Uniquely Serenity

Uniquely Serenity TBR1 is a rare disorder, Serenity is Unique with her own variant. We want to share TBR1 awareness

09/08/2025
PT Session making big gains! Supported Standing and showing out doing it with one hand!
09/05/2025

PT Session making big gains! Supported Standing and showing out doing it with one hand!

TBR1 Awareness Day 🧬💙🩶TBR1 Warrior Here! TBR1 is a rare genetic syndrome that has affected a little over 200 people worl...
09/02/2025

TBR1 Awareness Day 🧬💙🩶

TBR1 Warrior Here! TBR1 is a rare genetic syndrome that has affected a little over 200 people worldwide! Through our journey we have found community and support with our TBr1 Family and celebrate with them today!

I share similarities with others in our TBR1 community, but am specific with my own variant. My page Uniquely Serenity has been dedicated to show my journey and what is to come! Things that I have overcame that professionals doubted me!

Through dedication, determination, my happiness, sweetness and fulfilling the meaning of my name we have found peace going through this journey even when it’s challenging.

Today we did a neighborhood walk then celebrated with my favorite Oreo McFlurry! You can see my happiness getting out the car & I see my ice cream in mums hand!

First Day of Kindergarten! Serenity was pumped and ready to explore. She heard the word “school” and nothing but giggles...
08/07/2025

First Day of Kindergarten! Serenity was pumped and ready to explore. She heard the word “school” and nothing but giggles & smiles. When we got to her new school she browsed with curiosity at the new transition. Overall her sweet and happy self will adjust as this new journey begins.
Palsy

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Barstow, CA

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