Sage’s Journey with CHD

03/24/2026

Please anything helps this amazing family lane was like a nephew to us he will forever and always be so missed

Our sweet, precious baby Lane took his last breath March 23, 2026 at 2:12am. He was surrounded by love, listening so soft music in momma and daddy’s arms.

Our hearts are forever broken.
A piece of my soul left with his.

We ask for your prayers while we grieve as a family and finish planning the funeral. Details will be announced within the next day or so.

Local friends/family — We love you all and appreciate the offers to help, but we are not accepting visitors at this time.

For those who have graciously offered help, you can send DoorDash gift cards to WarriorsForLane@gmail.com

Donations to aide with funeral costs can be sent to Lane’s Venmo:

Lane-Landry (last 4 digits 7198)

THANK YOU ALL for loving our boy and being here for our journey. There are no words to express the gratitude.

Fly high little angel. Heaven is so lucky to have you.

We love you FOREVER 🖤🖤

03/17/2026

We had a cardiology appointment today and the news is promising. The stent is still in place, but there are signs that he's thriving and outgrowing it, which is a testament to his improved nutrition and overall growth. We'll follow up in September to track his progress.

02/26/2026

Life is a beautiful, chaotic, exhausting whirlwind lately. 💙

Raising four boys is already a full contact sport, but navigating life with two medically complex warriors alongside two "typical" older brothers is a journey I never expected, but one I’m so proud to be on.

It’s a world of:

High Stakes: Balancing therapy appointments and specialist visits with soccer games and homework.

Deep Strength: Watching my younger two fight battles most adults never face, while my older two step up with more empathy and patience than I ever thought possible.

Total Chaos: The house is never quiet, the coffee is always cold, and my heart is constantly oscillating between "I can't do this" and "Look at what we just overcame."

Some days the weight of the medical gear and the "what-ifs" feels heavy. But then I see all four of them laughing together, and I’m reminded that we aren't just surviving—we’re building a bond that is unbreakable.

To my fellow parents in the trenches of both the "normal" and the "complex" I see you. It’s hard, it’s amazing, and it’s the greatest honor of my life.

02/23/2026

Autism is not a tragedy.
Silence is.

Autism is not something to fix.
It’s something to understand.

For too long, the world has asked autistic individuals to shrink themselves to fit into spaces never designed for them. To mask. To mimic. To endure. To apologize for the way their brain naturally works.

What if instead, we built spaces that fit them?

Autism is not a lack.
It’s a different language.

Eye contact doesn’t equal respect.
Silence doesn’t equal ignorance.
Stimming isn’t “misbehavior.”
It’s regulation.

Inclusion is not inviting someone into a room and expecting them to act like everyone else. Inclusion is changing the room.

Advocacy isn’t loud for attention.
It’s loud because someone has to be.

Autistic voices deserve to lead conversations about autism. Not be spoken over. Not be softened. Not be edited into something more “comfortable.”

Different doesn’t mean broken.
Support doesn’t mean shame.
Accommodation isn’t special treatment.
It’s equity.

And here’s the truth that makes people uncomfortable:

The real deficit isn’t in autistic people.
It’s in a society that refuses to adapt.

Believe behaviors are communication.
Believe that sensory overload is real.
Believe that joy can look different.
Believe that brilliance doesn’t always look typical.

Stop asking them to “act normal.”
Start asking how to make the world safer.

Autism is not a burden.
The lack of understanding is.

We don’t need more awareness.
We need acceptance.
We need accessibility.
We need respect.

Nothing about them without them.

And if advocacy makes you uncomfortable?
Good.

Growth usually does.

Sage’s journey with CHD

02/21/2026

Still not much to update health wise with sage but wanted to share some cute photos of three out of four of the boys. 🥰 I hope everyone has an amazing weekend.

02/18/2026

02/17/2026

They say parents are supposed to be the teachers, but lately, I’ve been the student.

At just three years old, my child has a "to-do" list that would exhaust most adults. Between the appointments, the therapies, the monitors, and the hurdles most people never see, their days are heavy. But their spirit? That stays light.

Here is what my medically complex warrior has taught me lately:

Joy is a choice, not a circumstance. Even on the days involving poked skin or long waits in sterile rooms, they find the one sticker, the one song, or the one shaft of sunlight that makes them giggle.

Progress isn't a race. We’ve learned that "inchstones" are just as holy as milestones. Watching them fight for a new skill reminds me that the effort is just as beautiful as the result.

Strength doesn't always look like "toughness." Sometimes, strength looks like bravery in a hospital gown or the quiet determination to keep trying when things are physically hard.

