Side by Side Life Transitions

Side by Side Life Transitions Side by Side offers support for those caring for older adults who themselves are feeling frustrated and overwhelmed from "caregiver stress".

Side by Side provides support for those who are coping with "caregiver stress" and/or struggling with the increasing frailty of an older loved one. We are a resource to help individuals navigate through the emotional, moral and spiritual challenges that advanced aging often presents. Side by Side offers guidance and assistance with decisions regarding:


Assisting with advanced medical directives (living wills)

Deciding on appropriate living situations

Choosing palliative or hospice care

Coping with the dynamics of challenging family systems

Had the pleasure of being interviewed by Rabbi Richard Address for his Jewish Sacred Aging Project.Topic: Maintaining Sp...
05/29/2018

Had the pleasure of being interviewed by Rabbi Richard Address for his Jewish Sacred Aging Project.
Topic: Maintaining Spiritual Connections with People with Dementia

In this episode of the Seekers of Meaning Podcast, the guest is Rabbi Cary Kozberg, director of Side By Side, which offers support for families and caregivers of older adults who themselves are coping with "caregiver stress."

More houses of worship should be doing this!!!!
07/21/2017

More houses of worship should be doing this!!!!

"What I've learned is you never assume nobody's home," the minister said.

03/26/2017

Shavuot: Reviving Interest In A Forgotten Day By Focusing On Those Who Have Forgotten
Rabbi Cary Kozberg, BCC

Coming fifty days after the beginning of Passover and marking the appearance of the first fruits in the Land of Israel, Shavuot is one of five festivals whose observance is commanded in the Torah. Shifting from an agricultural focus to a more historical/spiritual emphasis, the ancient rabbinic Sages came to also understand Shavuot as the day when G-d gave the Torah at Sinai and thus gave it the additional name זמן מתן תורתינו - the time of the giving of the Torah. Indeed, for this reason alone it would appear that Shavuot should be considered the most important of all Jewish holidays. After all, without the Torah, there would be no Judaism; without Judaism, there would be no holidays - or any other observances and rituals for that matter. And yet, of all the five festivals mentioned in the Torah, Shavuot is arguably the most neglected among Jews in this country - certainly among the non-Orthodox.

Why has this day commemorating the most seminal event in Jewish history been so forgotten? Why this neglect? There are several possible reasons:

Observed for either one or two days, Shavuot doesn’t share the seven or eight-day observance period of its sister holidays, Passover and Sukkot. It’s here and gone practically before you know it.
In this country, Shavuot occurs toward the end of the school year and the beginning of summer: students are preparing to finish their studies and/or graduate, and folks are planning and preparing for vacation trips. Despite the 49 days between Passover and Shavuot deemed to be a period of spiritual enhancement and growth, it apparently is not the case that this period evokes the same spiritual solemnity among most American Jews as does the Rosh Hashanah and Yom Kippur season.
There are precious few ritual observances and religious objects that are specific to the observance of Shavuot. The שופר, apples and honey and new year’s cards are associated with the High Holiday season. Sukkot has the סכה and the לולב and אתרוג. Passover is observed throughout its seven or eight days by participating in a סדר, eating מצה, and refraining from eating חמץ. However, besides the tradition of eating dairy foods on the holiday (reminding us that the Torah nourishes our souls the way milk nourishes our bodies), the ritual object most associated with Shavuot is the Torah itself. While of prime importance in Jewish life, to be sure, the Torah is still an item that is associated with more “day-to-day” (routine?) Jewish living, and therefore does not necessarily evoke the same sense of anticipation that a once-a-year experience of hearing the שופר, spending time in a סכה, or attending a סדר might evoke.
That the day commemorating the giving of the Torah - THE formative event in the history the Jewish people - should be so neglected and forgotten by so many of us is at best puzzling and at worst a shame. However, in the spirit of “better to light one candle than to curse the darkness,” rather than add to the teeth-gnashing and handwringing, might our religious leaders try something a bit more creative, and a bit “out of the box?” Might we try to revive the significance of Shavuot in our collective Jewish memory, by associating it with helping those among us whose memories are failing? Might we better remember this holiday by helping our fellow Jews with dementia - those who can no longer remember so well—to stay connected to Yiddishkeit and the Torah by celebrating the holiday with them?
One might legitimately ask: Shavuot and Jews with dementia - can one think of a connection so incongruous and far-fetched? And yet, describing the experience of our people when G-d spoke at Sinai, our Tradition offers this:

