Para Z-Aid LLC

Para Z-Aid LLC We pour our hearts into investigating rare conditions with specialists for hope & healing.

AHA American Heart Association & Red Cross Training site CPR BLS/Heartsaver instructor certified

11/18/2025

This is a not-to-be-missed conversation for anyone interested in brain inflammation. Dr. Eboni Cornish, M.D. is Associate Medical Director at Amen Clinics, Fellow and Treasurer of the Board for the International Lyme and Associated Diseases Society (ILADS). With research training at the National Institutes of Health as a Howard Hughes Medical Fellow, she is nationally recognized for her evidence-based work in neuroinflammation, autism, chronic toxicity, and complex chronic illnesses, including autoimmune disease, Lyme, PANS/PANDAS, mold illness, CIRS, and long COVID among others. At Amen Clinics, she integrates SPECT brain imaging with advanced biomarker testing to uncover root-cause brain imbalances and has created the Amen Clinics 2-Week Neurointensive Program for complex neuroimmune disorders. A sought-after speaker and educator, Dr. Cornish is dedicated to advancing brain and body longevity while translating complex science into practical, patient-centered strategies.
In this episode she and Dr. Dempsey discuss neuroinflammation, the role of limbic system, gut imbalances, chronic infections and MCAS. listen on your favorite platform or at thePOTScast.org.

11/18/2025

Neurological and Neuropsychological Disturbance in Ehlers–Danlos Syndrome (EDS)

A new paper published in Frontiers in Neurology by Westerman and Kafkas et al, brings together current evidence on the neurological and neuropsychological dimensions of EDS, including brain structure changes, autonomic dysregulation, small fibre neuropathy, and emotional and cognitive symptoms such as anxiety, fatigue, and dysautonomia.

The researchers argue for a more integrated approach that connects the biological, neurological, and psychological aspects of EDS to improve clinical understanding and patient care. Read the paper here: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2025.1648702/full

Dr Westerman is joining us for a webinar in February to talk through the findings of this paper. You are able to now book on for this webinar here: https://shop.ehlers-danlos.org/product/subject-neurobiological-and-neuropsychological-disturbance-in-eds/

11/18/2025

🟢Join the IC Lived Experience Working Group!

The Community Coalition is relaunching as the new Lived Experience Working Group within the International Consortium on the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

The IC brings together experts from around the world who volunteer their time and expertise to advance research and improve care for people living with all types of EDS and HSD.

There are many different Working Groups within the IC, focused on the different types of EDS and HSD, and different symptoms, for example skin, orthopedics, and pain management.

The Lived Experience Working Group will ensure that the voice of the community is represented in research discussions and projects.

The IC is looking for people with all types of EDS and HSD to join this group. Each type brings important perspectives and challenges, and we are committed to ensuring broad representation within this group.

Participation is voluntary and centered on sharing insights that help drive meaningful change. All members of the International Consortium serve on a volunteer basis, and no member receives compensation in any group or discipline.

If this sounds like something you would be interested in, please apply here: https://forms.monday.com/forms/80e37442a5e7ba761b13e4d6ddb2df40?r=use1

To learn more about the IC and its Working Groups, visit https://www.ehlers-danlos.com/international-consortium/

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11/18/2025

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Secure Your Legacy: Create Your Will for FREE!

Don't put off getting your affairs in order. Join Michael Bittel from LifeLegacy, where he will walk you through the entire process, step-by-step of creating your will at no cost.

✨What: FREE Will Creation Workshop⁠

✨When: November 19th at 11:00 ET⁠

✨Cost: Absolutely FREE!

Register today at https://forms.monday.com/forms/3d4c72dfe9dcc96ca2036243c608b53a?r=use1

11/17/2025
11/17/2025
11/17/2025
11/15/2025

This we celebrate the courage, strength and dedication of everyone touched by diabetes. You are seen. You are valued. You make a difference.

11/15/2025

Mast cells can release over 1,200 inflammatory mediators in response to a perceived threat, even when no true danger exists. Environmental toxicity, chronic infections, emotional stress, and a hyperactive cell danger response converge to keep the body in a reactive loop, sending the immune system into overdrive in the face of unresolved threat. The only way forward is to reduce the burden and restore trust.

Light, water, magnetism – start there.

👉️ I cover MCAS in detail in my New Medical Curriculum. Comment LEARN for more details.

Disclaimer: The information shared in this post is for educational and informational purposes only and is not intended as medical advice. Always consult with a qualified healthcare professional for specific medical guidance and treatment.

11/15/2025
11/15/2025

The International Mastocytosis and Mast Cell Diseases Awareness Day Committee recently conducted an online survey with their 2025 Awareness Day content partner, RARE Revolution Magazine, available in six languages, to gain a deeper understanding of the unmet needs of people living with mast cell disorders such as mastocytosis, mast cell activation syndrome (MCAS), and hereditary alpha tryptasemia (HaT).

Our incredible community rose to the challenge – more than 1,000 people shared their experiences! The committee has shared some of the key findings and what patients reported about living with these rare and often rarely diagnosed conditions.

Of the 1,040 participants, the majority reported a diagnosis of mastocytosis or MCAS, while around 5 percent remain undiagnosed, highlighting the ongoing challenges of recognition and access to care.

For those still navigating diagnosis, explore their factsheet “I suspect I have mastocytosis or a mast cell disease,” available in nine languages: https://buff.ly/atfFs1z

View the full 2-page infographic in nine languages: https://buff.ly/WLdKmMw

Graphics and materials courtesy of the International Mastocytosis and Mast Cell Diseases Awareness Day Committee.

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