Ileostohomie

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The official and only page of the OG Ileostohomie Allie
"Stoma Life" tattoo
Disabled Army Vet
ASD/NVLD/perm ileostomy/hEDS
Non BinaryšŸ³ļøā€āš§ļøšŸ³ļøā€šŸŒˆšŸ‡ŗšŸ‡¦āœŠšŸ¾šŸŸ¦
CHCN BSN '29 🩺 -> WOCN

I love Justin Bieber so copeSteven is doing MUCH better! I’ve been leak free since Saturday when I was able to use my co...
12/15/2025

I love Justin Bieber so cope

Steven is doing MUCH better! I’ve been leak free since Saturday when I was able to use my convex wafers! I took a shower with my system off and Steven is looking and feeling WORLDS better!!! First pic is from today, the rest are all comparison photos



12/13/2025

Steven is feeling so much better. Thank you to everyone who’s been super supportive and listened to my venting and whining the past few days. It’s nice to feel heard and understood, especially during times like thisšŸ’œ

A very big thank you to and FittleworthšŸ’œ

I’ve been fighting leaks for weeks now. I ran out of the bags for my soft convex wafers and have been using flat one pie...
12/12/2025

I’ve been fighting leaks for weeks now. I ran out of the bags for my soft convex wafers and have been using flat one piece bags. Barrier rings and all kinds of stoma powder and skin protection haven’t helped. Thank you so much to everybody who reached out with suggestions and support, and a very special thank you to for sending emergency suppliesšŸ’œ

It’s officially been 2 years since I started my Ileostohomie pages. From TikTok, to instagram, to Facebook, and now YouT...
12/09/2025

It’s officially been 2 years since I started my Ileostohomie pages. From TikTok, to instagram, to Facebook, and now YouTube.

I started ileostohomie for a few reasons. First being the name alone, the term ā€˜ostomate’ sounds like a geriatric dating service and it’s hard enough hearing everybody tell you that you’re too young for such a thing as a stoma. The mental aspect was hardest for me to grasp. The way my doctors and others around me kept talking, it was like I was supposed to be ashamed or embarrassed. I didn’t feel that until I let others convince me. Steven Universe Stoma is one of my best friends and I’ve always seen him as the thing that saved my life.

The main reason was my stoma nurse. She was so incredibly unhelpful she should be a politician. I had so many amazing ostohomies and forme ostohomies help me along my way that thankfully I ended up alright. Not everybody has that support system so I wanted to create one. Easy to access, easy to understand, free stoma education so nobody else has to spend six months sobbing in frustration over bag changes.

, one of my best friends and artist to most of my ink, helped create an actual brand for the community. ā€œStoma Lifeā€ has now been tattooed on at least six other ostohomies with more asking each day.

has been amazing with replacing the missing pieces in the best way: all the humor and none of the stress.

gave me the opportunity to work with them and spread more awareness for ostohomies all over the world

has given me the perfect opportunity to help ostohomies with daily struggles like noise and the discomfort of a stealth belt by making super easy to use and super comfy stoma noise canceling products!

Everything takes a village, and nobody should have to go though anything alone. Thank you to everybody who has followed along and been with me through the last two yearsšŸ„°šŸ’œ

11/23/2025

I really am feeling much better, sometimes everything needs to get shaken up for better things to come!

Healthcare workers can think whatever the f**k they want. Being in too much pain can cause heart issues, and I urge anyo...
11/22/2025

Healthcare workers can think whatever the f**k they want. Being in too much pain can cause heart issues, and I urge anyone experiencing this level of pain to go to ER or A&E, whatever your emergency room is called. I understand healthcare is expensive, and I know ER visits aren’t always covered. It’s a horrible situation to be in, and I’m sorry the system fails us at every single turn. I’m always here to be a listening ear to vent, cry, scream your way through recovery. We’re a community because if we don’t look out for each other, we simply won’t make it. I love yall deeply, and I’m always rooting for smooth and pain free recoveries for yallšŸ’œ

11/21/2025

Old video but alway happy to remind yall to not be as****es!

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Cincinnati, OH

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