Patients For Patient Safety US

11/20/2025

Congratulations to Carole Hemmelgarn, MS, MS, A. McManus, MHS, Kiera Peoples, MPH, Rashmi Singh, MBA, MS, and Laura Blum Meisnere, MA, on their article in the Joint Commission Journal on Quality and Safety: "Patient Safety in Transition from Pediatric to Adult-Centered Care."

From the abstract: In 2024 the National Quality Forum (NQF) convened four Stakeholder Advisory Councils, each made up of a subset of stakeholders from NQF member organizations with shared interests to identify and address high-priority topics aligned with NQF’s vision that every person experiences high-value care and optimal health outcomes. The four councils each represented important stakeholder groups in healthcare—patients and consumers, healthcare professionals, healthcare provider organizations, and researchers and solutions organizations. These councils were convened to encourage dialogue, address stakeholder concerns, and connect peer organizations to share challenges and best practices. This commentary is the second part of the Consumer Stakeholder Advisory Council’s work providing a novel approach with practical guidance on key elements of transition, implementation experience and challenges, and measurement options in the United States and throughout the world. In the summer of 2024 the NQF Consumer Stakeholder Advisory Council hosted a webinar, “Transition from Pediatric to Adult Healthcare: Patient Safety and Health Quality Gaps and Solutions,” to explore critical issues such as patient safety gaps and successful transition strategies. The event raised awareness about clinical recommendations, evidence of effectiveness for a structured transition process, successful transition practices, and the role of families and caregivers, and highlighted one individual’s lived experience. The combination of expert knowledge and real-life experiences made the webinar a valuable and enriching experience for the attendees.

Read more here: https://www.pfps.us/

Patient Engagement and empowerment is perhaps the most powerful tool to improve patient safety.

11/19/2025

We're thrilled to announce that PFPS US President Sue Sheridan has been invited by the National Academy of Medicine (NAM) to co-chair The Patient Safety AI initiative steering committee with Gianrico Farrugia, M.D. of Mayo Clinic and Lassiter, MHA, of CommonSpirit Health under the leadership of NAM senior advisor Laura Adams. This two-year initiative includes creating a landscape assessment to build on the progress of patient safety to date, examining the history of the patient safety movement and existing national and international frameworks and policies.

https://nam.edu/our-work/programs/leadership-consortium/evidence-digital-health/patient-safety-in-the-era-of-ai/

Leadership Consortium - Digital Health and AI

11/12/2025

Disability research, like most areas of science, relies on validated and reliable measures. By narrowly restricting the definition of disability to functional limitations, current disability measures in U.S. surveys fail to assess the complexity and diversity of the disabled population. These measurement limitations can lead to bias and reinforce outdated and exclusionary views of disability, with implications across research, policy, and practice. It is therefore imperative that researchers be transparent about the limitations of the disability measures used and the data they produce.

Abstract. Disability measures currently used in U.S. federal surveys fail to identify many disabled people as such. This commentary summarizes empirical ev

11/12/2025

A new report from Press Ganey shows the trust factors reshaping how consumers make healthcare decisions. 85% factor perceived safety into decisions, compassion and communication remains a top driver for recommendations, and scheduling remains a top pain point—download the report here: https://www.beckershospitalreview.com/patient-experience/press-ganeys-consumer-experience-report-5-findings/

Press Ganey consumer experience report reveals key insights on safety, social capital, and consumerism shaping healthcare decisions in 2023 and beyond.

10/28/2025

Dear Project PIVOT Friends,

PFPS US and the Project PIVOT leadership team are pleased to invite you to an upcoming informational webinar on November 6th at 1:00 PM ET. During this session, we’ll unveil the final patient and healthcare system prioritized patient-reported experience (PRE) and patient-reported outcome (PRO) survey questions, focused on improving patient safety, addressing missed, wrong, and delayed diagnoses, and reducing bias in care.

In this webinar, we will cover:

A brief overview of Project PIVOT and the methods used to collect and prioritize potential PRE and PRO survey questions

The universal PRE and PRO questions identified by patients and health systems that focus on patient/diagnostic safety and bias

Population-specific PRE and PRO questions that reflect the unique challenges faced by birthing people of color, older adults, and people with disabilities

How these new questions align with and support the goals of the CMS Patient Safety Structural Measure, CDC’s Core Elements of Diagnostic Excellence in Hospitals, The Leapfrog Group’s surveys, ECRI’s best practices that address the Top 10 Patient Safety Risks, and recommendations in the National Action Plan

Next steps, commitments, and opportunities for engagement

We hope you’ll join us for this important conversation.
Warm regards,
The Project PIVOT Team

https://www.pfps.us/upcoming-event

Patient Engagement and empowerment is perhaps the most powerful tool to improve patient safety.

