Rowan’s Spotlight

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Rowan’s Spotlight As she journeys through life with Crouzon’s Syndrome, Rowan begins a journey exploring children’

18/11/2021

2021-11

26/10/2021

October is National Bullying Prevention Month. Everyone can do something to help prevent bullying; individuals, schools, and communities each have an important role in promoting kindness, acceptance, and inclusion. Children with craniofacial conditions can be vulnerable to bullying because of the visibility of their facial appearance differences.

If you are looking for guidance, Boston Children's Hospital is hosting a free webinar, “Protecting your child from bullying: Answers for families” on Wednesday, October 27, 2021, at 1:00 p.m. You can register here: https://buff.ly/3pAtnMI..



























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Yeah, I had a great day at preschool!😎
06/10/2021

Yeah, I had a great day at preschool!😎

02/10/2021

Seven-year-old Jackson Bezzant sat alone eating breakfast one morning when three larger boys approached him. The three boys did not come with good intentions. They taunted and teased the younger boy.…

Rowan’s AMAZING ENT doc, Dr. Hartnick. We love this man and all he does for children and families.😊
14/09/2021

Rowan’s AMAZING ENT doc, Dr. Hartnick. We love this man and all he does for children and families.😊

A pediatric ENT surgeon provides overview of conditions when a trach would be considered: is it because the child would stop breathing altogether or because the

“I’m ready!!!”💗
06/09/2021

“I’m ready!!!”💗

06/09/2021
It’s been awhile but she’s baaack!!!😊💜
31/07/2021

It’s been awhile but she’s baaack!!!😊💜

28/02/2021

Here she is trying to lift Will. You can see the determination in her face. That’s our girl! Don’t ever let anything stand in your way of what you truly want. Reach for the stars! 🌟

20/02/2021

We care about rare. We support the work of the community! Please follow our partners and friends at National Organization for Rare Disorders to learn more about the conditions that are rare, too.

You can find all the ways they are spreading awareness this year at this webpage...
https://rarediseases.org/rare-disease-day/

Neurosurgery appt done. Back tomorrow to see Oral Maxillofacial Surgery.
18/02/2021

Neurosurgery appt done. Back tomorrow to see Oral Maxillofacial Surgery.

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