Surviving Scleroderma; Adriana's Journey

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Surviving Scleroderma; Adriana's Journey

This page is dedicated to bringing awareness to the monstrous autoimmune disease currently affecting my life, known as Scleroderma.

Thank you for joining me as I document my life, health, and journey along the way.

01/08/2024

Thank you for visiting our page! We're fundraising for a cause that's very important to us - finding a cure for scleroderma. Register, donate and walk with us on August 6 in Waubonsie Lake Park in Aurora. We'd love to see you there!

29/06/2024

🦋 We got this 👊🏼

15/08/2023

Endoscopy time 🙏🏼

05/01/2022

Hello 🌍, I’m sorry for not keeping everyone updated on my recovery. So far, things have been ok. I was put back on Cellcept for a few months because my rheumatologist thought I relapsed since I started showing signs of skin tightening on both arms. However, it appears to have stopped. My skin score everywhere else has improved!!! 🙌🏼. I am still trying to adjust to my new norm, and enjoying my family and friends as much as possible! Stay safe, and healthy……

27/07/2021

It’s been a long, not so easy journey!!! Full of struggles, emotions, anxiety, depression, sadness…. But, I am here!!!! Strong, positive, and full of faith…. Happy Rebirthday to me 07/27/2020 ❤️🦋🙏🏼🙌🏼

14/07/2021

Hello 🌎,

Today, last year I had my line put in! I clearly remember the pain and discomfort 😔 I would do all over again 🦋 Duke gave me a second chance at life ❤️ thank you all for all the support 🙏🏼

21/05/2021

Hello everyone! I am sorry I haven’t posted in a long time... I have been trying to focus on healing, getting stronger, and healthier. I can’t say it has been easy because it hasn’t. I suffer with anxiety, and sometimes feel depressed! Having a transplant is super harsh on your body, soul, and mind.... I continue to stay optimistic.....

21/10/2020

Hi 🌎

I know I haven’t been on here for some time now. Things have been very difficult for me these past few weeks. I was admitted into the hospital the day after I was given the shots because I developed a fever. The fever lasted 5 days. I was finally discharged 9 days later with extreme joint pain. Doctors indicated the pain would last a week or two (Side effect of the shot). However, it’s been way over 2 weeks and I am barely feeling less pain. I don’t wish this pain on anyone.. It truly has been the scariest time in my life. A lot of things start to run through your mind “Am I going to get better, worse?!?!?!?!” I have an appointment with Duke in two weeks. Hopefully they can shed some light 🦋

I hope everyone is well. I love you all ♥️ Thank you for the support, for the calls, and text messages. Keeps me feeling alive 🦋

25/09/2020

Hi 🌎

Sorry I haven’t been posting. I haven’t been feeling well. My WBC has gone down to 1.0. I’m at the hospital getting more blood work done, and getting a shot that will help boost 🤦🏻‍♀️ the WBC count. 🦋🙏🏼

10/09/2020

Finally home ♥️

04/09/2020

Therapeutic 🦋

Address

1040 N Lake Shore Dr

60611

Website

https://survivingscleroderma.wixsite.com/adriana2

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Life After Diagnosis

I am one of many faces of Scleroderma. Prior to being diagnosed, I experienced a sudden onset of rapidly progressing symptoms. I began to experience swelling in my hands and feet, rapid heart rate, shortness of breath. My feet began turning purple. The skin on my hands and lower legs began tightening. Joint stiffness overtook my body. Swelling in my feet was so severe that I could barely walk. Emotionally, I felt fear and worry. I consulted with many doctors, trying to find answers as to what was happening to me. I have been misdiagnosed twice, mistakenly as Lyme disease and Rheumatoid arthritis. I was medicated for incorrect diseases, whereas my true condition was progressing and still not properly identified.

I struggle every single day with the emotional, psychological, and physical trauma that my body endures. The simplest tasks are debilitating and require a lot of energy that even standing and walking is difficult to do. There are days that I wake up so stiff, that I cannot move. I live in chronic, constant pain. I depend on seven daily medications to function. I have already lost a lot of my hair and am expected to loose the rest of my hair with treatment. I have lost over 30 pounds unwillingly. I can not be outside in cold temperatures because I now suffer with Raynaud’s Syndrome. I occasionally get ulcers on my fingers and the pain is unbearable.

After becoming ill, a lot of things changed. I CHANGED! I had to quit my second job, however am still working full-time. My frequent visits to the gym came to a complete halt. Spending time with friends became an obstacle. All the things I enjoyed, I can no longer do. I have always been a fun, outgoing, active person; that is no longer me. This disease has taken over me physically, and at times it tries to steal my spirit, but I fight hard to remain optimistic.

I live with pain every day of my life; however, I try my hardest to deal with it and keep pushing forward. I know I won’t ever be normal again, but I try my hardest to live a normal life. I am optimistic, positive, and have faith that I will be okay in the long run. Plus, the support I receive from my family has been so uplifting. I can truly say, Family is everything!