“The voice of the Lord is powerful קל יי בכח; The voice of the Lord is stately קל יי בהדר… (Psalm 29:4) which, as Rabbi Hama bar Hanina explained, means that the voice of the Lord is powerful (בכח) for those who were young, and full of majesty (בהדר) for the aged. [Songs of Songs Rabbah, V, 16 (Soncino edition, p. 253)]

Rabbi Tanhuma said: ...Just see how the Voice went forth - coming to each Israelite with a force proportioned to his individual strength - to the old according to their strength, and to the young according to theirs… [Exodus Rabbah V, 9 (Soncino edition, p.87)]

During my 25+ years as a chaplain helping Jews with dementia stay connected to their Jewish heritage, I have relied on these two teachings as my “proof-texts” in advocating spiritual care for Jews with dementia that is substantive and ongoing. Affirming that EVERYONE - every Jew who ever lived and who ever would live - heard “the Voice” on that first Shavuot, these texts also affirm that EVERYONE - no matter their age or level of cognitive ability--responded to “the Voice” according to their strength. Even those with cognitive deficits could still hear “the Voice,” because when a person hears “the Voice,” it’s not just the Mind that hears…it’s also the Soul.

Indeed, many professionals who have worked with people coping with dementia will tell you: dementia may ravage the Mind, but it most certainly does not ravage the Spirit. On the contrary, it is often the case that as a person’s cognitive abilities and “filter” weaken, his/her spirit may become more vibrant, more alive-- more spontaneous. To be sure, the term “spirit” here is not synonymous with “religion,” nor does it necessarily refer to any articulation of religious beliefs. “Spirit” here refers to that which animates a person—what gives him/her joy, what helps him/her feel the capacity for loving and being loved. It refers to what nourishes the Soul.

That spiritual nourishment occurs when we help them maintain 1) relationships with loved ones and friends, and 2) a sustained connection to their culture/faith community. Both strengthen their sense of personal identity and worth, which is felt on a level that is not cognitive or intellectual. In other words, such efforts help people with dementia continue “to hear the Voice,” according to their individual strength. And, though the positive affect from such experiences may be sustained only for a brief time, nevertheless what occurs during those brief times is often an expression of a deeply felt spiritual vigor and enthusiasm, making the experience itself genuine and necessary for the total well-being of the person.

Moreover, while the commandment to honor the elderly “מפני שיבה תקום והדרת מפני זקן you shall rise before the aged and show deference to the aged…” (Leviticus 19:32) is often cited, the commandment that follows it “וכי יגור אתך גר בארצכם לא תונו אתו when a stranger resides among you, you shall not wrong him” (Leviticus 19:33) is also apropos in this context.

Rabbinic teaching assumes that because the Torah is from G-d, it is perfect: nothing in it - no letter, no word, no verse - is there accidentally, or was placed there haphazardly. From this assumption, therefore, we learn a subtle but very poignant lesson from the juxtaposition of the commandment to honor the elderly (Leviticus 19:32) and the commandment prohibiting mistreatment of the stranger (Leviticus 19:33): that we must take care not to treat the elderly of our community - many of them lifelong members of the community - as if they themselves were strangers.

Unfortunately, too often we do just that - especially if they have dementia. Even when we are diligent in addressing their physical and medical needs, there is often an accompanying ignorance - even a palpable discomfort and fear - when it comes to communicating with these individuals and being in their presence. Furthermore, our discomfort and fear often increases as their dementia progresses. In turn, we may well find ourselves finding all kinds of excuses to spend less time with them. Consequently, having little to no contact with people from the community itself (regardless of whether they’re being cared for at home or in a facility) they may very well be marginalized, disenfranchised and treated like a stranger by the very community to which they have always belonged - a clear “disconnect” from what the Torah teaches.

Moreover, this marginalization and disenfranchisement are exacerbated by the widespread assumption that people with deep cognitive impairment do not have spiritual needs, nor do they have a capacity to express their spirituality. As one man once said to me: “My father doesn’t know what day it is. How could he possibly care about Shabbat?” And yet that same “father” would routinely greet me on Friday afternoons before our Shabbat program with the words, “Rabbi, it’s time to talk to the Boss!”

