Cure SCG

12/25/2025

This holiday season, give a gift that lasts beyond Christmas and into the New Year 🤍

Your support helps drive research and brings us closer to real hope for those living with LGMD.

Thank you for being part of our journey, here’s to a year filled with progress, strength, and possibility. 🎄✨

12/18/2025

Sara draws with a strength you can feel, every line a reminder that creativity moves where muscles sometimes cannot.

Let us tell you why this matters right now.

Because CureSCG is actively raising funds and donations to advance gene therapy research for LGMD 2C and 2D. From community fundraising to direct donations, and through art like Sara’s. These efforts help move research forward toward real treatments and, ultimately, a cure.

Every purchase, every donation, and every shared effort helps power this work. It means research can continue, trials can progress, and families can hold on to real hope for the future.

🖼️ Learn more or donate: www.CureSCG.org
🎨 Shop Sara’s art: https://curescg.org/shop

11/27/2025

With gratitude to the LGMD community today and always. 🧡🍁

11/03/2025

Use your Donor-Advised Fund to support kids affected by LGMD 💚

Give at: https://www.curescg.org/donate

10/28/2025

10/25/2025

Sara, who lives with a rare condition called Limb-Girdle Muscular Dystrophy (LGMD), is a big fan of 💫

When Sara saw you sing, she loved you. 💖
But when she heard your story, she said, “She’s like me.”
That moment gave her strength, to believe in herself, to advocate for others with LGMD, and to use her art to raise awareness and hope for a cure. 🎨💚

Thank you, Emma, for giving Sara and so many others the courage to dream big and to keep fighting. You are truly an inspiration. 🌍🙏
We look forward to welcoming you again soon in Abu Dhabi. 🇦🇪✨

10/24/2025

10/15/2025

💚 At just 10, she paints to fund research for a cure for Limb-Girdle Muscular Dystrophy. Every brushstroke brings us closer to hope.

🖼️ Learn more or donate at www.CureSCG.org

🎨Shop at https://curescg.org/shop

10/08/2025

Hope is stronger when shared 💚
Together, we can turn urgency into treatment and bring a cure closer for Sara and kids like her.
Support research today: www.CureSCG.org

09/30/2025

September 30 is Limb-Girdle Muscular Dystrophy (LGMD) Awareness Day, a day to raise our voices, share stories, and stand together for research, care, and hope for the LGMD community.

09/22/2025

Dear Muscular Dystrophy Community,

We are delighted to announce a new partnership between the Center for Inherited Myology Research (VCU) and Burjeel Medical City, Abu Dhabi, bringing global muscular dystrophy expertise to the MENA region.

From October 20–24, 2025, Dr. Nicholas Johnson, MD, MSCI, FAAN, a leading neurologist in muscular dystrophies, will be available for consultations at Burjeel Medical City.

Dr. Johnson not only leads international research networks that set global standards of care, but he is also advancing gene therapy for two forms of Limb-Girdle Muscular Dystrophy (LGMD), types 2C and 2D. This makes his visit a unique opportunity for patients and families seeking both expert care and insights into the future of treatment.

Who may benefit from a consultation?

Patients with a confirmed diagnosis of muscular dystrophy seeking an expert review or updated care plan

Individuals with unexplained muscle weakness or a family history of neuromuscular disease

Families interested in genetic counseling or future planning for inherited muscle diseases

Location: Burjeel Medical City, Abu Dhabi
Dates: October 20–24, 2025 (limited availability)
Consultation Fee: AED 1,500 (approximately USD $408)

For booking, please contact:
Mr. Sherif Radwan
Mobile: +971 50 974 5903
Email: sherif.radwan@burjeelmedicalcity.com

09/09/2025