Kase’s Krew

02/09/2026

We also have had a lot of people ask to be able to see the song/slideshow again. So for everyone who didn't get the chance to see it or if you just want to see it again. Here it is!

02/09/2026

We want to thank everyone who came to help us celebrate Kase's wonderful life on Saturday. It was an amazing and bitterly beautiful day, and I think it is exactly what Kase would have wanted. Kase was a very loved little boy and that was very obvious this weekend. So we would like to thank everyone who loved our boy so very much. He will be forever missed, but we will never stop saying his name.

If anyone has any other photos from Saturday, or any stories of Kase they would like to share we would love to hear them! We didn't want to stop the celebration for story time during the celebration but wanted to still give people the chance to share stories!

02/02/2026

Here is the information for Kase's celebration of life. Before he left us Kase helped us with some of the plans. He did not want this to be a sad event, In fact Kase wanted to be able to have a living funeral and be able to celebrate his life with all his family and friends. Things moved much more quickly than anyone was expecting and that wasn't able to happen but we can still do our best to honor his wishes.

He wanted this to be a party, so that is what we are going to do. With that being said we want people to come and have a good time while still being respectful to the environment. Try to find the line between fun and respect.

Kase's main request was that no one wears black. He wanted people to wear something that would put a smile on his face. Some examples would be Kase's Krew apparel, shirts with capybaras, minecraft, fortnite, spongebob, his favorite colors (orange and red), or his favorite outfit of all time (onesie pajamas). Wear whatever makes you think of Kase, just please no black. Jack and I will be wearing onesie pajamas so I promise you won't be out of place.

We will also be serving a very specific lunch menu, only Kase's favorite foods will be served. So please come and celebrate Kase and the wonderful human he was. We look forward to seeing everyone.

View Kase Michael Perdue's obituary, send flowers, find service dates, and sign the guestbook.

01/28/2026

6/20/2016-1/27/2026

We do not have the words right now. But from day one Kase's Krew has been by our side. So it is with the deepest sorrow that we announce that Kase has made it to heaven. He went peacefully last night, and his battle is finally over. He fought with a strength no 9 year old should have to possess. We will miss him with every ounce of our souls for our entire lives. We do not have all the details worked out yet but will announce when we know more. Thank you to everyone who has been by our sides during this journey, and hug your loved ones a little tighter today for us.

"Goodbye...? oh no, please, Can't we go back to page one and do it all over again?"
-Winnie-the-pooh

01/16/2026

To go along with our last update with have a couple requests.

Kase wants to travel, but comfort is something that is a priority to him. So in a perfect world we would love to get an old small drivable RV. It doesn't have to be pretty but needs to be reliable. If anyone happens to know anyone who has one to sell pretty cheap send them our way! Obviously, we don't have a huge budget to work with, the more we spend on the RV the less we have to spend on other activities. So with that being said, if someone has one they would let us borrow or rent we could do that too. Even a pull camper would be better than nothing so we can drive and stop when we need to. Our ultimate goal is to avoid airplanes if possible during this horrible flu season, while still letting Kase experience everything he can!

One last request, this one may be a hard one. If anyone out there happens to know a snow dance (is that a thing) we would appreciate you giving it your absolute all for us! Kase wants so badly to play in the snow. But of course Nebraska had other plans this year.

01/16/2026

Update on Kase

We don't really have much new to update. Kase had a new MRI done at the beginning of the week for his neurosurgeon to get another look and so we had an idea of how quickly everything is growing. Unfortunately, this showed very noticeable growth even just in two weeks since his last scan. The largest of the tumors is over the size of a lime at this point and there are multiple others.

Ultimately the surgeon gave us the choice. He could do surgery on the largest tumor. Which might give him more symptom free days, but won't extend his time left with us. But the tumor is up against so many critical areas in the brain that the surgery also runs the risk of many complications that could just as easily result in the time he has left being spent in rehab instead of enjoying his time. Or we can choose to do no surgery, and manage symptoms as they come and enjoy more days out of the hospital.

With no clear answer being the right choice and it being such a big decision, Jack and I decided it isn't right for us to make this call. So as delicately as we can we did decide to sit Kase down and explain the seriousness of the situation and give him the choice. This is obviously such a huge choice and situation for a 9 year old to make but if you have ever met Kase you know he wise beyond his years and can comprehend things most 9 years old wouldn't be able to. He is coping with the situation as well as you can expect anyone to at this point and is still choosing to make the most of everyday.

He has decided to not go with surgery. The recovery is a lot and he wants to enjoy as many hospital free days as he possibly can. He is in the process of making a list of places he wants to go and things he wants to see and do and that is how we will be spending the time we have left as a family.

So please keep our family in your prayers. Pray we get Kase to some cool new experiences with the good time we have left. Pray for comfort and limited symptoms as long as possible. And pray for snow!!!

As always we appreciate all the love and support we have and continue to receive. Every single person who has helped us in any way has been an incredible blessing to our family. We couldn't fight this fight alone, and thankfully we haven't had to.

12/30/2025

Time for an update on Kase.

First of we want to share all of the good news. Since Kase recovered from his surgery we have had a sense of normalcy we haven't had since this all began. Kase has been back in school, he's had friends over to play, he's been gaming as always. He's been happy and healthy all things considered.

