Walking In Wynters Wonderland- Life With OFD14

11/04/2025

https://www.facebook.com/share/r/1ZYWc5qfNm/?mibextid=wwXIfr

09/05/2025

Ohio has been great to us! The Ronald mcdonald house is Absolutley the best out of the 3 we’ve been too. So much to do (and we can eat in our room! If you know you know)

The Pulmonary Doctor and The Plastic Surgeon had the best bed side manners. They explained everything so well that I had little to no questions! We come back in 3 months for a scope of all airways, a CT Scan, Botox saliva injections and a visit with Genetics. There looking to see about the possibility of tongue reconstruction or jaw surgery or even both. But, that would be known after that surgery they also would like to look at a sleep study after all of this.

So more fundraiser coming your way for travel. But, there very enthusiastic about being able to help her.

09/01/2025

2 days until we leave 😳 thank you so much for the shares and support!

Hi, my name is Kristen Lewis. And we are trying to raise funds for m… Kristen Lewis needs your support for Support Wynter's Path to a Ventilator-Free Life

08/24/2025

9 days until we head to children’s of Alabama for an appointment. We will stay the night and head to children’s of Cincinnati the next day. So excited and nervous to see what all the doctors say. Between the three teams. Praying for answers and an easy plan.

Hi, my name is Kristen Lewis. And we are trying to raise funds for m… Kristen Lewis needs your support for Support Wynter's Path to a Ventilator-Free Life

08/22/2025

Just Like that Tomorrow she is 6 years old. Time is flying by 😭😩❤️

Check out this Gift List I just created. https://www.amazon.com/registries/gl/guest-view/1UC3UZ2U3RR8H?ref_=cm_sw_r_apin_ggr-subnav-share_3KE8TC90VEKB4CS8A7ME&language=en-US

07/27/2025

26 days until Winnie is “6”
She loves cows, music, her Cocomelon laptop, remotes, phones, tablets, chip bags that haven’t been open. Pretty much anything that’s not a toy.

We decided to not do a big birthday this year because we have two big Medical trips. One to Ohio two weeks after her birthday. And then to Orlando for a week for intensive therapy in november. Not counting the week we have in Birmingham two days after we get back from Ohio. And whatever Ohio decides on us coming back.

So her birthday list this year will not be full of toys. But more things she needs along with some fun.

https://www.amazon.com/hz/wishlist/ls/2VD8IJPVA9ULK?ref_=wl_share

07/23/2025

I wanted to send a special thank you to everyone that has donated this far! Every cent is a blessing! We can now pay for one of the appointments and we have also started on the 2nd of the 3.

Sarah and Bobby Smith $200
Shannon $100
Denise and Chops Gay $100
Dixie Westbrook $25
Mallory Hayes $30
Jasmine Caldwell $10
Smantha Brasher $20
Jasmine Roberts $25
Lauren DeSantis $25
Alicia Rainer $25
Misti Staley (freeArm) $50
Thank you so much!

Hi, my name is Kristen Lewis. And we are trying to raise funds for m… Kristen Lewis needs your support for Support Wynter's Path to a Ventilator-Free Life

07/18/2025

Thank you for the donations this far! The balance for plastic surgery out of pocket is 451.35 after they gave a 433.65 discount we are waiting on the other two to come in but, it will be around the same. This is out of pocket but, it is needed!

Hi, my name is Kristen Lewis. And we are trying to raise funds for my y… Kristen Lewis needs your support for Support Wynter's Path to a Ventilator-Free Life

07/14/2025

Hello Family and Friends! We have recently been given an appointment with Children's of Cincinnati in Ohio. We will be seeing pulmonary, plastic surgery, and ENT specialists. This trip is over 10 hours away (without stops), so we will be staying up there the night before to make it to the appointments on time.

Our goal there is to get a game plan on surgeries to help get her off the ventilator and even her trach. We are told there is a possibility of jaw surgery, tongue surgery, and airway surgery. But we will know more after these three teams evaluate her.

We will be there at the very beginning of September. Anything and everything will help with travel expenses. Thank you and so much Love!

Hi, my name is Kristen Lewis. And we are trying to raise funds for my y… Kristen Lewis needs your support for Support Wynter's Path to a Ventilator-Free Life