Remarkable Warrior Rinken

Remarkable Warrior Rinken One location for us to easily update our family and friends on Rinken. At 7 days old she had her first open heart surgery.

https://gofund.me/c8065130 *** Vemno:

Rinken was born 10/19/20 in Omaha, NE with Hypoplastic Left Heart Syndrome. She is awaiting her second one in the next few weeks.

10/17/2025

Night 3 Update:
We really need prayers for eating and drinking. We order food, take a few bites and are done. We had lots of testing done on the Liver today…..and 4 nasty pokes for blood. We are cuddled up for the night praying for eating lots of food tomorrow.

We love you all!

Rinken Updated:First of all, thank you all for the calls, texts, snaps, messages, rides and prayers. It takes a tribe an...
10/16/2025

Rinken Updated:
First of all, thank you all for the calls, texts, snaps, messages, rides and prayers. It takes a tribe and I’m so blessed by ours! We got settled in after our flight, iv, meds, and lab draws and fell asleep around 3am. We talked with her Doctor around 11. We are so blessed the doctor we will have this week is her Primary Care Doctor. She knows Rinken and it makes everything so much easier. Today has been a rest day. She’s (let’s get real we’ve) slept the majority of the day. Her cough is nasty and she just wants snuggles. Tomorrow we will start seeing all of her specialty doctors to make sure we leave no stone unturned.

Everyone keeps asking how they can help. Well we will more than likely be in the hospital a few more days. Sunday is her birthday and she was looking forward to having a big birthday party and celebrating her. That won’t happen now. So if you’d kindly send her a card in the mail to shower her with love it would me the world to me!!!

1344 3rd St - Brookings SD 57006 is our address.

Again. I can’t express how much easier this is when I have people like you in my corner!!!

I’ll update more tomorrow evening.

All out love!

Em and Rink

Rinken Update: Her appointment went really good. She has a condition called SAD: Specific Antibody Deficiency. With this...
10/14/2025

Rinken Update:

Her appointment went really good. She has a condition called SAD: Specific Antibody Deficiency. With this she will take an antibiotic 3 times a week for 2-3 years. He will continue to check in on her. It won’t be fully effective for about 3 months. We should know between 3-6 months If this is working / helping. If it doesn’t help then we will need to do infusions. So praying this is the answer!!

We are home sick today with a fever. Praying it’s short lived and no hospitalizations!!!

God is Good!

10/08/2025

Update: We are back in Brookings! Since she’s been fever free for over 24 hours as well as no throwing up. It has been decided that we need to see the Allergist to start our next process of healing Miss Rinken. We weren’t suppose see him until late November. I rescheduled and we will see him Thursday morning at 7:30 am! Please pray for us to have smooth time the next 36 hours and for finally some answered prayers!

Em and Rink

We arrived at the Sanford ER at 12 today. It’s been a long day. While we have been waiting to see the doctor…(twice in 6...
10/06/2025

We arrived at the Sanford ER at 12 today. It’s been a long day. While we have been waiting to see the doctor…(twice in 6 hours nurses 3 times total) I received a message from Rinken’s Allergy Doctor. She’s been diagnosed with SAD. Aka crappy immune system. We are awaiting going to the castle to start meds and or infusions to hopefully get going on the right track! This is a VERY shortened story but it tells the main parts. Currently she’s sitting at 99.9 temp and O2 is right at 89.

As always prayers are so welcomed !!!!!!

Hey Everyone! We are fundraising to go to Church Camp here in July!! We are raising money for registration fee's, transp...
04/25/2025

Hey Everyone! We are fundraising to go to Church Camp here in July!! We are raising money for registration fee's, transportation, food and canteen money while we are at Outlaw Ranch. Tickets are $20 each. Three payouts: $100 / $150 / $250. Drawing will be held as soon as all squares are full!
Venmo: CashApp: $eaj0384 Apple Pay
Thank you in advance for helping us get to camp!!!

Hey Everyone! I plan on being there the 11 and 12th!!! Please let me know if you can make it and I will get you in!!! I’...
04/07/2025

Hey Everyone! I plan on being there the 11 and 12th!!! Please let me know if you can make it and I will get you in!!! I’m so proud of this video, the people in it, the person who produced it and the meaning behind it!! Any questions please feel free to let me know!!!

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EXCITING NEWS!! Next weekend, April 11-13, you can see my award-winning documentary, Heart Sisters, in an actual cinema! These are private, invitation-only viewings but I, of course, can get you in. St. Michael Cinema has graciously donated one of their auditoriums so admission is *FREE*! All you need to do is:

1) Email heartsistersdocumentary@gmail.com (or message me personally).
2) Tell us which viewing you want to attend.
3) Tell us how many tickets you need and I will make sure you're on the list.

A Q&A with me and/or one of the families featured in Heart Sisters will follow all three viewings. We'd love to fill this 149-seat auditorium every time so please share this with anyone and everyone!

*** WINNER *** People's Choice Award (2025 Frozen River Festival – Winona, MN)

*** WINNER *** Best International Feature Documentary (2024 Docuworld Film Festival – London, UK)

*** WINNER *** Best Feature Documentary (2024 Interrobang Film Festival – Des Moines, IA)

SYNOPSIS: "Heart Sisters" tells the story of two girls, ages 6 and 2, from separate families who formed a close bond while living in a pediatric hospital as they both awaited life-saving heart transplants. Alongside their emotional journeys, this hour-long documentary takes viewers into the operating room and answers the question, "So, how exactly does a heart transplant happen?"

And just like that….we are back in the Castle. Rinken had a fever, started throwing up and another bloody stool. Her XRa...
02/02/2025

And just like that….we are back in the Castle. Rinken had a fever, started throwing up and another bloody stool. Her XRay shows pneumonia. Still waiting on labs….looks like we’re just need to stay put for the time being.

This sucks. It’s hard. But I’m strong and God has us. Prayers for us all.

They have also started her on fluids, Rocephin and O2…..thankfully she can still suck her thumb

tatus 10-7 — 10-42!!We are home………..long unknown road ahead of us but we are home!! Today Rinken had a tough tough day. ...
02/02/2025

tatus 10-7 — 10-42!!

We are home………..long unknown road ahead of us but we are home!!

Today Rinken had a tough tough day. Started off with an X-Ray at about 0630……and just went down hill from there….

Next up, Labs. Rinken has had an absolute bad time with labs her whole life. We have figured out that nitrous oxide works wonders for her, and everyone involved. We were told today that wasn’t an option. 6 pokes and 1.5 hours later they were able to finally get 10mls……not good at all!!!!!

I just get her settled down and back to normal and they come for another test. This one is to take photos every 10 minutes for one hour……I knew this wasn’t going to fly especially because of how her morning went…..

I spoke with the nurse who then had her P*P who agreed she needed something to calm her down. I’m so happy we have the team we have!!! It helped soooo much!!!

After the preliminary test results came back we got the clear to come home!!!! However we have a long long road ahead!

-Labs in one week
-Stool samples all week
-upcoming scans and testing
-upcoming scope: upper and lower.
-waiting on about 15ish lab results to come in

We have come so far in the last few days. Even though they were extremely scary, they have been so informative!!

So for now we wait, but we get to wait at home!! She’s been given zero restrictions, just lots of documentation and photos.

I can’t thank everyone enough for the visits, calls, messages, prayers and love. You help a mama have the strength!!

Gods got us!!!!

Until we know more……

Emily and Rinken

Address

Brookings, SD

Telephone

+16056958466

Website

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