We were gifted an absolutely wonderful experience from Tanganyika Wildlife park in Kansas where we were able to do meet and greets with some of Kase's favorite animals, including capybaras, penguins, and they even surprised us by letting us meet the baby hippo Mars, and feed and pet a rhino! It was incredible and we are so thankful for the opportunity.

We had a wonderful thanksgiving with all our family. And we had an amazing Christmas where the kids got absolutely spoiled rotten! We are thankful for all the support we have received this year, without it we would not have been able to make the memories we have and that is something we cannot thank everyone enough for.

Now we have an update on Kase's health. And unfortunately, it's not the update we want to share. On the 28th Kase started experiencing some numbness on the right side of his body. We took him into the ER in Kearney to have him evaluated, and they did an MRI. The MRI did show that there was regrowth, and swelling so they started him on a steroid and sent him home while we waited for our team in Omaha to review the scans. Yesterday we got a call that the tumor came back in the original location very quickly and very aggressively. It is already larger than his original tumor was. And not only that but it has also spread to multiple other locations in his brain. Due to the spread, it has now become inoperable and there is nothing more they can do for him. As of now the steroid has reduced the swelling and the numbness has resolved, and he is for the most part symptom free and happy. We will go to Omaha next Tuesday to have him evaluated one more time, and Jack and I will then meet with the palliative care team to help us get set up with hospice so we can keep him at home where he will hopefully be more comfortable. They can't give us a definitive timeline, but due to how aggressively it came back and the fact that there is now multiple tumors they are guessing between a few weeks and a couple months.

This is obviously devastating news for our family. And we absolutely understand that people want to support us and have a chance to see Kase. However, Jack and I do request that you let us spend this time together as a family. We do not want to offend anyone or come off rude, we absolutely could not have survived this long or be able to now consider Jack staying home with us during this time without the support we have received. But Kase is only 9, he understands as well as a child his age can, but we have not told him the severity of this last update. We do not want to scare him more than necessary. We are afraid if people start to flood in to visit him he will start to get concerned. So we hope everyone understands that we are just trying to protect him and our time as a family right now. And we kindly ask if you happen to see us out and about that nothing is mentioned to Kase and everything is as normal as possible. Again, we cannot thank everyone enough for the way you have surrounded us with love and support this past year. The toys and gifts for the kids have helped keep a smile on their faces during the hard times, the experiences we have been gifted helped create lasting memories, and the financial support not only helped us with bills while Jack had missed so much work, but has also given us the chance to take vacations and make so many other memories.

We will try to keep everyone updated as time goes on as best as we can.

11/24/2025

It has been such a long time since we have posted an update! Last we updated Kase had just been released from the hospital. Since then he has been doing great! He had a couple of weeks of some headaches and a slower than normal recovery but since then he has been doing amazing!

He has gone back to school, still has some activity restrictions but is otherwise back to his normal day to day routine. We had a wonderful Halloween, where he and his sister got wayyyy too much candy. Kase was a puffin this year and Whitney was a fire girl. They both also had a blast carving pumpkins, and Kase was especially proud of his among us pumpkin!!

He had a rapid MRI about a week ago to check and make sure everything is healing ok and looking good and it all looked great!!
He will have his next MRI in January.

The biggest news we have since our last update is the kids both got baptized today! Jack and I decided early on that when it came to the kids' faith it would be their choice. So we waited until they were old enough to decide for themselves and after attending an after school church program for the last couple years they both decided they wanted to be baptized. And they both are SO happy about it!!

Otherwise, life has regained as much normalcy as we get these days! Kase will restart his medications sometime this week and we will keep taking it day by day! As always, we thank everyone for all their love and support!

10/13/2025

We are breaking out of the hospital today! Kase’s surgery went well, they were able to remove the tumor again which is great! His recovery has been much slower this time around and he has been in quite a bit of pain. We are finally starting to get a hold on the pain now. He is having some struggle with his coordination on his right hand and struggling with getting the right words out at times. But both those things are slowly improving. He also lost some peripheral vision on his right side. We won’t know how much until he heals and we can do a vision test but they don’t expect it to be much of an issue since he is so young his brain will just learn to work around it.

Otherwise, not much to note. We are going to stay in Kearney for a couple days just to make sure everything is still going well before we head all he way home. But with all the extra time we were in the hospital this time we got his new shirts finished up and they are now available to order! Kase helped us design these shirts. The phrase on the back is a combination of his two favorite phrases that bring him comfort during this fight. And the new Kase’s Krew mascot is a picture of our dog that we unexpectedly lost earlier this year. I did draw it myself, and I am by no means an artist but it’s just silly enough to be cute we decided and Kase loves it. We tried to give everybody as many options as we could so hopefully there is something for everyone!

*little disclaimer, I have not ordered any of these for ourselves yet so I can’t speak to how well the design shows up on certain colors that we have chosen. So make sure you look at the front and back for your chosen color before you order to make sure you’re comfortable with how it looks!

Help Kase Kick Cancers Butt!. Kase is a 9 year old boy battling brain cancer. Up to this point he has undergone 3 brain surgeries and 2 rounds of radiation and continues...