12/22/2025
While I was on the 7 hour flight home from the UK today I decided to *casually* work on these diagrams that I’ve been planning on making for quite some time now.
Eventually, these will be much larger and will actually become a series of 4 such diagrams of the hypermobile body made into a ZINE (that’s right, I’m still a punk at heart):
1. Non-Joint Issues Related to Impaired Collagen
2. Joint Issues Related to Impaired Collagen
3. Symptoms Head-To-Toe in the hEDS body
4. Physical Assessment in the hEDS body (not shown)
There is also an ongoing list of concurrent co-morbidities that are not directly or indirectly related to collagen impairment, which is incomplete and I’ve actually added to it even since working on it earlier today.
Feel free to shout out things I may have missed. I’m also proud to say as a provider that I’ve become fairly decent at working up, diagnosing and managing/referring for all of the things on the first page. I’m proud of that. Being an EDS clinician is hard, because it’s a messss.
But man. Can you believe this crap? Look at it all. How are we all still doing this, day in and day out? The list of things is honestly endless, and we’re discovering more connections everyday. It’s overwhelming, both as a patient that has it and a provider who treats it. I know this disease and the symptoms that come along with it are awful on their own, even without the endless invalidation often faced when trying to discuss them with clinicians. If you need help, it’s out there. We are here.
