Bisman Zebras- Hypermobility & EDS Support

02/11/2026

01/23/2026

12/27/2025

“It’s just HSD.” — Please stop saying that. 🛑

There’s a widespread myth that Hypermobility Spectrum Disorder (HSD) is the “mild” version of hypermobile EDS (hEDS).
That is not what the science says.

Clinical reality:
Under the 2017 EDS Classification, the separation between hEDS and HSD was created mainly for research and genetic clarity, not to rank severity or suffering.

What research shows:
People with HSD experience:
• Comparable chronic pain levels
• Similar rates of joint instability and dislocations
• The same common comorbidities (POTS, MCAS, GI issues, fatigue)
• Similar impacts on daily function and quality of life

So what’s the difference?
Often it comes down to missing a few diagnostic checkboxes (like specific skin features or arm span ratios) — not symptoms, pain, or disability.

HSD is not a “lesser” condition.
It is not benign.
And it does not mean your pain is mild or imaginary.

Your symptoms are real.
Your diagnosis is valid.
You deserve proper care — regardless of the label.

👇 hEDS, HSD, or still stuck in diagnostic limbo?

12/13/2025

12/12/2025

Interested in meeting some others with HSD or EDS? Join us this Sunday in Mandan. All are welcome.

12/05/2025

12/05/2025

Important new info for those with spondyloarthritis

Ultrasound scans reveal that inflammatory joint disorders may worsen the connective tissue changes seen in people with Ehlers-Danlos syndrome. https://buff.ly/0d2jk1k

12/04/2025

Today is International Day of Persons with Disabilities and the 2025 theme is “Fostering disability-inclusive societies for advancing social progress.”

True inclusion means ensuring that people with visible and hidden disabilities can learn, work and participate fully at every stage of life.

That’s why we provide practical, accessible resources to remove barriers and empower pupils, students and adults with EDS and HSD, including:

📘 School Toolkit and infographics to help teachers understand EDS and HSD and put effective accommodations in place
theschooltoolkit.org
https://www.ehlers-danlos.org/wp-content/uploads/2025/07/EDS-UK-Infographic-Posters-2024-Schools.pdf

🎓 Higher Education support, including advice for disabled students and guidance on Disabled Students’ Allowance
https://www.ehlers-danlos.org/wp-content/uploads/2025/07/EDS-UK-Infographic-Posters-2024-HigherFurther-Education.pdf

https://www.ehlers-danlos.org/support/benefits-and-disabilities/information-on-disability/

💷 Disability grants, benefits guidance and Blue Badge information to help people access essential support
https://www.ehlers-danlos.org/support/benefits-and-disabilities/

💼 Employment advice and workplace resources
https://www.ehlers-danlos.org/support/benefits-and-disabilities/employment-advice/

https://www.ehlers-danlos.org/wp-content/uploads/2021/06/EDS-At-Work-A4-Poster-FINAL.pdf

🎥 Webinars and practical guides to navigate daily challenges
https://www.ehlers-danlos.org/webinars/

https://shop.ehlers-danlos.org/product-category/webinarrecordings/

Our focus is on making practical information, guidance and tools available so people with EDS and HSD can get the support that makes a difference.

12/03/2025