10/20/2025

“Patient trust is rooted in safe care and that begins in a health care environment that supports everyone involved,” said Susan Sheridan, president and CEO of Patients for Patient Safety US. “Patients have the same goals as the people who care for us—better patient outcomes. We need to focus on this common purpose to build a better collaborative relationship. Patients and health workers should be on the same team, together.” https://nam.edu/news-and-insights/nam-and-patients-for-patient-safety-reflect-on-world-patient-safety-day/

Each day, patients place their trust, and often their lives, in the hands of the health care system. Their experiences and health outcomes are affected by

10/06/2025

Join PFPS US Co-Founder and President Sue Sheridan and the National Academies of Sciences, Engineering, and Medicine on October 14, 2025 for Advancing Diagnostic Excellence in Rural Areas: A Workshop. Workshop participants will consider the current landscape and explore opportunities for addressing diagnostic challenges to mitigate health disparities for rural populations. Learn more and sign up here: https://www.nationalacademies.org/event/45238_10-2025_advancing-diagnostic-excellence-in-rural-areas-a-workshop

Learn more from the National Academies of Sciences, Engineering, and Medicine

09/29/2025

In recognition of World Patient Safety Day 2025, the Federation of American Scientists (FAS) published a Policy Brief highlighting four bold proposals developed by Patients for Patient Safety US (PFPS US) aimed at leveraging AI (Artificial Intelligence) to advance patient safety on a national scale. The policy brief recommends the following PFPS US initiatives for federal policymaker action:

• AI-Empowered Safety Event Reporting and Learning System: Creation of an innovative system designed with and for patients to improve detection and learning from safety events.

• Real-Time Patient Safety Dashboard: Development of an AI-powered dashboard for up-to-the-minute insights into patient safety.

• Mining Billing Data for Deviations from Standards of Care: Use of AI to analyze billing records and flag instances of potential harm stemming from deviations from best practices.

• Patient Safety AI Testbed: Establishment of a dedicated environment for piloting and evaluating new AI solutions focused on harm prevention.

Read more here: https://www.einpresswire.com/article/853542638/federation-of-american-scientists-advances-pfps-us-ai-powered-patient-safety-proposals

In recognition of World Patient Safety Day 2025, the Federation of American Scientists (FAS) published a Policy Brief highlighting four bold proposals developed

09/26/2025

ICYMI: On September 17, World Patient Safety Day 2025, Patients for Patient Safety US convened a Patient Safety Leadership Briefing with national leaders who shared several new reports, updates on initiatives, and recommendations. Our convening partners were the Institute for Healthcare Improvement (IHI), the Johns Hopkins University Armstrong Institute for Quality and Safety and Distinguished Professorships Knowledge to Action Initiative, and the Leapfrog Group.

The highly energized gathering of leaders and stakeholders kicked off with a dynamic and encouraging welcome from Dr. Mehmet OZ, Centers for Medicare and Medicaid Services (CMS) Administrator. Other federal leaders from CMS, the Agency for Healthcare Research and Quality (AHRQ), the Centers for Disease Control and Prevention (CDC), and the Department of Health and Human Services Office of the Inspector General (OIG) presented exciting new approaches to advancing diagnostic safety and preventing harm through expanded investigation, collaboration, and Federal Agency leverage. A new initiative from the National Academy of Medicine (NAM) was outlined: Patient Safety in the Era of AI. Scheduled to launch in 2026, the NAM initiative focuses on using the power of AI with the specific aim of making healthcare safer.

We also heard exciting results from IHI and St. Jude Global on preventing sepsis, reducing mortality, and achieving better outcomes for pediatric cancer patients via inspiring international collaboration.

We are pleased to share the briefing materials with you, including presentation slides and the video greeting from Dr. Oz: https://www.pfps.us/

Patient Engagement and empowerment is perhaps the most powerful tool to improve patient safety.

09/17/2025

Thank you to all the presenters and attendees of our World Patient Safety Day Leadership Briefing! Special thanks to Ruth Ann Dorrill, Michelle Schreiber, Jade Perdue-Puli, Mike Bell, Laura Adams, Jafet Arrieta, and Patricia McGaffigan for such engaging and insightful talks about the projects they're involved in to improve patient safety in the US and around the world. As Patricia McGaffigan of IHI said at the end of the discussion, "The most powerful force comes from the patient and caregiver community."

09/17/2025

09/16/2025

Our webinar is tomorrow--there's still time to sign up! :)

Patient Engagement and empowerment is perhaps the most powerful tool to improve patient safety.