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Nolan's Noggin News Nolan's Craniosynostosis Journey

It’s been a minute since I posted an update! My baby is in ✨KINDERGARTEN✨!!! So crazy to me. I swear, I was just holding...
13/08/2025

It’s been a minute since I posted an update!

My baby is in ✨KINDERGARTEN✨!!! So crazy to me. I swear, I was just holding him in the nicu. 🥺

He’s doing great, honestly! And he got a super cool new haircut for his first day! He specifically asked for one to show off his scar! 🥹 He makes me such a proud mom. I love his little heart and can’t wait to watch him excel in school!!

💜💜💜

Good luck to all the other little cranio warriors on their first days, too!!

Just a little update on our favorite cranio warrior 💜He’s doing great! He hasn’t had any head issues or concerns at all!...
18/10/2023

Just a little update on our favorite cranio warrior 💜

He’s doing great! He hasn’t had any head issues or concerns at all! He did have tubes put in his ears a few months ago and with cranio kiddos, they usually need a few sets before theirs grow properly.

He was pretty devastated when we cut his mullet off, but I think he looks adorable! He’s definitely still upset about it, so we will probably grow it back out again- just depends what he want!

He started baseball, too! So excited to watch how much he improves over this season and the ones to follow!

Nolan got to see his buddy, Grant Gilbert last night at Del Norte Tacos! We love DNT & we love Grant! Grant also gave Ja...
29/05/2023

Nolan got to see his buddy, Grant Gilbert last night at Del Norte Tacos! We love DNT & we love Grant! Grant also gave Jackson & Nolan guitar picks, so now we have two little boys begging for guitars. 🤣

On the way home, jackson told me that Grant is his new favorite- which says a ton, because HARDY & Casey Donahew were his precious favorites! 😅

Bidding ends tonight at 6:59:59! 🏃🏽‍♀️🏃🏽‍♀️
29/04/2023

Bidding ends tonight at 6:59:59! 🏃🏽‍♀️🏃🏽‍♀️

How cool are these?! 😍💜
23/04/2023

How cool are these?! 😍💜

Moo cows!!!
22/04/2023

Moo cows!!!

Just a little life update on our boy 💜He had a great Easter with all our different families! He was sooo excited to get ...
12/04/2023

Just a little life update on our boy 💜

He had a great Easter with all our different families! He was sooo excited to get a new doctor costume, he tells us he wants to be one when he gets bigger. (Wouldn’t it be so cool if he became a neuro surgeon when he grows up?!)

I also threw in his recent rodeo photos. He hasn’t ridden lately, but makes sure that we know he’s “SO CITED” to ride the sheep soon 🤣

Hope everybody has had a great Easter! 🤍✝️

We had our first post op appointment today with Dr Fearon and Dr Sacco (neurosurgeon) and Nolan is doing amazing!! His s...
08/02/2023

We had our first post op appointment today with Dr Fearon and Dr Sacco (neurosurgeon) and Nolan is doing amazing!! His scar looks great, with just a few scabs lingering where he sleeps on it. His head shape is doing perfect! He’s grown a centimeter around and it’s all in the places they are wanting.

Neurologically, he’s great! He’s actually ahead developmentally (they used a big word that I don’t even know how to pronounce, let alone spell).

We are SO dang proud of our sweet little cranio warrior.

Dr Fearon said that after his one year post op appointments, we should be able to go 3-4 years until his next follow up!!! So exciting that our little guy is FINALLY doing great and his personality is coming out so strong. He is such a sweet, happy little guy who talks non stop (gets it from his daddy lol). He even got the official okay for mutton bustin and rodeo! 🤠

Thank you so much to everybody who has followed along on our journey! Don’t worry, we aren’t going anywhere. I will keep updating everybody on his progress through the years. 💜

My sweet warrior is ready for school tomorrow! 💙Hope everybody had a great break and is ready to get back to normal!
09/01/2023

My sweet warrior is ready for school tomorrow! 💙

Hope everybody had a great break and is ready to get back to normal!

Christmas Eve 💜
29/12/2022

Christmas Eve 💜

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