The TBCK Foundation

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Chicago, IL
The TBCK Foundation

We are a non-profit dedicated to advancing research, advocacy, and education for TBCK Syndrome.

12/27/2025

✨ Two important dates. One powerful community.
🦓 February 1 – TBCK Awareness Day
💙 February 28 – Rare Disease Day
Help us spread awareness for those living with rare diseases.

12/26/2025

Today we honor Ethan, a true TBCK warrior snowflake whose time with us was far too short, but whose impact will last forever. Though TBCK took him too soon, Ethan’s spirit lives on, rooted deeply into the hearts of his family and all who were lucky enough to know him.

Ethan’s story is one of strength, joy, and inspiration. Despite every obstacle placed in his path, he experienced the world in ways that many only dream of. Traveling, exploring, and showing everyone around him what it truly means to live fully. He reminded us that limitations do not define a life; love, courage, and determination do. ❄️🤍

12/25/2025

To every TBCK warrior, caregiver, sibling, and supporter—thank you for being part of this incredible community. Your love and advocacy make the season brighter ✨💗

12/25/2025

During this holiday season, we pause to remember our TBCK Angel Warriors. The beautiful children who are no longer with us, but whose light continues to shine so brightly.

As lights twinkle and candles glow, we hold close the families who have lost their warriors far too soon. Please know that you are not forgotten. You are in our hearts and in our thoughts, today and always.

We believe these precious warriors are watching over our community, guiding us, and reminding us of the love that will never fade. Their impact is forever woven into the heart of TBCK, and their presence is felt in every step we take forward together.

To our TBCK families who are carrying extra weight this season—we see you, we remember your warriors, and we stand beside you.

Forever loved. Forever missed. Forever our warriors. 🤍🕊️

12/25/2025

Wishing our TBCK community a season filled with joy, love, and hope.
Thank you for standing with us, supporting our warriors, and believing in a brighter future for every rare snowflake. Together, we carry hope into the New Year. 💙
With love,
The TBCK Foundation

12/24/2025

Meet our TBCK Snowflake Warrior, Susie ❄️

Beautiful. Smart. Unstoppable. Purposeful.
Susie radiates joy, strength, and determination in the most heart-warming way. Her sweet smile and bright spirit remind us that even the smallest warriors can make the biggest impact. Every day, Susie shows us what it truly means to be a fighter! Full of love, resilience, and purpose.

12/23/2025

Strong. Resilient. Brave. Determined.
These words don’t just describe Alejandro, he lives them every single day.

Alejandro’s strength shines through in ways that inspire everyone around him. His resilience in the face of challenges and his determination remind us what it truly means to be a TBCK warrior. He is proof that even in the hardest moments, courage and perseverance can shine brightly.

We are so proud to celebrate Alejandro and honor his journey. He is deeply loved, fiercely strong, and an important part of our TBCK community.

12/23/2025

The holidays are a time for joy, togetherness, and making memories ✨
Let’s also remember to protect our most vulnerable. Simple choices—washing hands, staying home if sick, masking when needed—can make a big difference for our TBCK warriors and their families. 💙
Because keeping each other healthy is one of the greatest gifts we can give.

12/23/2025

Meet our TBCK Warrior Snowflake, Sunny Beth ❄️💛

Sunny Beth is the perfect mix of strong, radiant, fearless, and silly, a little light that warms everyone around her. Her smile shines bright, her spirit is contagious, and her joy reminds us that even on the coldest days, there is so much warmth and love to be found.

12/21/2025

Meet Levi, our TBCK Warrior Snowflake ❄️
Levi is deeply loved, incredibly courageous, mighty, and warrior-hearted. His strength shines in ways both big and small, and he reminds us every day what true resilience looks like. We are so honored to celebrate Levi and the beautiful light he brings to our TBCK community. 💙💪

12/20/2025

Rare Disease Month is coming up, and we want YOU to help us decide what we create 💙🩷

Before we update our Bonfire shop, we’d love to know what kind of Rare Disease Month / TBCK merchandise you’d actually love to wear and use.

👇 Tell us in the comments:
• 👕 T-shirts
• 👚 Crewnecks or hoodies
• 🧢 Hats
• 👜 Totes
• 🍼 Kids / toddler options
• 💛 Bracelets or accessories

Your feedback helps us create items that support research and feel meaningful to our community. Thank you for being part of this journey 🤍

12/19/2025

Meet Marlie ❄️🩵
A beautiful, loving, hope-filled, one-of-a-kind TBCK warrior snowflake. Marlie’s smile and strength shine so brightly, reminding us every day just how powerful our warriors are. We are so honored to have sweet Marlie as part of our TBCK family. 🤍

Address

Chicago, IL

Telephone

+12699213455

Website

http://www.tbckfoundation.org/

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