01/08/2026
🔊Update: Just got a call from the clinic as we were finishing up here at the hospital ☎️ the MRI shows NO EVIDENCE OF DISEASE. 💙
I think that means we officially get to change Ian’s status to NED.
I won’t lie ❤️🩹 my heart absolutely tanked when I saw the clinic calling while we were still here. The only other time we’ve ever gotten a call like that was when the MRI radiologist contacted the clinic before he was even finished with the report to alert our doctor about how extreme and overwhelming the disease was in Ian’s abdomen.
So to get this call 📞while sitting here waiting around was the most incredible, unexpected, wonderful surprise.
Today feels lighter. Today feels hopeful. And today, we are incredibly grateful. 💙
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Today is what you might call Ian’s end-of-treatment scan day. 💙 We’ve had these before but because of other complications in the past they weren't really highlighted as such. Gotta celebrate some of the normal and more stable part of Ian’s journey.
An early morning start with a CT, followed by some sleepy milk for an MRI, and then waking this sleepy little guy up to finish with a PET scan.
Once again, he showed us just how much of a pro he is. For a 5½-year-old who has spent the majority of his life doing this, it’s become part of his everyday world, and that still amazes me.
Tomorrow we head back to meet with his Pediatric Oncologist, Dr. Kumar👩🔬, to go over results and talk through what the next steps look like. That includes starting conversations about transitioning primary care back to his amazing Primary Care Pediatrician, Dr. Traeger 👨🔬a big milestone we’ve been waiting for.
Dad came along today too, even after being up all night at work, because there’s nothing he loves more than being right there, playing with Ian in between scans. ❤️
I promise I’ll do better this time and update everyone after we talk with Dr. Kumar. Thank you all for continuing to love, support, and lift Ian up through every step of this journey.