Orphan Drug Solutions

04/22/2015

Looks like our booth is ready for business tomorrow at the World Orphan Drug Congress!!

04/21/2015

Our bags are packed and we're headed to DC tomorrow for the World Orphan Drug Congress! Make sure to stop by booth #2 and say Hello! :)

The largest international, commercially-focused event for the advancement of rare disease research and orphan drug development.

04/17/2015

Help support rare disease locally by registering for Quinn Madeleine Inc.'s first "Feel The Breeze" 5K!

04/16/2015

Hope the World Orphan Drug Congress attendees are hungry! We packed over 100 custom chocolate bars to hand out at our exhibit!

04/15/2015

Thanks JUICE Pharma Worldwide for making this amazing video for us -- we love it! In case you were wondering what we do here at Orphan Drug Solutions, this video is sure to clear that up! Let us know what you think...

04/15/2015

ONE WEEK left until the 2015 World Orphan Drug Congress in Washington DC! We just got our promo mason jars in, so make sure you plan to stop by our exhibit next week and chat with us about how ODS can help you! :)

04/04/2015

The teen campaigned for greater awareness and research into progeria, a disease that made her age rapidly. She died Thursday.

03/30/2015

We can't believe the first Denim Dash Virtual 5K for Rare Disease has come to a close! Take a look at our recap to see some awesome pics the dashers submitted! Until next year....

The first annual Denim Dash has come to a close, and we our jaws have officially dropped to the ground — together we raised over $60,000 for Global Genes and rare disease research thanks to 675 dashers and over 1,100 supporters!

02/27/2015

Put on your smocks & join our "Painting with a Purpose" Paint Nite event on Thursday, March 26th from 7-9pm to help raise funds for the ! All proceeds go directly to Global Genes Project to help bring awareness to the rare disease community. https://www.paintnite.com/pages/events/view/longisland/872709

02/19/2015

Sign up today to help make a better tomorrow!

Denim Dash Virtual 5k Run/Walk for Rare Disease benefiting Global Genes

02/03/2015

We're in the studio today recording the voice over for our new promo video! Thank you Jessie for lending us your voice!

01/26/2015

Yeah, Facebook is annoying. It's overused and overexposed. But, for parents of children who have rare diseases or disorders, special equipment, body differences, or something that makes them extra unique... it's the most precious invention, ever.