Para Z-Aid LLC

03/29/2026

03/24/2026

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The Ehlers-Danlos Society is proud to collaborate* with the Program in Global Primary Health Care based at Harvard Medical School Office for Research Initiatives and Global Programs, and the Brigham and Women's Hospital Division of Global Health Equity to improve care for people living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).⁠
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Together, we are working to develop primary care–anchored models of care, helping frontline clinicians recognize these conditions earlier and connect people to the right care.⁠
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This work will focus on:⁠
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- Co-designing models of care based on people’s lived experience and clinical guidelines⁠
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- Identifying policy and health systems changes required to support better care access and coordination in primary care⁠
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This collaboration forms part of The Ehlers-Danlos Society’s broader Road to 2026 initiative with the International Consortium on the Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders. ⁠
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Improving diagnosis and care requires changes in healthcare systems, clinical education, and care models so advances translate into real-world care.⁠
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Together, we are working to help ensure people living with EDS and HSD can receive the diagnosis, care, and support they deserve.⁠

Learn more🔗https://www.ehlers-danlos.com/models-of-care-announced/

*This collaboration is a sponsored research agreement funded by The Ehlers-Danlos Society and administered through Brigham and Women’s Hospital.

03/24/2026

SOUTH BEND, Ind. -- Joint pain, headaches, dizziness and allergic reactions can send many people to the doctor. For others, those symptoms are daily life with Ehlers-Danlos syndrome, a rare genetic disorder that specialists say is more common than once believed.

03/23/2026

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03/12/2026

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03/01/2026

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