Sage’s Journey with CHD

Sage’s Journey with CHD CHD warrior, CKD 3b warrior 💙❤️💚

Three candles for our sweet boy! We are overjoyed to be celebrating his 3rd Birthday today.Knowing the journey he's been...
11/30/2025

Three candles for our sweet boy! We are overjoyed to be celebrating his 3rd Birthday today.

Knowing the journey he's been on with his health, every day is a gift, and watching him turn three feels like a massive, beautiful victory. He is full of mischief, laughter, and an absolute zest for life that is contagious. He might be small, but he is the strongest person we know!

Thank you to everyone who has supported us on this journey. But most of all, thank you to our son for showing us that pure joy can thrive even on the hardest days. Cheers to turning THREE!

Being a parent is a journey filled with unique challenges and immeasurable love. But for those of us raising a medical c...
11/28/2025

Being a parent is a journey filled with unique challenges and immeasurable love. But for those of us raising a medical child, that journey often comes with an extra layer of complexity, of exhaustion, and at times, profound loneliness.

We navigate a world of appointments, therapies, medications, and hospital stays. We become experts in medical jargon, advocates in crowded waiting rooms, and warriors fighting for the best care for our little ones. Our days are often dictated by schedules, symptoms, and the constant underlying hum of worry.

It's a beautiful, fierce love that drives us, but it can also be incredibly isolating. Friends might not understand the depth of the struggles, the fear that lingers, or the sheer weight of responsibility. Social gatherings can feel impossible, self-care a distant dream, and sometimes, even conversations feel strained because it's hard to explain what our lives are truly like.

To any parent out there feeling this way, please know you are not alone. Your strength, resilience, and unwavering love for your child are nothing short of heroic. It's okay to feel overwhelmed, to cry, to ask for help, and to sometimes just need a quiet moment to breathe.

Let's remember to be kind to ourselves and to each other. If you know a parent of a medical child, a simple check-in, a listening ear, or an offer of practical support can mean the world.

Sending so much love and solidarity to all the medical mamas and papas out there. You're doing an incredible job. ❤️

Happy thanksgiving we just did a small one at home with family.
11/28/2025

Happy thanksgiving we just did a small one at home with family.

Sage did amazing during his sleep study and didn’t come home on oxygen! We won’t have the official results until a few w...
11/14/2025

Sage did amazing during his sleep study and didn’t come home on oxygen! We won’t have the official results until a few weeks from now, but we're taking our win. I can’t believe Sage is going to be three years old in just two weeks; it will also be his third heartaversary. We have received some extremely cute cards already, and he loves putting them on his wall. Sage loves getting mail; it truly makes his day 🫶🏻.

On another note, Sage sees surgery Tuesday to finally get a G-tube site revision scheduled.

This evening is sages sleep study. Hopefully we do not come home on oxygen.
11/12/2025

This evening is sages sleep study. Hopefully we do not come home on oxygen.

11/01/2025

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