That both of these commandments are found in Leviticus 19 - known as the “Holiness Code” --is perhaps no accident. Their juxtaposition is a powerful call to the Jewish community to remember how sacred this obligation to its senior members truly is: 1) to help them continue to feel that they are a cherished part of the community, and 2) to make sure that, even as their physical and medical needs are addressed, their emotional and spiritual needs will not be ignored or marginalized. Indeed, the sanctity of such efforts on behalf of those with dementia is brought into clearer focus in light of this teaching:

Be careful with an old man who has forgotten his knowledge through no fault of his own, for it was said: Both the whole tablets (the second set of the Ten Commandments) and the fragments of the tablets (which Moses shattered) were placed in the Ark. [Berakhot 8b]

On Shavuot the tablets that Moses would shatter first appeared whole. On Shavuot, the souls within those who eventually would forget also heard the Voice Who spoke what was on the Tablets, and they heard it, according to their individual strengths. Thus, what more appropriate time than on Shavuot to reach out to with Jews with dementia through programs such as these:

- Religious schools participating in holiday services with Jewish dementia residents in long-term care facilities.

- Confirmation classes of those religious schools spending time with these residents: asking them how they feel about the Torah and being Jewish, or reminiscing with them about memories of observing the holiday they might have.

- Synagogues devoting a portion of Shavuot holiday programming to educating congregants about dementia itself—the different diseases that cause it, how it affects a person and his/her family…and how to support those affected by it.

- Youth groups, men’s /women’s groups, and JCC senior programs bringing holiday greetings in person to every Jew in their respective communities who is struggling with dementia, whether being cared for at home or in a care facility.

Note: by engaging Jews with dementia in these ways, a person will be simultaneously: 1) celebrating the holiday 2) engaging in Torah study 3) showing deference to the elderly 4) not wronging them by treating them as strangers 5) restoring to them what they may have been lost by keeping them connected to their spiritual roots (cf. Deut. 22:13). In other words, one would not be “doing a mitzvah” - one would be doing five mitzvot—all at the same time!

On that first Shavuot, we all stood at Sinai as one community, hearing the Voice of G-d according to our individual abilities, but also pledging to do the Divine will in unison. In modern times that unity, like the first tablets, has been shattered; it sometimes seems that we have become, in the words of Rabbi AJ Heschel ז״ל, “messengers who have forgotten their message,” often forgetting the anniversary of our having received the message itself.

May this upcoming Shavuot - and those that follow - see a renewed effort on our part to remember the message by better remembering its anniversary. May we do this by helping those who struggle with forgetting to also remember. May we bring this holiday that has been marginalized back to its rightful place in contemporary Jewish life by bringing back those who we have been marginalized to their rightful place in our community.

On Shavuot, may we continue to hear the Voice according to our strength, precisely because we are helping others to hear the Voice according to their strength.

(This article appeared in the April 2017 issue of the newsletter of the National Assn. of Jewish Chaplains and will also appear in early April on the Jewish Sacred Aging website)

09/07/2016

Do you know what the "Golden Rule" is when it comes to loved ones impacted by Alzheimers or Dementia?

08/18/2016

How to slow down the progression of Dementia. Listen to an expert whose primary focus is on your well being.

06/02/2016

Chaplin Cary Kozberg is expert at working with the families whose loved ones have been afflicted with Alzheimers and Dementia. We sometimes forget that the families as well as the Care Givers need support as well. Give him a call. (614) 214.3954

05/25/2016

Had a wonderful opportunity to speak to the "Memory Matters" group of the Central Ohio Alzheimer's Association on "Maintaining Spiritual Connections with the Deeply Forgetful". Heard some very inspiring stories from many of the participants. I hope that the care facilities where many folks with dementia live begin to pay attention to the spiritual and RELATIONAL needs of their residents AND the residents families...

Unfortunately, my experience mirrors this author's.  As the Baby Boomer's age,there will be many more folks coping with ...
05/23/2016

Unfortunately, my experience mirrors this author's. As the Baby Boomer's age,there will be many more folks coping with Alzheimer's and other forms of dementia. We need to do some serious re-educating in our society: we need to get folks to understand that there is still a lot more to a person than just his/her mind. Their spirits and their souls are still very vibrant!

I learned this simple lesson over and over, there are a lot of people that believe when Alzheimer's strikes the situation is hopeless.

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