Please visit paypal.com enter paintedraven1@aol.com if you would like to make a donation At four months old she had a trach inserted. God Bless
This has been such a long road for Haley It started back in Nov 97 when Haley was born 15 weeks premature. Her first surgery was in August 1999 and it has been at least twice a year almost every year since. Her journey began after many unsuccessful attempts to remove her from the ventilator in the weeks after her very early and unexpected arrival. Her airway was very damaged from repeatedly reinserting the ET tube into her airway. Many ENT Doctors looked at her in the months before her first trip to Chicago, but no one was willing to take the risk of treating her because the damage and scarring to her airway was so severe. Her pulmonologist in Reno made many calls before she found a wonderful Dr at Childrens Hospital in Chicago that was willing to assess her and work to make her better. Haley has had 30+ surgeries since this all started. Broncoscopies, four reconstructions, Trach removal at four years old, stents inserted to keep the grafts from collapsing, lazer scar removals. The list goes on and on. The last three years have been the hardest on her by far. Just when we thought we were seeing the light at the end of the tunnel...the tunnel caved in. A problem with severe scarring after a vocal chord revision left her unable to draw a decent breath and her trach had to be put in All the things that had been fixed in 2012 and early 2013 now have to be done again...but only after the reflux that is causing the severe scarring has been resolved. Her insurance only covers 50% of her procedure costs and none of her travel costs. Any help that you can find in your heart to give would be greatly appreciated. All funds will be used for Haleys travel to Chicago and to offset procedure costs. Donations can be made through PAYPAL to paintedraven1@aol.com. Thank-You from the bottom of my heart for taking an interest in Haleys journey. You're love and prayers are greatly needed and appreciaited.
25/07/2018
Broncoscopy today. Maybe getting her stoma stitched closed. Procedure has been delayed an hour. But...it could be worse.
24/03/2018
Thank You to a couple of great guys for your gifts to Haley. She is so very grateful for your love and support. Steve Zinn...Thomas Payne Jr. THANK YOU from the bottom of my heart.
15/03/2018
She is doing great. Happy happy happy that the trach is gone. I wish there were something I could do to jumpstart this next journey for her.
14/03/2018
Sorry about the daley in updating..
But Daddy needed to be the first person to know....
THE TRACH IS GONE
12/03/2018
Off to Chicago for what we hope is Haleys final surgery. Its been a very long journey. It all began when she was 15 weeks old. Keep her in your prayers please
03/01/2018
We are in Pre-op. Surgery is scheduled for 10am. She isn't ready to shed the coat just yet🤣🤣
02/01/2018
Clinic went very well. Based just on what Dr Thompson saw this morning...we are very very close to getting her trach out. Possibly tomorrow...but the area that was lazered 4 weeks ago is not fully healed...so its more probable it will happen next trip. It all hinges on what Dr Thompson sees in the OR tomorrow. Fingers and toes crossed
02/01/2018
Clinic time. Praying for some awesome news today. And YES....its VERY COLD in Chicago this morning 🤣
Be the first to know and let us send you an email when Help for Haley posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.
