Connor Moore's Story

Connor Moore’s Story

Connor was diagnosed the age of 7 1/2 with Epilepsy. He began having seizures out of nowhere in March 2017. He was diagnosed pretty quickly and was put on medications to help control the seizures. After trying single meds then meds paired with each other (5 total) his seizures were worsening and happening more and more often. After 1 year we decided to go for a second opinion from an Epilepsy specialist at LeBohneur Children’s hospital in Memphis, TN and that is where they began doing some very extenstive testing first beginning with an MRI (see in his pic above) then video EEG’s for a full 7 days, MEG testing, Language mapping, & neuropsychology testing. They found what would be a tumor or dysplasia. We were told that eventually he would need Brian surgery but they wanted us to try a new medicine before exploring the surgery option. still unsure if it was a tumor growing or not. However, we knew Brain surgery was coming. After being sent home with a better plan and new meds Connor’s seizures were then happening even more often. We made a call back to his specialist and we decided it was time to do even more testing and then surgery. He did a week of testing where they went in and did a Craniotomy Grid Placement. He was monitored by VEEG 24/7 for 1 week, MEG testing again, language mapping & other tests. After a few days he finally had a seizure which gave the doctors more than enough information to know what they wanted to take out of his Brain. They only took what they thought was necessary because why take more than what you have to take. The surgeon removed 3 inches of the right temporal lobe, and the Amygdala. There was concern about the hippocampus but at the he was in the OR it wasn’t showing any seizure activity. So they left that part in. Pathology reports showed it was in fact “Focal Cortical Dysplasia”. That is something formed in the womb in the 2nd trimester :( 6 days Post Op He did have a bad seizure (they are all bad but some are a whole new level of bad especially when it’s not a typical seizure that he’s had before). So, we called 911 and went back to the ER. Thankfully we were just across the street at the Fed Ex House. After 3 weeks In Memphis (that’s including the week of the testing and a few days being housed at the Fed Ex House) we then flew home (thanks to some precious friends who blessed us with that flight so we could get our boy home asap). That was a huge blessing! Once home he went 42 days without a seizure and then began having seizures every 5-7 days. We now are waiting for February 4th to come to return to the EMU in Memphis. Connor is on a new medicine that we believe is helping him the best thus far. We continue believing God for his miraculous healing and trusting the doctors that HE has led us to. Connor is homeschooled and really misses his friends but we are working on the steps necessary to help him process the feelings he has towards all of these life changes. Thanks for following Connor’s Story and please keep him and our family in your prayers! God Bless you and yours!