Autum's Transplant journey. 2.0

18/09/2023

Someone is leaving comments on my Transplant Journey page and leaving friend requests to people who have commented on my post. Please ignore him. I have no idea who he is.

19/02/2023

Long overdue update.
I've been out of the hospital for 5 weeks! That's a record. I go to dialysis on Monday, Wednesday, and Friday and pulmonary rehab 5 days a week. I've gained a lot of strength but have a long way to go. The major hurdle I face now is the inability to eat. I have a feeding tube and do night tube feeds so I get all the nutrition I need. But I'm having a very difficult time keeping food down. Otherwise my recovery is going well finally.
Thank you to all who have checked in on me. Thank you for your prayers. ❤️❤️

20/12/2022

I guess I should post an update. This has been a very eventful admission. I came in with severe nausea and altered mental status. I was hallucinating. I don't remember very much of it. Then I had to be treated for a UTI and last but certainly not least I had a GI bleed. All that said, I'm on track to be discharged Saturday. We'll go to the apartment, not home. I'm not happy about not being in Autryville for Christmas, but it beats being in a hospital bed!
Thank you for your continued prayers. I'm going to get back to my normal self one of these days. There's no denying, God has seen me through many a dark day. I have faith He will continue to see me through.

22/11/2022

Update**
I'm out of the fog of confusion I was in. Thank goodness. I don't remember much, but they think I was delusional as a result of meds. I'm clear minded now, but the nausea persists. Still in the hospital but out of ICU. Thank you for your prayers and well wishes. I hope to be out of here in the next couple of days.

16/11/2022

Hi, Alyssa here. Mom was taken back to Duke last Thursday and was transferred this morning to ICU. Her symptoms started with nausea and confusion and have progressed significantly over the last couple days. They will be aggressively testing for the cause of her decline. I only ask that you please pray for answers and for her healing. Thanks, y’all. ❤️❤️❤️❤️

20/09/2022

148. That's the number of days I will have been inside Duke University medical center as of tomorrow. And tomorrow is the day I go back to the apartment!! Not quite home, but so much closer. ❤️

07/09/2022

Kelli walked over to the window and pulled back the shade. This is what we saw! How appropriate for this to be right outside my window today.
Earlier when the team made rounds they came into my room to discuss the plans they have for my discharge. You read that right. DISCHARGE! If everything goes according to the plan I will be getting out of here in a couple weeks. I can't tell you how unreal it feels. Unreal, but amazing. I'm realistic enough to know there may be a bump or two on the way, but the fact that we have a concrete plan with achievable goals has me on cloud 9. I'm taking this rainbow as a sign the flood is behind me. I'm about to step out on dry land. Thank you Lord!

06/09/2022

This week has held so many firsts, like today being the first time I've worn my own clothes since April 26. I've been able to eat solid food, use the actual toilet and breathe using a nasal cannula with my trach capped. I'm definitely in the rehab phase, finally and I can't stop telling people how happy I am! It's been a very long road, and it's not over, but for the first time since April, I can see the exit signs. I still have goals to achieve, but I know what I need to do. I'm going to get it done!

11/08/2022

Today has been a good one. Seems my path is destined to be a curvy and bumpy one. I sometimes don't update, good or bad because it feels like whiplash. One good day, then a setback. But I have to claim these victories in Jesus' name. I started the day walking 2 full laps, sat up in the chair for several hours. Had a little spa time then walked again and I'm still feeling good. I'm claiming victory today! Thank you Lord!

05/08/2022

Update
After over 100 days, I'm still at Duke. Back in the ICU for infection. But, I feel the best I've felt in this journey and can see the end in sight. It's been so hard, and I'm not strong, I've just held tight to the hem of His garment. I can. Not. Wait to get outta here folks. Thank you for your prayers and messages. ❤️
Kelli washed my hair. And my face is enormous from massive steroid doses. I don't care, if it means discharge is not far away.
Still having AFib issues as well as fine tuning dialysis. We will get there ❤️

19/07/2022

I had cardioversion again today. Came back looking like they fried an egg on my chest. I'm in normal sinus rhythm though!! So, yay!

16/07/2022