04/21/2024
Edited further to add:
I'm going to think on this some more.
I'll follow up on the weekend.
Edited to add:
My main takeaway from this was that people still have an expectation of what Autism looks like. If your child doesn't match that expectation then their needs often get dismissed, invalidated, written off as poor behaviour. Especially our PDA kids.
I'm not suggesting that other Autistic kids have it easier. I know very well that they don't.
I know.
No matter your support needs, Autistic people do not have it easy.
These words share the perspective of a parent who is feeling it all today.
............
“If my child flapped his hands when he felt overwhelmed, would you like him more?
If my child flapped his hands when he felt backed into a corner, would you show him sympathy in place of contempt?
If my child rocked back and forth when his work is hard, would you modify his workload and coach him through the struggle?
If my child rocked back and forth when the playground was too noisy, would he receive support through that transition?
If my child flapped and rocked would you call him;
Insolent
Non compliant
Disobedient
Belligerent
Defiant?
Or would he finally earn adjectives like;
Struggling
Overwhelmed
Overstimulated
Anxious?
If he was Autistic in all the ways he’s ’supposed’ to be Autistic, would the Special Education Department reply to my emails? Would he still be punished for his behaviour in a moment of overwhelming? Would he still be forced to comply, over and over and over again?
But he doesn’t flap or rock or vocally stim.
He fights or he flights, and on days where just one more expectation feels crushing, he sometimes does both simultaneously.
He talks back and he disagrees, and subconsciously engages the part of his brain that is wired to protect him from threat at all costs.
Unfortunately for him, his brain is Autistic and can’t always distinguish if that threat is a lion or a line that he’s expected to stand in.
If my child flapped,
If my child rocked,
Would my child be worth helping?”
🌈🌈🌈🌈🌈🌈🌈🌈🌈🌈🌈🌈
This profound collection of words is part of a longer piece that someone sent to me in my DMs (requesting to remain anonymous).
It feels so relevant, especially for our PDAers.
It reminds me of Ross Greene’s work where he talks about ‘lucky’ and ‘unlucky’ behaviours.
Our PDA kids often exhibit ‘unlucky’ behaviours that often result in adults being angry rather than empathetic, judgemental rather than curious. Our kids get heavier behaviour plans, bigger consequences.
I hope we are sorting it out.
Understanding is the first step.
Yes?
Em 🌈