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Adore Rae. Sickle Cell Awareness. 💜 Raegan's Journey | Handmade wellness & fundraiser tees | Raising awareness, building community, sharing love.✨️
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Adore Rae is THE brand promoting a healthy lifestyle. We encourage and support healing through, renowned holistic healer, Dr. Sebi's methodology.

17/04/2026

Self-care starts with what you put on your body. 🛁🧼

​Life gets busy, but taking a moment to nourish your skin shouldn't be a luxury. I just finished restocking our Shay Shea Butters to make sure you have your daily dose of moisture ready to go.

​The Benefits:
✨ Soothes dry, itchy skin
✨ Softens rough patches (elbows and heels’ best friend!)
✨ Leaves you feeling silky, not greasy
​Tap the link in my bio or head to https://www.adorerae.com/category/all-products to shop the restock!​

17/04/2026

Sometimes the day doesn’t go as planned. Raegan was supposed to host a weekend sleepover with her bestie, but it was cancelled due to unforeseeable circumstances. Instead of letting the disappointment take over, we chose joy. We kept our plans — a movie date, a mini shopping spree at Five Below, and dinner at her favorite restaurant. She had an absolute blast. Choosing joy, making the best of the day, and creating memories anyway.

For More Visit: AdoreRae.com - linked in the bio

15/04/2026

Raegan had a dentist appointment last Wednesday, and she was so nervous going in. New places, new people, new procedures — it’s a lot for any child, but especially for one who carries so much medically.

What most people don’t see is how long it took just to get here. Months of advocating… months of pushing for the right referral… months of making sure she could be seen by a dentist who specializes in medically complex children. Sickle Cell alone qualifies her for specialized care, but with liver disease also affecting gum health, it was even more important to get her to the right place.

And it finally happened.

The appointment went better than she expected — better than either of us expected. She was brave, she was patient, and she walked out smiling. She’ll have a few follow‑up visits to correct some minor issues, but overall, it was a good day. A win. A reminder that advocacy matters, and that our kids deserve providers who understand their full medical picture.

Proud of her. Always.

For More Visit AdoreRae.com


15/04/2026

Advocating for a medically complex child takes strength, softness, and a whole lot of heart. I’ve learned that caring for Raegan means caring for myself too — setting boundaries, protecting my peace, and celebrating the small wins that keep us going. Your child doesn’t need a perfect advocate; they need you, grounded, supported, and standing in your strength. 💜🦋

Read the full Blog here:
https://www.adorerae.com/post/10-ways-to-advocate-for-your-child-without-becoming-burned-out

14/04/2026

Raegan has always loved books, but this moment right here… this one hits differently. At just 3 years old, she’s reading a beginner’s book about sickle cell disease — the very condition she’s been fighting since birth.

Watching her read out the words, turn the pages, and stay so focused felt like a full‑circle moment. She’s learning about her own body, her own story, in a way that’s gentle and age‑appropriate. And she’s doing it with confidence.

She doesn’t fully understand everything yet — and she shouldn’t have to at her age — but seeing her engage with a book created for kids like her made my heart swell. Representation matters. Understanding matters. And moments like this remind me just how bright her little light shines.

Proud of her doesn’t even begin to cover it.

For more Visit AdoreRae.com - the link is in my bio




09/04/2026

Spring break feels like the perfect time to slow down and give Raegan a change of scenery, so we took a little trip to a local farm’s storefront this week. Fresh air, local foods, and a chance to explore at her own pace — all the things that make her light up.

Raegan loves food. Truly loves it. And as she’s grown, her body has made it clear that plant‑based eating just isn’t sustainable for her anymore. The foods she would need to stay nourished — beans, nuts, seeds — are the very things she can no longer tolerate. So we’ve shifted with her, without guilt or pressure, and embraced what does work for her.

Her favorites? Chicken wings… and well, you’ll see the rest in the video.
Watching her choose foods she enjoys and can actually tolerate feels like a small but meaningful win — one more way we’re creating joy on purpose, even in the simplest moments.

For More Visit AdoreRae.com

08/04/2026

New on the blog: Creating Joy on Purpose.

As Raegan’s world has shifted with sickle cell Anemia and Liver Disease involving her mobility challenges, my focus as her caregiver has shifted too. I’ve learned that the most meaningful thing I can give her isn’t more “stuff” — it’s experiences. Memories. Moments that remind her she is more than her diagnoses.

This blog is about choosing joy intentionally, even when life feels heavy. It’s about why experiences matter so deeply for medically complex kids, and how they help expand a world that pain and fatigue often try to shrink.

If you’re a caregiver, parent, or anyone walking a hard road with a child you love, I hope this encourages you the way writing it encouraged me.

Read the full post on AdoreRae.comhttps://www.adorerae.com/post/creating-joy-on-purpose-why-experiences-matter-more-than-things-for-medically-complex-children 💛✨

04/04/2026

Soursop tea has been cherished for generations — and now it’s part of the Adore Rae wellness collection. This calming, antioxidant‑rich herbal tea is known for its smooth flavor and soothing properties.

From traditional use across the Caribbean, Africa, and South America to modern research highlighting its natural plant compounds, soursop tea is a beautiful way to bring balance and intention into your day.

