The TBCK Foundation

The TBCK Foundation We are a non-profit dedicated to advancing research, advocacy, and education for TBCK Syndrome.

These faces are why we fight. 💜Our TBCK warriors deserve answers, treatments, and a future full of possibilities.We are ...
03/16/2026

These faces are why we fight. 💜
Our TBCK warriors deserve answers, treatments, and a future full of possibilities.
We are READY FOR RESEARCH.
Help us move science forward by giving $26 in 2026 to support TBCK research.

📲 Scan the QR code and donate today.

We reached our goal! 🎉$26,446 raised thanks to this amazing TBCK community. Your generosity brings hope to our warriors ...
03/11/2026

We reached our goal! 🎉
$26,446 raised thanks to this amazing TBCK community. Your generosity brings hope to our warriors and helps push research forward. Thank you for standing with rare families and making this possible. 💙🧬

Looking forward to hearing more and putting our plans into action! Come and Join our zoom meeting! Bring your ideas or ...
03/10/2026

Looking forward to hearing more and putting our plans into action!

Come and Join our zoom meeting! Bring your ideas or come hang out and prepare with us!

We are official registered for the parade!

En nuestra última reunión, tuvimos grandes ideas. ¡Estoy deseando saber más y poner en marcha nuestros planes!

¡Ven y únete a nuestra reunión de zoom! ¡Trae tus ideas o ven a pasar el rato y prepárate con nosotros!

¡Estamos oficialmente registrados para el desfile!

Join Zoom Meeting
https://us02web.zoom.us/j/84533843934

Meeting ID:

Thank you again for all who made it happen this past summer and Thank you for everyone’s support!

¡Gracias de nuevo por todos los que lo hicieron realidad el verano pasado y gracias por el apoyo de todos!

Give $26 in 2026 to support TBCK warriors. 💙Every donation helps fund research and bring hope to families around the wor...
03/10/2026

Give $26 in 2026 to support TBCK warriors. 💙
Every donation helps fund research and bring hope to families around the world.

To the strong, compassionate, and inspiring women in our TBCK community today we celebrate you. Happy Women’s Day!
03/08/2026

To the strong, compassionate, and inspiring women in our TBCK community today we celebrate you. Happy Women’s Day!

YESSSS 🙌💜 We are SO close!!Only $500 stands between us and our $26,000 goal 🎉 Every single dollar has been poured into h...
03/01/2026

YESSSS 🙌💜 We are SO close!!
Only $500 stands between us and our $26,000 goal 🎉 Every single dollar has been poured into hope, research, and support for our TBCK families.

Let’s finish this STRONG 💥
If you’ve been waiting for a sign to give… this is it.
Help us cross that finish line and make it official 🩷

Today on Rare Disease Day, we pause to honor our TBCK Angel Warriors. 🤍🦓Their lives were rare. Their impact is everlasti...
02/28/2026

Today on Rare Disease Day, we pause to honor our TBCK Angel Warriors. 🤍🦓
Their lives were rare. Their impact is everlasting.
They shaped this community in ways that will never fade.
To their families — we see you. We remember them. We carry them with us in every step forward.
Forever part of this foundation. Forever TBCK Strong.

02/28/2026

We love our TBCK researchers 💜🧬
You are turning science into hope and hope into possibility. Thank you for standing with our warriors.

Today is Rare Disease Day 💜🦓February 28, 2026TBCK is ultra-rare — but the needs are real.Therapies. Equipment. Research....
02/28/2026

Today is Rare Disease Day 💜🦓
February 28, 2026
TBCK is ultra-rare — but the needs are real.
Therapies. Equipment. Research. Support for families navigating the unknown.
Children like these warriors deserve access to care, hope, and a future filled with possibility.
If you’ve ever wondered how you can help… this is it.
Your donation today directly supports TBCK families and research efforts working toward better treatments.
Give. Share. Show your stripes. 🦓💙
Together, we make rare seen.

Today we SHOW OUR STRIPES 🦓💜Rare Disease Day is about more than awareness — it’s about stories, strength, and the warrio...
02/28/2026

Today we SHOW OUR STRIPES 🦓💜
Rare Disease Day is about more than awareness — it’s about stories, strength, and the warriors behind every diagnosis. TBCK may be ultra-rare, but our community is loud, proud, and full of resilience.
Every stripe has a story.
Every warrior has a voice.
And together, we make rare seen.
Join us. Share your stripes. Tag us. Let’s flood the feed with awareness today. 💚💙💛💗

🎉 TOMORROW is Rare Disease Day! 🎉On February 28th, we SHOW OUR STRIPES for the rare community 💙🦓TBCK may be ultra-rare, ...
02/27/2026

🎉 TOMORROW is Rare Disease Day! 🎉
On February 28th, we SHOW OUR STRIPES for the rare community 💙🦓
TBCK may be ultra-rare, but our warriors are fierce, strong, and impossible to ignore. Tomorrow we celebrate their courage, their progress, and the families who fight every single day.
Wear your stripes. Share their stories. Spread awareness.
Let’s flood feeds with love and support 💪✨

Address

Chicago, IL

Telephone

+12699213455

Website

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