Allies For Elijah

06/08/2022

Continued from below since my phone is acting up on FB-

We had our apt Monday with the new doc and Sunday night Elijah pulled his PiCC line out in the middle of the night. It was horrifying. Thankfully he is ok!
We arrived with plans to create a similar iv protocol that he was on but the docA-and God- had different plans. This new doctor didn’t want to continue iv treatment!

So now we are on a different plan and we pray daily for Gods guidance and that we are doing the best we can for Elijah.

06/08/2022

Hello everyone! I tried several times the last couple weeks in Florida to post but for some reason it would never go through. We arrived home this past week-fulfilling 13 wks of IV therapy for mold and Lyme.
Elijah responded the best to the mold medicine and has improved cognitively, a bit socially, but seizures still persist.

The Florida treatment did much for me emotionally and spiritually and I believe set us up with a better trajectory as a family as well as Elijah’s healing.

We would have stayed longer if funds permitted and we could figure out a feasible way to be together as a family but that’s not what God had planned.

We came home with a clinic apt here in Cincinnati

05/20/2022

Thank you to everyone who has sent letters, gift packages, and even the anonymous donor from 2 days ago. Words can’t say enough about the random acts of kindness from people I never expected anything from and even strangers that we simply drawn to Elijah’s smile. ❤️

This trip has been a huge lesson on what we are meant to do on Earth, in the name of Jesus- not only to spread love and kindness (Elijah’s got that down pat-he doesn’t stop going up to strangers to make a friend, pass out his artwork, or throw them a love symbol in the air and even a kiss ; ). But it’s more more than that-I’m realizing Jesus really truly wants us to help each other. Lend a hand to those in need, those struggling, those who most have forgotten about. I am realizing how important it is to give and be less self-serving.
There were so many times Elijah stopped adults to act out his favorite show and the people stopped what they were doing and gave their time and attention. That alone spreads happiness! It makes his day when you give him your undivided attention. No money or thing needed to give. :)

In todays world-where we are taught “you do you” and whatever “feels” right, I think we have forgotten the importance of selflessness-and truly putting others before yourself.

God even put in our lives an amazing family-the kind you strive to be like-God fearing people that really know what it means to live without in order to serve others. And would you believe they live in Ohio? God does really does work wonders ❤️ ⭐️

Thank you again to those who took a few minutes to send Eli notes, and the like, you know who you are ❤️ .I can’t wait to get home to delve deeper into the meaningful relationships and begin to give back to the universe ;)

04/15/2022

Elijah is doing great so far with treatment. We thank God that he is tolerating the antibiotics and his infection panel levels are decreasing. His energy is amazing and his brain fog is gone! He still has OCD and his obsession with drawing has not subsided quite yet but that all takes time with healing.

Jeremiah 29:11
“For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”

04/08/2022

Elijah has proved to be a complex case. All tests and PET scan show that our living arrangements while being stationed in Utah really effected Elijah’s health. He is high in petrochemicals, very high specifically DDT, which we think is linked to him repeatedly drinking from our sump pump water that looked like a faucet pumping out into the street. And was green. :/ he was 3 and thought it was hilarious.

Our neighborhood was one with bright green lawns and everyone routinely sprayed (except us). Our lot was lowest in neighborhood and everyone’s yard drained into ours. Making for the need of 2 sump pumps and a basement prone to floods and yes, mold. 😞

Elijah is high in multiple molds, the worst black mold stachybotris, and those were also found int the basement when we had it tested in 2015.
He then was bit by an insect (unknown), making him faint that same year, ending is up in the ER. We assume this is when he contracted the Lyme disease but it’s anyones guess when that was contracted. He’s been by by tics in the past as well but Lyme and coinfections is now known to be contracted through other insects as well 😳

So, here we are with multiple serious infections, all combined to be the cause of seizures. The doctor does call the black mold Elijahs “big daddy”. It suppresses the immune system in such a way that it can’t fight off all the other things his body was put up against.

Every day is different here during treatment . Some amazing days have happened with no brain fog, high energy, no seizures, etc.
but he also has had really difficult days with 5-6 grand mals during daytime, making him bedridden.