Being a parent in the medical complexity world is a journey I never expected, but I wouldn't trade the perspective it’s given me for anything. My kid doesn't just "cope"—they thrive, they love, and they remind me every single morning that we are capable of so much more than we think.

To my tiny hero: Thank you for choosing me to walk this path with you. I’m forever in awe

02/16/2026

It would be truly remarkable if sages' amazing followers could collaborate to provide this amazing family with a few meals to give a smoother transition home with their newborn as she recovers from a cesarean and a scary after birth.

This meal train is made for my best friend Megan hope after she just welcomed her rainbow baby into this world after losing her son 2 years ago to Congenital heart defects and is recovering from her cesarean please help this amazing family

02/12/2026

We need prayers for one of my best friends new baby after losing her son 2 years ago this is the absolute last thing she needs to be going through. I’m not giving details but she could really use the prayers and good vibes anything you believe. Megan Hope I love you so much girl I’m with you 100%

02/12/2026

Today’s warrior is Taytum’s Heart Journey another viral myocarditis warrior, this is her story.

Taytum’s Story
- Born healthy on October 4th 2022
- 9 days old spiked a fever ended up being admitted to hospital
- 3 days later everything had come back negative and thought we’d be going home
- Later that night we got admitted to the NICU because her heart rate was extremely high
- Ended up getting admitted to the CICU about 12 hours after being in the NICU because her heart couldn’t handle what was going on
- Ran more intensive blood cultures
- 16 days old finally found out she had the rhino/entervirus and it ended up in her blood stream and attacked her heart
- Was on Ecmo from October 23-31
- Got an LVAD at the end of November
- Waited status 1A from end of November 2022 to July 14th 2023
- After getting transplant remained in hospital until September 12th 2023 because of colds, throwing up, and needing a gtube
- Since coming home Taytum has gotten her gtube removed, become very independent and spunky. A lot of our friends say if we didn’t know her personally we’d never know she was probably the sickest kid they knew
- We are about almost 3 years post transplant and still putting up a good fight!

I have truly enjoyed sharing all the kids stories so far if anyone would like their child shared please reach out to me any kind of warrior is welcome

02/11/2026

Lilly’s Heart Journey is the viral myocarditis warrior today, we just recently connected but sage has followed her page for some time now. This is her story.

We thought we had a healthy baby girl named Lillian “Lilly.”

We brought her home, and everything seemed perfect—until she spiked a fever at just 6 days old while at the pediatrician for a routine weight check. We were told it was probably nothing, but to take her to the ER just to be safe.

It was not nothing.

That visit marked the beginning of an almost 7-month hospital stay.

We were flown to Children’s Hospital and admitted straight to the NICU. After a little over 24 hours, Lilly began needing oxygen and her heart rate climbed into the 300s. We were transferred to the CICU, where we met some of the most incredible people, and not long after, Lilly was placed on ECMO (life support).

At that point, we still had no answers. Then she tested positive for enterovirus.

Lilly wasn’t improving and could not tolerate coming off ECMO. Our only option was to place an LVAD and list her for a heart transplant. The surgeon who placed the LVAD told us her heart would never recover—nearly the entire left side was white with scar tissue.

Not long after, Lilly stopped tolerating the LVAD and required a second open-heart surgery to repair leaky valves. We didn’t know if she would survive. The surgeon told us they had never performed this type of surgery on a baby her age or size.

She made it through—but needed her LVAD connected to an ECMO setup while waiting for transplant.

Then, Lilly suffered a massive stroke, affecting the right side of her body. Shortly after, she needed a VP shunt placed for hydrocephalus—an especially terrifying surgery because she was on blood thinners.

That surgery became a turning point.

Lilly started to improve, and not long after, she received her gift of life. She was just 4 months old when she received her heart transplant. She did incredibly well, and when Lilly was 7 months old, we finally went home.

Because of her extremely complicated hospital stay, Lilly didn’t get the chance to play or reach milestones the way the LVAD was meant to allow.

Now, Lilly is almost 3 years old and will be 3 years post-transplant in September. Overall, she is doing absolutely amazing. The stroke has complicated things and still affects her, but she is starting to use the right side of her body more and more. She has come so far, and we are beyond proud of her.

Lilly has beaten so many odds. She is truly a miracle.

We still see many specialists and make frequent trips to Children’s Hospital. We recently had another admission due to a seizure, and Lilly may need another brain surgery to help control them. Doctors believe the seizures are related to her stroke.

This journey is far from over—but Lilly continues to fight, just like she always has. 🤍