JRob’s NICU Journey and Beyond

11/17/2025

Now one thing I’m NOT going to tolerate on this page is people thinking it’s okay to take my posts about my child and use them to bash me or my parenting decisions.

( dont think I didnt see the shares jump on my post about his circumcision consult 👌)

I share updates about JRob because they help other preemie moms, and because he has so many people who genuinely love him and cheer him on. I don’t have to share anything — I choose to because his journey gives hope.

If anyone has a problem with any decision I make for my child, feel free to unfollow or block this page. And if you don’t, I’ll gladly do it myself as people show their true colors.

This space is for support, love, and positivity — nothing else. 💜👶✨

11/16/2025

Or o2, IV's, cpap, even extubating themselves. No fear 🤷‍♀️🤣

11/16/2025

💜 Tomorrow is World Prematurity Day! 💜

Join us in raising awareness and showing support for premature babies and their families by wearing purple — the official color of prematurity awareness.

Every tiny fighter’s story deserves to be seen, heard, and celebrated. Whether your purple is a shirt, ribbon, or even a splash of color in your profile photo, it all helps shine a light on the challenges and triumphs of preemies everywhere. 💜

Tag us in your photos and use and so we can share your purple pride!

11/16/2025

Wear purple for JRob — proof that preemies come early, stay strong, and steal everyone’s hearts 💜

💜💜💜 Tomorrow is the BIG DAY!!

11/12/2025

JRob loving his O-Ball toys 🥰 They have truly helped him figure out his grasp and hands highly recommend to any first time moms looking for first toys for their little ones 🙏

11/08/2025

Thank you so much for sharing JRob’s story 🙏 we greatly appreciate all the awareness you share about prematurity and all the ways you help Nicu parents get through there stay 💜

💜 JRob’s Story – Our 23-Week Miracle 💜

“I was supposed to be an August mama, but my little boy had other plans.”

At just 23 weeks and 1 day, Anne Williams went to the hospital thinking she was having Braxton Hicks contractions — instead, she learned she was in preterm labor and had preeclampsia. Just days later, on April 26th, 2025, her tiny warrior JRob entered the world at 23 weeks and 5 days, weighing only 1 lb 6 oz and measuring 11.6 inches long — smaller than a Barbie doll.

With less than a 20% chance of survival, JRob fought through every challenge during his 129 days in the NICU at Brenner Children’s Hospital — battling infection, lung issues, and feeding struggles. He beat sepsis, his PDA closed with Tylenol, and he eventually weaned off oxygen and learned to eat completely on his own.

On September 2nd, Anne and her family finally brought their miracle boy home.

Today, JRob is 6 months actual, 2 months adjusted, weighing 13 lbs and measuring 21.5 inches — thriving, smiling, and showing the world just how strong 23-weekers can be. 💜

During Prematurity Awareness Month, we celebrate miracle stories like JRob’s and honor the strength of every preemie and their family.

Atrium Health Levine Children’s Brenner Children’s Hospital

11/06/2025

JRob got his lip tie fixed! They said it was moderate so it was up to us to fix it now or wait and see if he started losing weight from his latch issue. We decided to go ahead and get it fixed so it can be ruled out as a possible problem. The nurses loved him said he did good but he probably scared the other kids in the office during the procedure 😅 we have to do lip stretches 2x daily starting tomorrow for a week. Hopefully this will fix his latch issue so we don’t have to stress it anymore 🙏

11/06/2025

Eye day complete! ✅ finally in zone 3! Still looking like he’s gonna end up with laser eye surgery tho he’s only got 9 weeks left to get completely through zone 3 and it’s taken us 51 weeks to get to zone 3 so the odds aren’t really in our favor but fingers crossed maybe he can do it ❤️

11/05/2025

Hey everybody! 💭
I’ve had an idea bouncing around in my head for a few weeks and wanted to get some feedback and advice! I know some of JRob’s amazing nurses follow our page and there are a few NICU mamas here too, so I’m hoping y’all see this and can help. 💜
I’m in a lot of preemie support groups on Facebook, and it got me thinking — why aren’t there specific hospital-based NICU parent groups? A space just for parents of current or former preemies from the same hospital to connect, share their stories, and maybe make friends.
In today’s world, a lot of us feel more comfortable reaching out online before meeting face-to-face. I think something like this could be such a great way for parents to find support and community — especially with people who truly get it. Plus, since it would be specific to one NICU, families could even plan to meet up for coffee in the family dining room or attend the monthly family lunches together so no one has to go alone.
I know this is something I would have loved to have during our stay — a safe, supportive space to connect with others walking the same road. 💜
If anyone knows who I should pitch this idea to or if this is something the hospital might already be working on, please let me know! I don’t want to start a Brenner’s/Atrium NICU group without making sure it’s something they support first.

11/03/2025

Happiness looks like this 💛

11/02/2025

I’m beyond grateful that Preemie Adventures featured JRob’s story as part of their Prematurity Awareness Month series. 💜 Their page is full of love, hope, and real stories that remind us we’re not alone in this journey. 💜 Be sure to check them out and follow along as they share preemie stories every day this month!

Preemie of the Day:

Meet the amazing and wonderful JRob!!

His mom was supposed to be an August mama, but her little boy had other plans. At just 23 weeks and 1 day , she went to the hospital thinking was having Braxton Hicks — instead, she learned she was in preterm labor and had preeclampsia.
Just days later, on April 26th, 2025, at 23 weeks and 5 days, our tiny warrior JRob was born weighing 1 lb 6.2 oz and measuring 11.6 inches long — smaller than a Barbie doll. His chances of survival were less than 20%, but he decided from the start that he was going to fight.

They spent 129 days in the NICU at Brenner Children’s Hospital, facing infection, lung issues, feeding struggles, and countless brady/desat events. But through every setback came a miracle — he beat sepsis, his PDA closed with Tylenol, and he eventually weaned off oxygen and learned to eat completely on his own.
Finally, on September 2nd, they brought their miracle boy home.Today, JRob is 6 months actual, 2 months adjusted, weighing 13lbs and measuring 21.5 inches long — thriving, smiling, and showing just how strong 23-weekers can be.
💜💜💜💜💜💜💜💜💜💜💜💜