01/05/2026
Rayne has always wanted to travel the country see the national parks and cities. She was super excited that she'd get to do that when she was older. She was always a social outdoorsy sporty kid, but when the tumor happened its like it simplified her she didnt want for things like she used to took her back when she was a toddler in essence but her maturity was still there.
Now that she's gotten older those wants that need to be independent of us has comeback with a vengeance and the dissapointment/anger thats goes with it because she knows she won't get to is hard for her.
So we were initially excited when we learned rayne qualified for a wish from make a wish. We knew itd be different for her because she wasnt exactly a little kid with simple wants. Her is a bit more complicated. But we were still hopeful she could get something or go somewhere or meet someone that she'd get her eek moment from. Shes not a squeeling little teen girl more serious even with her tbi.
The discoveratory interview of what she wanted told us she had really no desire to meet anyone really didnt interest her. She had only a few places she wanted to see. But she did want this certain camper so she could still get her own space and she could still see the country under supervision. The lady who helped us at first was awesome she took down the camper rayne had been looking at when we took her too camping world in poteau it was hard for us to look online cause of where we live with signal issues. She found her eek moment camper and we told the lady from make a wish what she wanted and where she wanted to go . The lady suggested a national parks pass which I thought was awesome. So we thought everything was great right? And we're excited she still get to travel somewhat she wanted.
Nope
They called back different woman few weeks later saying they couldn't do that big of a camper for her ( which i get it was pricey) .
But after she found another camper she liked just as much they told her we'll we can't do that one either all of you won't fit and we have to go with what our vendor has and they dont have anything close to that. No porch no loft no slide no music and it has a booth table nothing that she wanted other than its a camper.
Thats not a wish.
From what ive seen of wishes its supposed to be something that gives these kids something to look forward to or a one of a kind life experience. She will be so disappointed in this and I hate that look on her face when we can't get through the language barrier and I get her something she doesnt want. It hurts my heart.
I know its a silly thing to be sad over but when its her wish and she doesnt seem to be getting it because of all of the stipulations. Im frustrated I dont know what to do about it and she has soo many dissapointments already no getting to graduate, not getting to move away, not getting to move out, not getting to drive, or live on her own, she probably won't be able to hold a job.
I just dont know what to do about it. I could use some advice
