11/01/2025
🦈💛✨
This is the face of a little girl so excited to be able to trick or treat!!!
Noa had clinic early this morning and couldn’t have been happier when Dr B said “Go home and enjoy some candy!”
The nitty gritty of the appointment; Noa’s liver enzymes have continued to rise, however her care team is not concerned yet. We will just continue to monitor.
Noa’s ANC was also extremely high (4000) and they prefer to keep it between 700-1200 or close to. They have increased her dosages on her daily oral chemo and her Friday chemo to help lower her ANC and keep it where it needs to be. With increased dosages may come increased nausea, so we are awaiting that storm.
We also had some minor issues with her port this morning. It has apparently shifted some and tilted. Normally, not an issue, but if her port flips completely, she will need a port revision surgery. But that’s an issue we will come to if we need to.
For now we sit, we monitor, we pray cold and flu season stays very far away from us, and wait it out till our next appointment.
Noa’s next appointment is the day before Thanksgiving, and she’ll start Cycle 3, so that’s a lumbar puncture, port chemo, and a steroid pulse.
Noa’s IGG levels rose on their own but just barely. So there is a chance that she will also need an IVIG in November.
Until then, we’re going to count today as a win. Cancer didn’t steal another childhood regularity away from us today.
See a spooky shark, say a loving prayer 💛🦈
