episodes of turning blue which lead him to be placed on oxygen while he was sleeping. In September, he was taken to Akron's Children's Hospital because he was bleeding out of his left ear. He was sent home and was later referred to see an ENT doctor. Blake was placed on antibiotics and ear drops for several weeks which weren't helping, he had a CT SCAN and was rushed to emergency surgery. ENT doctors took cultures due to not knowing what was wrong with Blake. The cultures showed he had MRSA and mastoiditis which led to multiple surgeries and cleaning out of his ears. Blake's brain started having fluid leaking out of his ears. A lumbar drain had to be placed in his back to decrease the amount of fluid from leaking out of his ears. ENT doctors said his carotid artery went up to his right ear caused by the infection.and the doctor not knowing what it was he cut it. At this time, Blake was transferred to Rainbows and Babies in Cleveland. When he arrived he had emergency surgery again to fix lumbar drain. Blake had multiple MRI's and MRV's and MRA's which are all different forms of x-rays. Blake had went through a picc line due to a yeast fungi (blood infection) then had to have a central line because they weren't able to get a picc line in. After this the central line wouldn't pull back so they had to install a proviac in his chest. The x-rays showed both right and left arteries being closed off and showed Blake had multiple strokes. The lumbar drain was not working so doctors had to place a PV shunt in his head which helped stop the leaking. The leaking later started back up which lead to all the bones in his ears being removed and sealing his inner ear with his outer ear with muscle. The doctors were not able to locate where the leak was stemming from. At this time it had been nine weeks since Blake had eaten so he was put on a NG feeding tube which did not work so he was placed on ND feeding tube which did not work then later went to a NJ feeding tube which GJ stopped to work so they placed a GJ feeding tube in which worked for a while so he was transferred back Children's Hospital. But, later the GJ stopped working and Blake started throwing up again due to the nurse cutting his broviac and a stitch on his GJ. This is when he was transferred back to Rainbows and Babies. At this time Blake went into emergency surgery to have his brovic repaired but the brovic slipped into his chest and the doctors had to go into a central line to remove it. They decided to do a Nissen to stop Blake from throwing up because throwing up could cause further strokes or dislodging of the arteries. When they did the Nissen they switched his tube to a G tube this helped and Blake was released until December 9th, 2013 and was readmitted again and stay in the hospital until he was released on January 14th, 2014. Blake is still on a feeding tube and fighting this long battle to get well. He has been sent home with continuing to throw up. Doctors at Akron children's said go home at mess with it. Well Blake had been take. To the hematology that said no one had consulted them and they feels it's not ok for Blake to throw up! They decided to have us watch it closely. Blake recently got a knot behind his ear right that is filled with fluid. Which is a very big concern. So after the family doctor and ENT sent him home with medicine . Dr samaan from rainbow babies called and wanted a picture of what the knot behind the ear looked like he decided he wanted him back up at rainbow babies tonight so we are on are way to rainbow babies. as we are trying to find out what's going on . There not sure what's going on :( But threw all this my baby is still smiling .it took the nurse and picu 8!trys to get an Iv which was so heart breaking. Later to find out after the ct scan that Blake went in surgery feb 22 2014 to drain his ear that was filled with pus and the they placed drain in the back of his ear. To let the fluid drain out .teusday morning they took the drain out . And was then sent home Wensday with lots of appts with Nero for his shunt to make sure it's working properly as well as seeing if it needs turned up . Also to see PED surgery we no his Nissen came loose ENT said Blake prolly don't want to swallow because it's bothering him. So we are praying the Nissen and shunt don't need fixed working praying they don't have to redo it . We have decided to stick with the doctors up in clevland due to akron children's doctors not communicating together to work as a team to help Blake and loos at his best interest . This is an hour and half drive . Lots of gas an expensive ! Please keep praying for Blake for healing in his body . HELP SUPPORT TEAM BLAKE !! We are so thankful for the Lords healing upon Blake's body. Blake has a long road ahead but we faith with the prayers and support of Team Blake fans he will be well in no time. God is faithful in his healing!