19/01/2024
It’s been awhile since I’ve posted. A few weeks ago I got a call from UofM - I was second in line for a liver. After a long stressful day, I finally got word that the liver was going to someone else. I had so many emotions! Disappointment, sadness, fear, and even relief. Because as scary as it is waiting for a transplant, the actual transplant surgery is just as scary. But I’m getting worse. I’m in constant pain, often nauseous, I rarely sleep more than a few hours each night. My skin feels like it’s on fire all day, every day. I’m fatigued from not sleeping, but also because I’m constantly anemic due to low iron. On a good day I can go to work, come home and make dinner, and spend time with my boyfriend and my dog without having a breakdown about how awful I feel. On a bad day, I have to work remotely because I’m so miserable. I completely breakdown because I feel like I can’t function and I don’t know if I’ll ever feel normal again. My wonderful boyfriend is so supportive and understanding, without him I would completely lose my sh*t. 😂🤦♀️ I say all this not because I want anyone to feel bad for me. I say it because for the most part, if you looked at me on my worst day, unless you know me well you probably would never know how bad I really feel. We never know what people deal with in their daily lives, what causes them to have a moment of impatience or rudeness, or why they seem so scattered, distracted or uncaring. I try to catch myself when I’m not being my best, but I know I fail at that often. I also say this to remind myself to be kind, and remember what you see on the outside doesn’t always reflect what’s really going on with someone. 💚