The doctor is tweaking treatment as we go to find the right balance for him.
We are concerned with the long road ahead since Elijah is so complex and there is a lot to work through to clean him up.

There are so many things off in Elijah’s body due to brain infection. One being, his growth hormone. He is at 100 and doc says he should be more at 460! He wants to do hormone therapy (exosomes) and that’s a hurdle we have to research and weigh benefit vs. risk. I’m learning a lot about where these human hormones are extracted from 🙃🧐😞 and it’s a bit hard to swallow.

I’m addition to all of this, the PET scan shows head injury and death of brain cells. From presumably multiple drop seizures where his head took the hit, and also possibly from a fall when he was 3 and he lost consciousness for about 1 min. The exosomes would drastically help heal the brain.

3 was a hard age for Elijah!!

Doc says our goal is to see drastic improvement in 3 weeks and if we don’t, then it will be a long road to recovery and we need to make decisions on if we want to continue in Florida.

03/26/2022

Elijah is doing wonderful after 3 weeks of treatment! He is even doing homeschool ❤️ please continue to prayer for his ability to tolerate treatment AND complete healing for Elijah!

03/21/2022

The nursing staff at our clinic are so amazing and really get to know the patients. They love Elijah and bought him a Star Wars travel case because of his love for everything Star Wars! ❤️ it’s takes a special person to be in the health and wellness industry, treating people like Elijah. Their hearts are so big!

03/20/2022

Jeff made it to the news for DIY Hero!

Dayton 24/7 Now provides local news, weather, sports, traffic and entertainment for Dayton and nearby towns and communities in the Miami Valley, including Dayton, Vandalia, Xenia, Centerville, New Lebanon, Miamisburg, Kettering, Trotwood, Englewood, Union, Fairborn, Brookville, Lewisburg, New Carlis...

03/20/2022

Jeff has entered a DIY Hero competition to help pay for Elijah’s Medical bills!
Please vote for him here DAILY to help him win $25,000!!

Will Jefferson Seguin be featured in Make Magazine, and take home $25,000 and the title of DIY Hero?

03/20/2022

I haven’t posted in a while but it’s time for an update!

Elijah’s health has waned the past two years. He’s lost weight, his speech is worse than when he was 6 (he is 10), he is now severely OCD, he’s having accidents, and the list goes on.
We are currently seeking Lyme Disease treatment in Florida and even though the family is separated, and money is beyond tight, we believe our trials and tribulations Will all be worth it!

Elijah the Prophet believed in prayer. not only did he pray to God but God answered! Our Elijah believes in prayer as well. He reminds us to pray before every meal and while in a restaurant, he reminds all around us to say their prayers as well ❤️ he has a bright light that shines and brightens a room ☀️ he makes people laugh and is always looking to make friends with those around him. Elijah is special and was made to do great things. This light will continue to shine!

Please send your prayers up for successful treatment for ultimate healing and growth!
I can’t wait to see what this boy does with his life and love for God! ☀️ ❤️ 🙏

05/10/2019

There were weeks when Eli couldn't walk let alone balance. And here he is on a uphill balance beam! I was so nervous today at field day because I remember those hard times. The days I thought he could never participate in something like this again.

He use to be in physical therapy 2x a week. I'll never forget the day I brought him in and his therapist was in shock at how all the sudden he was moving and playing like a typical 4 yr old. You see, as long as seizures occurred there was no improvement. The body can not work as intended if the brain is is disarray.

Once seizures we're gone, his body could function once again!
The therapist was only beginning in spreading the news that healing is the way to go, not
masking symptoms with medication.

05/10/2019

There were days, actually weeks, this little man couldn't walk by himself let alone in a straight line on a skinny ramp!

I use to take him to physical therapy twice a week to work on hand/eye coordination and balance. Now look at him!

He never advanced in therapy until seizures went away. Physical therapy has no effect of the brain isn't working right.

I remember the look on his therapist's face when she first saw him clear, without seizures, and able to play normally. She was in such and so enlightened. That was only the beginning of spreading knowledge of how healing is the key, not medicine.