ACPMP - Appendix Cancer / Pseudomyxoma Peritonei Research Foundation

04/30/2026

Last Friday, our Operations Manager Alyssa represented ACPMP at the Abdominal Cancers Alliance's Living Proof event in Baltimore, MD. Through performances and stories, this event highlighted the strength, resilience, and vibrant lives of those who have faced these rare and advanced cancers.

We were honored to bring Kyrah Ayers, an appendix cancer survivor and ACPMP volunteer, as a featured performer. Kyrah shared select poems from his book "12 Rounds: The Journey of Chemotherapy Told Through Poetry," a raw, powerful account of his chemotherapy journey told in verse.

ACPMP is proud to partner with the Abdominal Cancers Alliance. Together, we're building a community that supports, uplifts, and amplifies the voices of patients, survivors, and the broader community.

Find Kyrah's book of poetry here: https://www.amazon.com/12-Rounds-Journey-Chemotherapy-Through/dp/B0GVPW6VB8/ref=sr_1_1

04/29/2026

We've updated our free Appendix Cancer Patient Kit, and we want to make sure every patient and caregiver in our community has it. 🎗️

It's packed with resources to help you take the next step, wherever you are in your journey:

- Find a specialist near you
- Explore active clinical trials specific to appendix cancer/PMP
- Access educational guides and videos
- Join our IRB-approved Patient Registry/Natural History Study and help advance research

Download:https://acpmp.org/wp-content/uploads/2026/03/ACPMP-Appendix-Cancer-Patient-Kit.pdf

Know someone who needs this? Please share. 💛

04/22/2026

Twenty years ago, there was no global walk for appendix cancer. No annual rallying point for patients, caregivers, and survivors around the world.

There is now, because of partners like you.

The 20th Annual Appendix Cancer Global Walk is happening June 13-21, and we're looking for businesses and individuals who want to be part of this milestone. Walk events are taking place across the country, and participants can also join from wherever they are in the world.

Sponsoring the walk means your name and mission stand alongside 20 years of walking toward a cure for appendix cancer. Sponsorship dollars go toward appendix cancer research and education efforts for a rare cancer that is still on the rise and still urgently needs attention.

Sponsorship levels start at $250 and can be registered directly on our website. For levels above $2,500 or to build a custom partnership, reach out to us at walk@acpmp.org. We'd love to find the right fit for your organization.

Twenty years of making a difference. Help us make the next twenty even greater!

Register as a sponsor: https://secure.acpmp.org/event/the-20th-annual-appendix-cancer-global-walk/e760363
Custom levels: walk@acpmp.org

04/22/2026

Join our friends at Appendicure for a webinar tomorrow night, April 23rd at 4:30PM ET, titled "A New Yale Trial for High-Grade Appendiceal Cancer — GCA, Signet Ring & Adenocarcinoma With Peritoneal Metastasis" with Dr. Kiran Taruga.

Link to register: https://us06web.zoom.us/webinar/register/WN_yhOUf-V-Rdy7VxCP58HI2A

04/20/2026

Join our friends at Abdominal Cancers Alliance tomorrow, Tues April 21st at 12PM for their upcoming educational webinar: "Demystifying Ostomies: What Patients and Caregivers Need to Know."

They're creating a safe space to answer the questions many are afraid to ask and providing the practical tools you need to reclaim your confidence. See you there.

https://us06web.zoom.us/webinar/register/9017634063627/WN_BsPQn-_0QtSdfswaCsfFqw

Facing an ostomy during cancer treatment can feel like a daunting mystery—but you don’t have to navigate the unknown alone. 💡

Join the Abdominal Cancers Alliance for our upcoming educational webinar, Demystifying Ostomies: What Patients and Caregivers Need to Know. We’re creating a safe space to answer the questions many are afraid to ask and providing the practical tools you need to reclaim your confidence. 🎗️✨

What we’ll cover:
• The "Why": Understanding the medical necessity behind ostomies.
• Recovery: Real talk on what to expect after surgery.
• Daily Mastery: Expert tips on care, skin health, and nutrition. 🍎
• The Mindset: Strategies for emotional adjustment and living life to the fullest.

