MDA Night of Hope Gala: A Benefit for ALS Research

MDA Night of Hope Gala: A Benefit for ALS Research For additional information on the Night of Hope Gala and how you can get involved, please contact Lisa Kirksey at LKirksey@mdausa.org

A Night of Hope

Marking its milestone 15th year, the Night of Hope Gala has raised over
$9.5 million dollars to fund critical research for ALS. Each year, the gala
committee enlists the help of corporate sponsors and individual donors
to assist in the major undertaking to bring awareness to this tragic illness
and to fund various research initiatives, including the local MDA-funded
ALS clinic at Emory Healthcare. This event was started in 2006 by Holly and Palmer Proctor to honor
Holly’s father, Steve Ennis. Steve was a former manager, president and
chairman of the board of Coca-Cola Bottling Works of Tullahoma, Tenn.,
and was diagnosed with ALS in July 2005. His battle with the disease
ended in January 2012. However, his strength, determination and hope have remained a cornerstone for this event and its supporters. ALS Today
ALS takes away the freedom to walk, to talk, to eat, to breathe. There are approximately 30,000 Americans living with ALS – a disease that causes nerve cells to inexplicably die, leading to weakness and paralysis of all voluntary muscles, including those used for swallowing and
breathing. There is no cure for ALS and the life span after onset of symptoms is typically three to five years. Due to your support, we are living in a time of unprecedented progress in neuromuscular research and our fight against ALS. The Muscular Dystrophy Association (MDA) has led the way for innovations in science and care for 70 years. Since its inception in 1950, MDA’s total investment in ALS is now over $372 million, with more than $170 million in funding specifically dedicated to ALS research. Your generous support makes it possible for MDA to continue to provide clinical care for ALS patients, support for ALS families, and funding of research and clinical trials that will soon change the future of ALS.

09/22/2025

The National ALS Registry is excited to host its 2025 Annual ALS Surveillance virtually on October 22nd and 23rd. Find out more about the meeting and how you can virtually attend at https://forms.gle/a73wukGtYFUdgsFy5

09/19/2025

ALS research is gaining incredible momentum, and it’s inspiring to see the progress being made across the field.

For the past 19 years, Muscular Dystrophy Association Night of Hope - a gala dedicated to supporting ALS research, care and advocacy – has brought our community together to honor loved ones, celebrate progress, and accelerate the search for treatments and a cure. We are proud to be among the organizations fighting for a cure. Together, we can do this! 💪

If you'd like to attend, sponsor or get involved, reach out or visit https://app.betterunite.com/musculardystrophyassociation-nightofhope

The Muscular Dystrophy Association Night of Hope is more than a gala- it's a community, dedicated to funding critical re...
09/12/2025

The Muscular Dystrophy Association Night of Hope is more than a gala- it's a community, dedicated to funding critical research and care for the ALS Community. If you've ever been part of the Night of Hope, we want to hear from you!

What does the Night of Hope mean to you? Tell us here: https://forms.office.com/r/htbeiM46YT

✨Save the Date✨Mark your calendars for the 19th Annual Muscular Dystrophy Association Night of Hope Gala- an unforgettab...
09/04/2025

✨Save the Date✨

Mark your calendars for the 19th Annual Muscular Dystrophy Association Night of Hope Gala- an unforgettable evening where we come together to support our mission to End ALS!

📆 Saturday, March 14, 2026
📍InterContinental Buckhead Atlanta

Interested in being part of this incredible event? Contact LKirksey@mdausa.org for details!

07/24/2025

We are deeply saddened by the passing of Phil Green, an advocate, devoted husband and father, and a powerful voice in the ALS community. Phil lived with purpose and passion, dedicating each day to advancing access to treatments, driving research for biomarkers, and championing legislation to improve the lives of people living with ALS.

Phil once said, "I get up each day motivated to make a difference... I bring the urgency and passion of the patient voice." His legacy will continue to inspire us in the fight to end ALS. MDA extends our heartfelt condolences to Phil’s family, friends, and the entire ALS community. 💙💛

07/11/2025

📣 Don’t miss the upcoming MDA Next Steps Seminar: Newly Diagnosed ALS – a virtual event designed specifically for individuals recently diagnosed with ALS and their families.

