FVL Awareness and Support Group

This page has been created in loving memory of my son, Atley Thomas, who passed at 36 weeks in utero on July 22, 2011. I was diagnosed with hetero FVL (Factor V Leiden) at 21 years old after suffering from a DVT and PE. I was put on anticoagulants(Coumadin) for a year. In Nov 2010 I became pregnant. I didn't know the dangers of carrying a child while having this deficiency and put my trust into an OB who I thought could handle my condition. He reassured me at every visit that he knew what he was doing. It wasn't until after losing my child I learned that absolutely nothing was done correctly to prevent the lose of my precious Atley. The only thing that was done was that I was put on Heperin injections every 12 hours. I have learned and researched so much in the past few days that I should have known before, while pregnant. I should have had excessive ultrasounds to make sure my baby was growing correctly and had the proper amount of blood flow. My uterus should have been checked and measured at every visit during my third trimester. (Dr. only even touched me one time, at 30 weeks) I should have had weekly appointments and I was only being seen every 2 weeks in my last trimester. I should have been on Lovenox until the last 2 weeks of pregnancy. I should have been scheduled to be induced at 38 weeks before the placenta begins to "age". If this had been done correctly, they would have discovered that my angel had stopped growing at 32 weeks. I have created this page because I want to help people and mothers that have gone through this same heartache. I want to raise awareness that this deficiency can be a lot more serious than people make it out to be. FVL is rarely even tested for unless there is a history of clotting, blood disorders, or it's specifically requested. Sometimes it can be too late. I want to be able to help raise funding for people who can't afford medicine for treatment. For the people and mothers who slip through the cracks and can't get Medicaid, Disability, or other assistance. There are all kinds of anticoagulants out there and none of them are cheap. I hope that this page can help with discussions, support, awareness and help to give strength and hope.

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