📅 Date: April 21, 2026
⏰ Time: 12:00 PM ET

👉 Empower your journey and save your spot here: https://us06web.zoom.us/webinar/register/9017634063627/WN_BsPQn-_0QtSdfswaCsfFqw

Self-advocacy starts with education. Register today—and please tag or share this with a fellow warrior or caregiver navigating colorectal or abdominal cancers. Let’s break the stigma together! 💪🧡

04/16/2026

Across the country and beyond, families and communities are coming together to walk, honor, remember, and raise awareness for appendix cancer.

This year, our State Walks will take place in:

📍 New York, NY
📍 Carmel, IN
📍 Pennsauken, NJ
📍 Winston-Salem, NC
📍 Bend, OR
📍 Media, PA
📍 Los Angeles, CA

Whether you're joining a State Walk or walking with a team in your neighborhood or park, you're part of something bigger.

Where will you be walking from this year?

Drop your city in the comments 👇

https://secure.acpmp.org/appendixcancerwalk2026

04/15/2026

Appendix cancer is rare. If you are living it, you know how complex it can be.

The ACPMP Patient Registry helps researchers better understand diagnosis patterns, treatment journeys, and long-term outcomes.

If you or a loved one has been diagnosed, consider joining. Your experience could help shape future breakthroughs.

https://acpmpregistry.iamrare.org/

04/07/2026

As a part of , we're sharing this recent article from UT MD Anderson Cancer Center featuring insights from Dr. John Paul Shen, a member of ACPMP’s Medical Advisory Board, and Dr. Beth Helmink, a 2026 ACPMP-funded clinical investigator award recipient. Their expertise highlights why appendix cancer is so difficult to diagnose and why continued education and research matter.

Read full article:

 Appendix cancer is now known to be distinct from colorectal cancer. But it can still be difficult to diagnose. Why? Gastrointestinal oncologists John Paul Shen, M.D. and Beth Melmink, M.D., weigh in.

04/03/2026

We're excited to join our friends at Abdominal Cancers Alliance On April 24th in Baltimore, MD for a special new event: "Living Proof: a Cabaret."

This event shines a light on abdominal cancer survivors and families. Their lived experience is the LIVING PROOF that we can live longer, better lives when we get to the specialized care we need! We hope you'll join us for this special new event and help us spread the word about these advanced cancers, like appendix cancer!
Join us for Living Proof!
📅 Friday, April 24, 2026
📍 Crown Hall at Guilford Hall Brewery in Baltimore, MD
🎟 Tickets and sponsorships are available now. Seats are limited, so reserve yours today and help us shine a light on the survivors who are the LIVING PROOF that thriving after abdominal cancer is possible.

Get your tickets here: https://www.abdominalcancers.org/living-proof

04/02/2026

20 Years of Making a Difference: Join the 2026 Appendix Cancer Global Walk.

Walk where you are or join a State Walk event! June 13-21, 2026.

Register today: secure.acpmp.org/appendixcancerwalk2026

03/31/2026

💡 Facing an ostomy during cancer treatment can feel overwhelming—but it doesn’t have to be a mystery.

Join the Abdominal Cancers Alliance for Demystifying Ostomies: What Patients and Caregivers Need to Know, an educational webinar designed to answer the questions many patients are afraid to ask.

Learn:
• Why ostomies are needed
• What recovery looks like after surgery
• How to manage ostomy care, skin health, and nutrition
• Tips for adjusting emotionally and living confidently

📅 April 21, 2026
⏰ 12:00 PM ET

👉 Save your spot: https://us06web.zoom.us/webinar/register/9017634063627/WN_BsPQn-_0QtSdfswaCsfFqw

✨ Register today—and tag or share with someone navigating colorectal or abdominal cancers who might find this helpful.

03/30/2026

Behind many research careers is a personal story.

In this article, a cancer survivor shares how being open about their diagnosis shaped their Ph.D. journey and their work in research.

It’s a thoughtful look at how lived experience can guide the work that helps patients and families.

Read the article:

“My personal story has become part of my identity as a scientist,” this researcher writes