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Super Colt's Fight Against Epilepsy, 2829 South Ankeny Blvd., Ankeny, IA (2026)

After failing all treatment options, we made the difficult decision to focus on quality of life, giving him the best life possible.

03/04/2026

Update… Eating and banana and intensely watching his show. C had a few seizures overnight, but he is doing much better today. Hopefully this is a short admission. 🤞

03/03/2026

This sweet bubba was having too many seizures to safely stay home, so he was admitted back into the hospital this morning. He’s received his first line of rescue meds, and is currently resting in his room on the peds floor.

02/23/2026

C**t had a relaxing day… he visited Nana for a couple of hours this afternoon (see pic below)…this was soooo nice. Outside of his older siblings, we dont have any babysitters, so C**t rarely leaves the house for an extended period of time with us. I was actually able to catch up on some things without having to constantly supervise him.
When he got home from Nana’s house, C rested on my bed, worked on a couple different reading apps on the iPad, and played with his Legos.
By tonight he was really having a lot of anxiety about going back to school… I’ve lost track, but I think it’s probably been at least a month since C**t was in a good routine with going to school each day. Between being sick, seizures and his port surgery, he’s missed a lot of school. Tyler and I tried talking him through his nerves, we’ll see tomorrow morning if it worked or not. Hopefully he feels well enough to go, and doesn’t get too worked up about it. 🤞🤞🤞

02/22/2026

C**t wakes up, gives me a big hug, looks up at me with his big blue eyes and a huge smile on his face…
C**t- “Good morning, Mama!”
Me- “Aww good morning, buddy! You’re the sweetest!”
C**t- “I like Dad better.”
Me- 🤨 🤨 🤨
Well…that endearing moment took a sharp turn, and plummeted into the ground. 😆

02/18/2026

C**t is doing so good from his port replacement surgery! It’s such a different experience with him in the hospital when he’s not inpatient for uncontrolled seizures. He’s been happy and chatty… spending lots of time playing with his new “wish!”
Because C**t is a “regular” in the hospital, he qualifies to receive wishes from Little Wishes, an AMAZING program that brings so much joy to sick kids all across the country. This time CLS Adrienne surprised him by bringing his wish down to pre-op. He’s developed quite the hobby of creating his own lego minifigures. LW gifted him all new supplies to keep creating and building new figures. Also, he received a ton of cool Lego containers to display his new figures.
The “distraction” of a wish worked well, because while he was checking out his wish, multiple people worked hard to try and get an IV started… (this is the reason he has a port, it is extremely difficult to get an IV started AND to keep his veins from blowing.) The IV was a necessity today, since they wouldn’t have access to the port while replacing it. C**t sat perfect through multiple nurses poking him…. eventually they were able to use the ultrasound machine and get the IV going.
Also, SHOUTOUT to Adrienne, who knows C**t well and knows he struggles with transitions and strangers… she started planning for C**t’s surgery day in advance to make it go as smooth as possible. She’s an amazing Child Life Specialist who volunteered to stay with him from pre-op, into the surgery room and post op, and then back to his hospital room, so he would have someone that he was comfortable with by his side at all times. ❤️❤️❤️ This was HUGE for my mama heart, and made it easier for C**t and for myself as well. ❤️❤️❤️

Address

2829 South Ankeny Blvd.
Ankeny, IA
50023

Website

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