Lost Zebra

Lost Zebra Personal journey of health problems and discovering new conditions. Learning how to cope, how to sur

08/09/2021

Prayers!! Please!

My Nana was taken by ambulance after having a scary episode where she turned grayish, was wheezing/gasping for air, and non-responsive. By the time the paramedics arrived she was somewhat coherent, but wasn't feeling right.. they checked her over and her BP was really high, they are concerned she may have had a stroke or is on her way to one.

I pray the doctors will take care of her correctly, do all the appropriate tests, and help my Nana. I also pray that my Nana feels better soon, and can come home ASAP! Amen.

05/17/2021

"This loss is so profound."

05/12/2021

Hospital Guidelines for CRPS/RSD Patients

05/04/2021

Saw my neurologist today for my increased seizure activity. He is adding an anti-convulsant medication, decreasing the doseage of my topirimate, trying me on yet another migraine treatment, has ordered a new MRI of my brain, and is sending me to a new neurosurgeon. *long gasp of air* he is also trying to get me a new neck brace, since the one I have puts me in more pain than I was in before I put it on. When he dis his exam, he noticed I have a lot of weakness in the left side of my body, mostly upper, and that could be caused by the seizures but we just don't know right now.

04/29/2021

CRPS is constant

Made some peanut butter fudge.. usually as soon as Thanksgiving was over I would turn into a baking fool. There would be...
12/13/2020

Made some peanut butter fudge.. usually as soon as Thanksgiving was over I would turn into a baking fool. There would be an overload of goodies, and I loved (still do) giving them out to my loves.. now I am lucky to cook a meal.
Embracing my good days.

12/11/2020

Been going on a several day flare, feels like weeks! Not steady on my feet, migrane at a constant 9, a lot of pain, chiari/syrinx pain & pressure, chest pain (had them before) and stomach issues. Throw in a seizure a day (or more) and well, thats just the cherry on top.

To make it EVEN better, the guilt of not getting things done around the house... as a chronically ill person, I feel guilty all the time.
Guilty for not being able to hold a job.
Guilty for not being able to drive.
Guilty because I can't help out like I want to.
Guilty because being ill makes me unreliable.
Guilty because I am not a good girl friend, friend, daughter, granddaughter, insert relationship here.
It also makes me feel hurt, sad, angry, and at sometimes hopeless... because I will never get back everything this life of chronic illness has taken from me. I look back to even 2 years ago and remember the energy I had, not as much pain, and the ability to bounce back quicker. It honestly makes me fearful what 2 years down the road will look like.

12/04/2020

Had my upper and lower GI today, everything went well.. My EOE is still as unhappy as ever, and the Dr. had to dilate my esophagus. My bowels looked good for as far as they could get with my other conditions. I'm guessing since they couldn't get the scope through my bowel that may be the issue with some of my stomach woes..

07/13/2020

I know you mean well but..,

07/02/2020

I am not too fond of advice on how to manage my when the person doesn't have chronic pain and Also has no idea ALL the things I do to cope. Not cool

07/02/2020

Imagine waking up every day not sure 🤔

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11472 Copperhead Road
Bloomfield, IA
52536

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