🗓️ Date: July 14, 2025
⏰ Time: 5 to 8 p.m. ET
💻 Location: Online

Join us for an evening of expert insights and community connection. Topics include:
✔️ Multidisciplinary care
✔️ Finding home-based care
✔️ Physical therapy
✔️ DME
✔️ And more

Hear from top clinicians and members of the ALS community during live Q&A sessions. This is a free event.

👉Register today: https://click.comms.mdausa.org/?qs=986d61ef774f9489fa56bf12038ade84178f0e093743c299f3b8b773f853ded20ff60bd2e8fab453834f90ccfc84280199d37a739efd98674695160b34871c3d

05/29/2025

For people with living with ALS, losing the ability to speak doesn’t mean losing the ability to communicate.

Speech-generating devices (SGDs) provide powerful solutions that help individuals stay connected with loved ones, caregivers, and the world. From simple text-to-speech apps to advanced eye-tracking systems, these tools are giving voices back to those that need them most.

Learn more about how SGDs are improving lives:
https://mdaquest.org/speech-devices-improve-communication-when-als-affects-the-voice/

ALS RESEARCH SPOTLIGHT: Muscular Dystrophy Association is proud to support Sabrina Paganoni, MD, PhD, of Massachusetts G...
05/28/2025

ALS RESEARCH SPOTLIGHT: Muscular Dystrophy Association is proud to support Sabrina Paganoni, MD, PhD, of Massachusetts General Hospital (MGH) with a $500,000 clinical research grant over three years. This grant will support the HEALEY ALS Platform Trial, a pioneering initiative designed to accelerate the development of effective treatments for amyotrophic lateral sclerosis (ALS).

Thank you for supporting the Night of Hope and making investments like this possible! Click to read more about the HEALEY ALS Platform Trial: https://www.mda.org/press-releases/mda-awards-500000-grant-to-accelerate-als-research-through-the-healey-als-platform-trial

05/20/2025

We’re proud to announce a powerful partnership between Muscular Dystrophy Association and Rawlings Sporting Goods® to honor Lou Gehrig’s legacy and raise funds to end ALS.
Starting this ALS Awareness Month and running throughout June in honor of MLB teams’ Lou Gehrig Day events, Rawlings® is releasing a limited-edition "End ALS with MDA" baseball and glove collection, with proceeds supporting MDA’s mission to fund research, provide care, and advocate for people impacted by ALS. Fans who donate $10 or more will receive a custom-designed collectible baseball.

➡️ Donate today to get your custom baseball: https://mda.donordrive.com/index.cfm?fuseaction=donordrive.event&eventID=1770
➡️ Read more at: https://www.mda.org/press-releases/mda-and-rawlings-join-forces-to-honor-lou-gehrig%E2%80%99s-legacy-and-raise-funds-to-end-als

Rhys Hoskins of the Milwaukee Brewers said, “I’ve been a longtime supporter and volunteer for the Muscular Dystrophy Association before my career began and throughout my time in baseball. Neuromuscular diseases, including ALS, require a strong community of support through caregiving, advocacy, and access to treatments. Many people don’t realize that MDA has supported people living with ALS since its founding. We must continue to accelerate progress, and in honor of Lou Gehrig, I’m proud to raise awareness for MDA’s critical role in this fight to end ALS.” 💙💛⚾️

Research Spotlight: Dr. Subodh Mishra, University of AlbanyMDA Awarded over $200,000 to support Dr. Mishra's groundbreak...
05/19/2025

Research Spotlight: Dr. Subodh Mishra, University of Albany

MDA Awarded over $200,000 to support Dr. Mishra's groundbreaking project: "The mechanism, synergies, and therapeutic horizon of quercetin in DM and C9-ALS".

Thanks to the generous support raised at the Night of Hope, Muscular Dystrophy Association continues to fund a wide range of promising ALS projects- spanning everything from gene discovery and early diagnostics to clinical trials and collaborative breakthroughs.

Learn more about Dr. Mishra's research here: https://www.mda.org/science/grants-at-a-glance/search?nid=547486

Together, we're unlocking answers that change lives today and for generations to come!

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