11/05/2025
TLDW summary: Hi! It's Katie, the advanced practice nurse (Clinical Nurse Specialist) behind the specialty practice for Ehlers-Danlos Syndrome in Austin, Tx. I'm thinking outside the box, trying to make an integrative approach to healthcare more accessible to more people.
Inspired in part by James Maskell's book, Community Cure, I am starting office hours today for my patients who have joined the A to Zebra Membership. I created an offering for folks who were looking for monthly check-ins to stay on track (or to try to get everything on track). The membership includes a discounted hourly rate, quarterly webinars, bigger supplement discount, and now these office hours. Today starts the first of the twice a month lunchtime Office Hours, where patients can jump on a standing video link to join me and other members. I will be available for questions, medication adjustments, research requests, or just mindful art journaling and sharing space. Or, as I told my patients, if no one else hops on, you can have an extra hour with me! I'm not sure how it will go, but l'm excited about shaking up healthcare a little to see how we can improve on this dumpster fire- I mean- system. I can foresee bringing in lunch and learn colleagues in the future, scheduling relaxation activities... my brain is brimming with ideas! What do you think- would you come to a group session with your provider if it was offered for your condition?