Whether you enjoy it hot or chilled, this simple ritual invites calm, grounding, and a moment just for you.
Now available on https://www.adorerae.com/product-page/heal-hopes-soursop-12-tea-bags

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03/04/2026

🌼 Surrendering to the Goal

Lately I’ve been talking a lot about surrender — not the kind that feels peaceful, but the kind that forces you to release what you can’t control so you can focus on what truly matters. And for me, the “what matters” has become clearer than ever.

The goal has always been to create memories with Raegan and for her. But now, that goal feels more urgent, more intentional, more sacred. I can’t change the pain she experiences. I can’t control the medical challenges that come with sickle cell anemia or liver disease. But I can shape her world in ways that invite joy, discovery, and new experiences.

The next step in that journey is getting her more mobile — even if that means using equipment to make it happen. She has an upcoming appointment to be fitted for a custom wheelchair, and honestly, it feels like a doorway opening. This chair will give her accessibility to life again. It will let us do simple things like grocery shopping without the stress of how. It will help us get out of the house more. It will give her the chance to explore, to experience, to live.

From a material standpoint, Raegan has everything a little girl could want. But the things I want to give her now can’t be wrapped in a box. I want to give her moments. Adventures. Memories that remind her she is more than her diagnoses. Experiences that bring joy to counterbalance the suffering she didn’t ask for.

Surrendering isn’t giving up — it’s shifting my energy toward what I can build. And right now, I’m building a life full of moments she’ll carry forever.

Visit AdoreRae.com for More! Linked in my Bio

01/04/2026

🌼 Caregiver’s Corner — The Reality of Getting Out the Door

This Wednesday for Caregiver’s Corner, Raegan and I just needed some time out of the house. If you’ve been following our journey, you know she’s been battling an AVN flare in her hips from sickle cell, which makes walking without assistance incredibly painful. On top of that, hepatopulmonary syndrome affects her endurance, so even short outings take planning, patience, and prayer.

We’re so grateful to have been gifted a temporary collapsible wheelchair — it’s given her a little more mobility and freedom. But the next challenge is one I didn’t fully appreciate until now: the stairs. Rotating her hips to get down them causes extreme pain that can leave her in bed for days with strong pain meds and heating pads. I’ve tried carrying her, but she’s simply too heavy for me to lift safely anymore.

So the only option left is to carefully wheel her up and down the stairs to and from the car. I do my best, but I don’t always get it right. I’m learning as I go.

Today’s video shows the real physical struggle of pulling her wheelchair up the stairs. We were almost at the top when the release latch caught a step — I was holding the chair too low — and it started to fold. Don’t worry, Raegan is okay. I laid the chair down before it collapsed and helped her stand. What started as a jarring, scary moment somehow turned into laughter once we cleared the danger. That’s just who she is.

And while it may take months before her customized wheelchair is ready, I am so eager for that appointment. She deserves equipment that fits her body and a home that’s modified to make life safer, easier, and less stressful for both of us.

This is the part of caregiving people don’t always see — the physical strain, the problem‑solving, the fear, the humor, the resilience, the love. We’re figuring it out one step, one stair, one moment at a time.

For More Visit AdoreRae.com

31/03/2026

I just published a new blog on AdoreRae.com about something many families living with sickle cell hear about and live with: Avascular Necrosis (AVN).

AVN is one of the most painful and common orthopedic complications of sickle cell anemia — and it’s something Raegan has been navigating in her hips for almost a year now. Her pain comes and goes, sometimes lasting days or weeks, sometimes disappearing without warning. And while she’s been prescribed every conservative treatment available, surgery isn’t on the table yet.

In this blog, I break down what AVN actually is, how common it is in sickle cell disease, the joints it affects most, and the typical treatments doctors use to manage it. I also share how this journey has looked for Raegan — the hard days, the small victories, and everything in between.

If you’re a caregiver, a parent, or someone wanting to understand sickle cell more deeply, I hope this helps you feel informed and supported.

Read the full blog here - The link is in my Bio: https://www.adorerae.com/post/sickle-cell-anemia-avascular-necrosis-understanding-a-painful-but-common-complication

Thank you for walking with us through every chapter of Raegan’s journey.

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Saving Rae

Adore Rae is founded in Love as tribute to a little girl named Raegan. In 2015, Raegan was born with Sickle Cell Anemia (type SS).

Raegan’s battle began shortly after her 1st birthday when she experienced her first Sickle Cell crisis. From her first crisis, the effect of Sickle Cell grew progressively worse causing her to have 4 hospital stays and countless doctor appointments in an attempt to gain better control of her physical pain. At the climax of Raegan’s suffering, this terrible disease would leave her in unbearable pain and unable to walk or function as a normal 1 year old. Additionally, her pain would only be manageable with harsh narcotics.

After 6 to 8 weeks with no improvement in the amount of Sickle Cell crisis Raegan endured, her hemoglobin specialist advised the only option to try to decrease (NOT CURE) her crisis was to introduce her to a chemotherapy medication. He went over the warnings & possible side effects. The instruction to, “wear gloves” & “to be sure not to spill any on the skin” stood out the most. Raegan’s parents refused this treatment and searched for other options.

A close family member suggested Dr. Sebi. After listening to videos of the healer himself, researching his products, & finding out that they are 100% natural plant based ingredients Raegan’s parents decided to give it a shot. The results for her are life changing. Raegan has & continues to inspire those around her.