10/03/2025
The more you know! Beck has been stress dosed multiple times during a sickness and surgeries. It’s CRUCIAL to know this information and share it with medical providers ⬇️
PJ continues to live on and save lives 🙏🏼
PJ's Protocol Critical Concept 3: Everyone on long-term daily steroids needs a steroid stress plan in place.
Individuals with Duchenne taking daily, high-dose steroids require a stress steroid plan for moderate or severe illness, surgery, or other physiologic stress.
👉 What does this mean?
Even if someone feels fine, their body may not produce enough cortisol to handle stress. Without the right “stress-dose” steroids, they’re at risk for adrenal crisis—a life-threatening emergency.
👉 Why does it matter?
Adrenal crisis can cause symptoms like low blood pressure, severe fatigue, vomiting, confusion, or even shock. Having a clear plan ahead of time saves lives.
👉 What families and providers should know:
✔️ Every individual on chronic daily steroids should have a stress steroid plan.
✔️ The plan should include management of moderate and severe physiologic stress (illness, injury, surgery).
✔️ Families should carry emergency instructions and/or alert cards to ensure rapid care.
Learn more about PJ’s Protocol and all 6 critical concepts here: parentprojectmd.org/pj